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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Also, don't waste money on the genetic tests. If your insurance covers them it's interesting information, but that's about all. You would find out if she has a high risk for celiac, but not whether she is or isn't celiac. The so-called "celiac genes" do not automatically make a person celiac, and as Raven can tell you, you can be celiac without the "celiac...
  2. Skylark
    I've also had bread fall from too much liquid. I find gluten-free bread is much touchier about the amount of fluid than wheat bread. The dough also tends to be moister, which means I can't follow my old and well-developed wheat baking instincts.
  3. Skylark
    I'm so glad he's doing better. It's hard to decide whether to trust your instincts or go with the doctors. It sounds like you made a good choice.
  4. Skylark
    My mom found a rheumatologist to be the most knowledgable about autoimmune diseases. Celiac is autoimmune and the kinds of immune cells that show up in the eruptive syringomas look to be similar to the ones in the celiac intestine. I wonder whether it's just related to the celiac? This is the reference I found but it's kind of technical. Open Original...
  5. Skylark
    Plain meats you cook yourself are naturally gluten-free. You have to double-check about lunch meats, sausages, some ham glazes, and pre-seasoned meats. Many are gluten-free. As far as cooking, all plain herbs and spices are fair game, as are onions and garlic. By "plain" I mean buying a bottle of oregano or basil. The things to avoid are seasoning...
  6. Skylark
    How exciting! I'm so glad to hear she's feeling better. Her total IgA is on the low side, so the test you had may not be very accurate. I agree that she should probably see a specialist. It's going to be hard to put her back on gluten for more tests though if it makes this big a difference. I'm glad to hear her school is supportive of kids without...
  7. Skylark
    I was so sorry to read this. Did he come back to the house? Is he feeling a little less stressed?
  8. Skylark
    Well, as long as you're not wanting any other tests. If you decide to go back and ask about the total IgA and anti-tTG IgG, you still need to be eating gluten. And yes, you absolutely want to try the diet. Raven is so right about false negatives.
  9. Skylark
    OK. You've had the biopsy so that's done. What you might do if it's negative is go back to your PCP, and make sure there was a total IgA. If not, tell her that you still feel bad, you know she doesn't think you have celiac but could she please humor you with total IgA and tTG IgG to be sure the celiac panel was right? Then go try the diet.
  10. Skylark
    Why is that so different from their website? Q: Is Dannon yogurt gluten free? A: We no longer use the term gluten free with respect to our yogurts. Instead we separate our products into gluten safe or not gluten safe categories, depending on the specific brand of Dannon yogurt. Dannon Plain yogurts (Lowfat, Nonfat and Natural) and Dannon Plain Activia...
  11. Skylark
    I've read the same research on poor digestion and intestinal permeability. There are also some old papers showing that celiacs have more food antibodies in general than people without celiac. The soy intolerance can go away. I was reacting to cow casein and soy when I did my elimination diet. I was able to start eating both after a year or so gluten...
  12. Skylark
    Natural cheddar flavored corn puffs, sort of like Cheetos that don't turn your fingers orange. Gluten-free and yummy! Open Original Shared Link I don't know about CC on the corn chips at Costco. I buy the organic Kirkland ones and haven't had any trouble. I worry more about GMO corn than CC in corn chips myself. I have not gotten sick from Riceworks...
  13. Skylark
    So no total IgA to know whether the tTG IgA was valid? Bummer. People who are IgA deficient need tTG IgG to diagnose celiac. Well, maybe there will be info in the biopsy. If you're not concerned about the blood work you can start the diet, but it would be nice to have all the rest of the tests run. You're either going to want gluten-free, low FODMAP...
  14. Skylark
    If he is willing to accept a little uncertainty and still go 100% gluten-free for life he does not need the endoscopy. Some people really need that firm diagnosis to accept the diet. I agree that if you're celiac and he has the positive blood tests, he is probably celiac.
  15. Skylark
    Ugh. Bloating and gas is usually celiac, lactose intolerance, or fructose malabsorption. You can post your celiac panel if you like, including total IgA. If you've had all the testing done, yes it's time to start working on your diet.
  16. Skylark
    For starters, you need to keep her on gluten to continue testing. NONE of the tests work gluten-free. It's important to find out about celiac for kids because of school accommodations. She definitely sounds celiac, especially with the lactose intolerance. Lactose is made at the tips of the villi and damage can cause intolerance. The celiac tests are...
  17. Skylark
    What are you trying to learn from Enterolab? If the diet helps that's much better information. Enterolab absolutely does not diagnose celiac and you already know you're gluten sensitive.
  18. Skylark
    It doesn't sound like it couldn't possibly get worse! I'm really glad to hear the TCA is helping.
  19. Skylark
    You and your husband gently and firmly tell them that the rules are no gluten. I always got "be grateful you have food in your belly and a roof over your head" when I complained about a household rule I didn't like. You and your husband are in charge when a major health decision needs to be made, not your kids. It's not "fair" that you have celiac, but...
  20. Skylark
    I have a male relative who had the surgery. He had no problems afterward and was glad he did it.
  21. Skylark
    Usually fast reactions like your ear pain are allergy. I have a bit of gluten allergy now too. Last time I got a tiny but of Guinness in a sauce I didn't know about, along with the usual nausea I had a tingle in my mouth, asthma, and woke up sneezing and with a runny nose the next morning.
  22. Skylark
    I handle living gluten-free by hanging out here! I got really sensitive like you are and started to think I was losing my mind. I have a couple friends who are gluten sensitive, but they don't have to worry about crumbs the way I do. Your family can't be enjoying a crabby, stomach-achey mom and you have your husband's support which is wonderful. I'd...
  23. Skylark
    Well, given the all the nausea and heartburn you're getting I can't imagine wanting to eat gluten for long. It's funny. Now that you mention it some people do have withdrawals from gluten. Folks are always advised to go cold turkey by doctors, and they're often desperate to get rid of the symptoms so it's fastest but I wonder if that's the best idea...
  24. Skylark
    I was thinking the same thing as Wheatfreedude. People who exercise a lot and don't get enough high-quality protein tend to look a little run-down.
  25. Skylark
    I found Natural Factors sublingual 1000ug methylcobalamin tablets at my local health food store at $10 for 90 pills. The carrier is lactose so it won't work if you're lactose intolerant. After slugging it out with Riceguy over safety he convinced me at a little more wouldn't hurt and might help with this stupid brain fog and fatigue.
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