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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    If you could drink it before, I'd try grinding your own coffee from a known gluten-free brand like Peet's. Coffee tastes better freshly ground anyway. As for the milk, is Fieldcrest antibiotic or hormone free? Some people aren't sensitive to the milk itself, but to the antibiotics in it. Cows on hormones tend to be sicker and given more antibiotics...
  2. Skylark
    EPP has lots of soluble vitamins, and they've balanced the calcium, phosphate, and magnesium pretty carefully. The thing it has that's unusual is a lot of Ashmead chelates of trace elements. It's a little light on A and D for safety reasons and my doctor prescribed 2000 IU of Vitamin D along with the EPP. If you're thinking celiacs need extra B12, the...
  3. Skylark
    Older meds = lithium, possibly with depakote Lithium is a very good medicine, probably still the best we have for bipolar in people who tolerate it well. Doctors don't use it much these days because people complain about the blood draws to monitor levels. It is not without side effects, but the anticonvulsants have side effects too and the antipsychotics...
  4. Skylark
    Naturopathic shrinks can be really good about that. My HMO shrinks just shook their heads and didn't know what to make of my fairly impressive recovery. They were happy for me and asked for info on Truehope. LOL! Oh, by the way take extra fish oil if you're feeling a little manic. That's the one tip I got from an MD/PhD shrink that was long-term useful...
  5. Skylark
    Coffee is a pretty major GI irritant. Before I healed there were times I had to switch to tea for a while. I've read posts where some people have had trouble with ground coffee. It's hard to know why - the best guess is that some flavors have gluten in them and it gets on the grinder. Can you buy whole beans and grind them yourself? Also go for a darker...
  6. Skylark
    Hi, Megan It sounds like you got into a little gluten, or maybe you're even fighting off a virus. Avoiding all the gluten all the time takes practice and most people make mistakes at first. Any time you eat food someone else has prepared, including eating out or buying commercial processed foods, you have to be sure you know all the ingredients and that...
  7. Skylark
    So... I thought I was OK on T4 but couldn't get back to feeling right after I had to have my dose increased again. I'm on T4 and cytomel now and it's definitely a little better than just T4. I'm glad you started this thread, as it's peoples stories here that made me willing to approach my doctor.
  8. Skylark
    I was bipolar. Gluten gave me depression, I was not diagnosed celiac and treated with SSRIs, and the SSRIs started causing manic episodes. I've been on a laundry list of psych meds including Lamictal. It didn't do much. None of the meds did much, as gluten was part of the underlying problem. I still get anxious and tired if I'm glutened. Gluten-free...
  9. Skylark
    I think the biggest problem is that HMOs pile too many patients on doctors. They don't have time to read and keep up on the research, and they don't have enough time to spend with patients. I totally understand the frustration as I had to diagnose myself after many years of unexplained illness.
  10. Skylark
    Your doctor is an idiot. GlutenEase and all the other DPP-IV products are a complete scam. DPP-IV only removes prolines from the end of peptides, it doesn't cleave ones in the middle like on gliadin peptide. If you don't react noticeably to gluten, just take reasonable caution and you will be fine.
  11. Skylark
    As far as I know, oats are generally unsafe. They are too likely to be CC with a fair amount of wheat from wheat growing in the oat fields, grain elevators, and trucks. The only oats that are safe for celiacs (if you tolerate oats at all) are the specially grown and handled gluten-free ones. If you want a sweet, flavored cereal, Trix doesn't have any...
  12. Skylark
    Sorry you're feeling so sick. I hope the pain au chocolat was good, although it probably hardly feels worth the trade-off for feeling so sick. I imagine you're going gluten-free for good no matter what the tests say now. I wasn't expecting to come up sensitive to gluten when I did my elimination diet or I would have had a lot more good pastries beforehand...
  13. Skylark
    You might keep an eye on food colorings, especially tartrazine.
  14. Skylark
    As well as the B12 Raven suggested be sure you are eating healthy fats, and getting enough vitamin D and other B vitamins like thiamine and niacin. Your nervous system needs them to repair the damage. Lecithin (from egg yolks or soy) and omega-3 are particularly important. Don't try to eat a "low fat" style diet as you will starve your nervous system.
  15. Skylark
    There is medical data where they fed celiacs 50 ppm gluten and did biopsies and there was no damage. They've even tested celiacs eating 200 ppm Codex wheat starch breads and some were perfectly fine. Nobody seems to pay attention to the handful of people who always drop out of these studies because the 50 ppm food makes them feel sick. On the Codex study...
  16. Skylark
    I felt funny drinking Redbreast. It's the only whiskey I've tried that didn't sit well. It's pot whiskey and a little different from Scotch. As I think about it, that could have been a yeast reaction as I've been struggling with candida lately.
  17. Skylark
    I remember because I got so sick. It was a sandwich from Jack in the Box. I was going to gluten challenge so I went by Jack in the Box on the way home since they were only a few blocks away to start it. They had grilled French bread sandwiches on a promotion. I got one with ham and swiss, got sick, and decided I didn't want to put up with being that sick...
  18. Skylark
    Some people go through a bit of withdrawal when they go off gluten. Hang in there for a bit! As far as villous damage, it depends on how bad it was. The process is generally a few months for mild damage out to 2-5 years for total atrophy.
  19. Skylark
    I sure hope she's back off gluten now!
  20. Skylark
    Eating what you can tolerate should be OK. By the way, has your thyroid been tested? Also be sure your multivitamin has zinc, selenium, and panthenol. Deficiencies in any of those three can make hair fall out. (Been there, done that.)
  21. Skylark
    Glad you figured out what happened. I take Pepto Bismol when I'm uncomfortable. Tylenol helps me too, and it's easier on the stomach than aspirin or advil.
  22. Skylark
    Watch out for Lipton Onion Soup. They started putting "autolyzed yeast extract (BARLEY)" on the label now so it's not gluten-free any more.
  23. Skylark
    The head of the Finnish Celiac institute, Markku Maki, says when you do random celiac screens in Finland and the neighboring part of Russia on the peninsula, the rate of celiac in Finland is almost double. The people have the same genetic/ethnic background, but the Russian side of the peninsula is poorer, so the lifestyle and diet are different. Maki...
  24. Skylark
    Shared machinery/shared facility food has been tested and the "shared machinery" labeled food did have higher traces of allergens. I do not worry about "shared facility" food as it's unusual for big food manufacturing plants to not have gluten somewhere. You have no idea whether the gluten-containing food is even in the same part of the building. I...
  25. Skylark
    Why did you copy my list rearranged? Did you like it that much?
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