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Skylark

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Everything posted by Skylark

  1. Skylark
    If they find a working vaccine I'll be first in line. I don't mind living without wheat, but constant vigilance against cross-contamination and hidden gluten is no fun at all. I'm vitamin D deficient even after 5 years gluten-free and I have to wonder how much damage there is from traces of gluten in my supposedly gluten-free food. I agree that I'd rather...
  2. Skylark
    I'm glad you found something that has made you well again! The way non-celiac gluten intolerance is diagnosed is by response to the diet with negative celiac tests. As Dixiebell mentions, you could gluten yourself back up and ask for a biopsy. It depends on whether response to the diet is enough to keep you gluten-free or whether you feel like you need...
  3. Skylark
    Allergy blood tests for food allergies are notoriously inaccurate. Is there any way you can take your Geneva results to an allergist?
  4. Skylark
    It sounds to me like you need to talk directly to the chef at the hotel. I can't imagine they can't come up with a clean pan to cook some simple food.
  5. Skylark
    There are rather a lot of studies on oats already done. Most celiacs tolerate them, but there are very clear examples of people with activated T-cells, anti-avenin antibodies, and mucosal damage from oats that were tested and gluten-free. I would guess from the literature that maybe 10% of celiacs cross-react to oats. My number may be high as it's a gut...
  6. Skylark
    Gluten-free was a bit of a relief for me. I'd rather a diet change than medications. My gut works normally now. All the D is gone, and I don't spend days curled up around a heating pad wishing my stomach would stop hurting. My mental health is better and I'm not tired all the time either. I'd rather not have celiac, but figuring it out changed my life...
  7. Skylark
    That's good to know about Pamela's! I love that brownie mix.
  8. Skylark
    I take it you didn't look at the research I linked at all? Fiber reactions do not cause activated T-cells and villous atrophy on biopsy. There are a subset of celiacs who have true celiac reactions from oats. It is not intolerance, problems with fiber, cross-contamination, or allergy. It is an autoimmune, celiac reaction triggered by avenin (the gluten...
  9. Skylark
    Balmer's diaper rash cream is amazing. (Yes, I used to get the same problem after bad bouts of D.) A panty liner set back a bit will keep it off your clothes.
  10. Skylark
    Welcome to the board. This is a very good test for celiac. There are folks around here who had negatives on the other tests, but this test identified their celiac disease. The TTG IgG is also suggestive, but not as much so since you have normal amounts of IgA. Your GI will probably want to do a biopsy, so you might give his office a call and find...
  11. Skylark
    Yes, celiac disease CAN be outgrown. People around here think of celiac as permanent but it's not always the case. I'm a little frustrated because I can't seem to turn up the research article I read recently showing remission in some childhood celiacs. Thing is, celiac remission is relatively rare, while "silent" celiac is more common. "Silent celiac...
  12. Skylark
    I'm sorry your hubby is sick. That must be an awful feeling cooking gluten-free as best you can and it not working. Check your baking soda for gluten. Rumford and Clabber Girl are gluten-free. Also, where are you getting your flours? Are you using one box of potato starch? It's in both recipes and maybe it's cross-contaminated somehow. I usually try...
  13. Skylark

    ARCHIVED Fad Diets

    Skylark replied to Rowena's topic in Related Issues & Disorders

    The really funny thing is that I figured out my gluten intolerance with the Atkins fad. I knew I couldn't eat wheat, but when I dropped the rye crackers I thought I could eat in favor of salad, all of a sudden some nagging GI symptoms vanished.
  14. Skylark
    If you tolerate oats, the Bob's Red Mill oats are pretty carefully grown and tested so they should be safe.
  15. Skylark
    The celiac reactions to oats in oat-sensitive celiacs have been confirmed by blood test and biopsy. Here is the study where they tested celiacs who were eating oats and feeling sick from them. Open Original Shared Link And another where someone went into clinical remission eating elisa tested oats. Open Original Shared Link There are a LOT of studies...
  16. Skylark
    The fluctuation in TTG is just normal testing variability. I'm glad to hear you're feeling better!
  17. Skylark
    About 10-15% of celiacs react to the gluten protein in oats. If you react, you need to avoid them.
  18. Skylark
    There is nothing to debate, really. DPP-IV products are a scam. DPP-IV will not detoxify gluten, as it only cleaves prolines off the ends of peptides, not the internal proline-proline in the part of gliadin we react to. It absolutely, positively cannot make gluten safe and traces of gluten eaten with DPP-IV will still cause you damage. Save your money...
  19. Skylark
    I don't trust FFL at all. They really don't seem to care about customers' health. They were labeling spelt breads as "wheat alternative" until the FDA investigated. There was this thread about their corn tortillas a while back too. As far as processed products in general, I feel safest eating foods were the company is testing their raw materials...
  20. Skylark
    Oats in general. Oats have a gluten-like protein called aveenin. A few celiacs react to aveenin as if it were gluten. Oats that weren't specially grown and processed to be gluten-free are a problem for all celiacs.
  21. Skylark
    Smoking and alcoholism always spring to mind. Remember that in many celiacs gluten has addictive properties. People don't realize this, and will make all sorts of interesting rationalizations to keep consuming an addictive substance.
  22. Skylark
    That anti-deamidated gliadin IgG test is about 98% specific for celiac disease. https://www.celiac.com/articles/22055/1/Diagnostic-Performance-of-IgG-Anti-deamidated-Gliadin-Peptide-Antibody-Assays-is-Comparable-to-IgA-Anti-tTG-in-Celiac-Disease/Page1.html That plus your noticeable reaction to gluten means that even if your mucosa is not damaged, you...
  23. Skylark
    In reality, I don't think anyone would spend 7.5% of income on difference between gluten-free and normal foods. It's too much of your paycheck with low income, and too much food to eat with high income. I can see possibly qualifying for the deduction in a year where you had extensive health problems and a lot of other medical bills. That's good to know...
  24. Skylark
    Not detox so much as it takes time for inflammation to heal. Early on, you could be getting gluten, or you could have just had a rough day and some of the leftover inflammation causes some joint pain and fatigue. It's great to be really careful with the diet until you figure out your level of sensitivity, but do give your body a month or two to really...
  25. Skylark
    I agree with Shopgirl, and there is scientific evidence that abnormal gut serotonin signaling causes IBS in some people. The antispasmotics really help some people who seem to have gut motility problems. The big problem comes when doctors don't have the time or the inclination to dig deeper. Is it really only serotonin imbalance, or is there celiac disease...
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