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Skylark

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Everything posted by Skylark

  1. Skylark
    That's great news, and I'll join in thanking you for your service!
  2. Skylark
    Don't worry. There is no free iodine in synthroid. The iodine in it is incorporated into the thyroid hormone.
  3. Skylark
    Yay! No wheat in the cocoa or barley in the tea. I can still drink coffee at work.
  4. Skylark
    If you were Marsh 2 or worse, my understanding is that there is pretty much nothing else that causes that particular kind of damage in combination with the blood tests. There is not necessarily anything to see on endoscopy before the path report comes back, as the damage can be only microscopic. I think I read somewhere that inflammatory bowel diseases...
  5. Skylark
    @Iowa - There is no harm in trying the diet with all your tests done. With a celiac son it sounds very sensible to me. @Scully - Trying the diet is free if money is an issue. Some people are more bothered by the lack of a firm diagnosis than others. If you're willing to trust your body you could go with a celiac blood panel but skip the more expensive...
  6. Skylark
    So you are definitely low IgA. As your doctor says, it's not clinically significant, but it means you cannot ever have a high result on a celiac panel even if you're celiac. Also there is an association between low IgA and celiac. If you want accurate tests you'll have to go back to your doctor for anti-TTG IgG and the new anti-deamidated gliadin peptide...
  7. Skylark
    The endoscopy is completely diagnostic, especially with supporting blood tests. Your doctor actually saw the villous damage in your intestine and nothing does that but celiac disease. A lot of celiacs don't tolerate dairy very well. You might try seeing if removing dairy from your diet helps the remaining pain and bloating.
  8. Skylark
    The grasses are theoretically gluten-free. I personally choose to not consume anything made from those plants, as I don't trust how carefully people who produce wheat grass are separating grass from unsprouted grains. Wheat grass seems like an awfully risky "superfood" and it's really no more nutritious than safer "superfoods" like spinach, spirulina, blueberries...
  9. Skylark
    Responses to allergy or intolerance triggers are definitely affected by stress and fear. You might find Emotional Freedom Technique helpful, Bea. I used it to get my mind/body used to eating milk and soy again once my gut healed. Open Original Shared Link is the original free EFT manual. Sadly, the guy that worked it out has retired and the site he used...
  10. Skylark
    Gas can be from lactose intolerance. A lot of celiacs are lactose intolerant until their intestines heal, since lactase is made at the tips of the villi.
  11. Skylark
    I'm not sure why you would expect fecal IgA and blood IgE tests to come out the same. It's a totally different part of your immune system. The usual thing with RAST is to eliminate all the foods that came up positive. Then you introduce them one at a time to see if you have a reaction from eating the food. They are not conclusive because your body...
  12. Skylark
    The value of the testing depends on your view. Your daughter already has a "positive" genetic test, as a first-degree relative of a celiac. It is abundantly clear that the DQ2 and DQ8 tests do not tell the whole story anyway. What if those aren't the celiac genes in your family? What you really need to know is if there is intestinal damage that could...
  13. Skylark
    1. Sex: Female 2. Age: 42 3. How long ago were you diagnosed with celiac disease? 5 years, medically diagnosed by remission of clear celiac symptoms on the gluten-free diet. 4. Does anyone in your family have celiac disease? Mom has non-celiac gluten intolerance. 5. How severe is your celiac disease? I'm sorry, but I have no idea how to answer this. ...
  14. Skylark
    How does a "full panel" of less accurate and specific tests give a clearer picture? It's hard enough to get positive bloodwork, let alone a positive on something that's 98% specific. There are actually articles in the medical literature encouraging doctors to diagnose celiac with positive DGP or EMA and avoid the discomfort of a biopsy unless symptoms do...
  15. Skylark
    It sounds like you need to read some introductory information on celiac testing. I was writing that for orangez, who has been doing more reading. Try this University of Chicago information. Open Original Shared Link Another on testing from the NIH. Open Original Shared Link
  16. Skylark
    I think you need to tell them the truth, that you're feeling better but still reacting to something, and trying to sort out whether you're one of the unlucky soy-sensitive celiacs or just reacting to crumbs. I would make sure they know how much it means that they're trying to work with you, but that you can't tell them exactly what your dietary needs are...
  17. Skylark
    Good luck with it! I hope you get some answers.
  18. Skylark
    The tonsils are probably a mix of inflammation from gluten and dry air. The missed periods and anemia are definitely gluten. Cold hands may be low thyroid that goes hand in with celiac. She should have her TSH tested. Gluten is NOT a mosquito bite for us. Mosquito bites heal, even if you itch them. You can clean your room as good as new. Gluten does...
  19. Skylark
    No need for tears. You'll be perfectly fine. TSH of 11 isn't even that high, although you probably feel like crud. It can go up to the 20s and higher. You are certainly not "at death's door". Believe it or not, high thyroid is much worse than low. There is no permanent damage, except whatever autoimmunity has happened to your thyroid gland and as...
  20. Skylark
    So much confusion in these posts. You are very likely celiac orangez, and even if your biopsy is normal you may want to stop eating gluten. I imagine your GI will tell you this. Kathy, the distinction is not between IgG and IgA, but between anti-gliadin and anti-deamidated gliadin peptide (DGP). Gemini, anti-DGP is as accurate as anti-EMA and both...
  21. Skylark
    Out of curiosity, why does it matter? Your doctor does not control what you eat. The only treatment for non-celiac gluten intolerance is to go on a gluten-free diet (sometimes casein-free too). If there are still lingering GI problems gluten-free, the diet will not affect your doctor's ability to treat you. By the way, I have yet to run across a doctor...
  22. Skylark
    Hi there. You cannot interpret laboratory results without the normal ranges provided by the lab. As Cass says, your total IgA seems low, which means the TTG-IgA is less accurate. You might need the IgG versions of the tests. Can you get a referral to a doctor who is more experienced at doing the celiac blood tests? You could just go off gluten for...
  23. Skylark
    I think you've missed an option in your list. Your GP who suspects celiac should be able to order a celiac panel right away, so that you can take your daughter off gluten sooner and avoid another hospital visit. Having her wait six weeks for a GI to do a very standard blood panel is irresponsible on this doctor's part and you need to push a little harder...
  24. Skylark
    There is an expert on gluten-caused neurological symptoms in the UK who has published extensively, Marios Hadjivassiliou MD. Perhaps you could email him to ask if he knows of anyone in your area who might have some experience working with severe gluten neuropathy. I will PM you his contact info from a recent research paper.
  25. Skylark

    ARCHIVED Reputation

    Skylark replied to Loey's topic in Board/Forum Technical Help

    Actually I don't think there is a way to change a vote. You could give a positive on another of their posts to even it out though.
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