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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Glad you got that sorted.
  2. Skylark
    She should have been tested for total IgA and TTG IgA as part of a celiac panel. How did those look? Celiac is not diagnosed from anti-gliadin IgG unless the person is IgA deficient overall. It does mean she might be sensitive to gluten, but don't try the diet until all the testing is done. The gluten-free diet makes the tests inaccurate.
  3. Skylark
    You seem to be assuming that it is some chemical causing you problems. Cola flavoring contains vanilla, citrus oil, and cinnamon, all of which can be allergenic. I'm still betting on the sugar. Blood sugar fluctuations are not good for glaucoma and Pepsi is like a glucose challenge in a can. As far as "natural flavorings", in the US, we are in a market...
  4. Skylark
    Gosh, there's a lot of stuff in Pepsi. Lots of phosphoric acid, sugar to spike your blood sugar, natural flavorings that you could be allergic to, and some people find they're sensitive to carmel color in a non-celiac way.
  5. Skylark

    ARCHIVED Dim Sum

    Skylark replied to knomad's topic in Gluten-Free Restaurants

    Sorry - nobody meant to put you on the defensive! There are people who get diagnosed and don't seem to want to stick to the diet, some of whom have eventually gotten into nasty health problems. I'm glad to hear it's helping with your blood sugars. It's genuinely surprising what nagging health problems go away with this diet. We've all gotten sick...
  6. Skylark
    I just had this conversation with a friend. I had to remind her that whole wheat bread is really healthy food if you're not gluten sensitive. I wish I could get commercial gluten-free bread with all the fiber and the nice, low glycemic index of whole wheat. All these fadliacs are making me crazy.
  7. Skylark
    That's a good link, Raven! I believe TTG also shows up in rheumatoid arthritis, but that gives joint pain rather than GI symptoms.
  8. Skylark
    Punch reception - Antipasto sounds yummy. Shrimp cocktail can also be gluten-free if the sauce is. Around here, corn chips, salsa, and guacamole are popular. You could also go with a smoked salmon with rice crackers. Other things could be cut fruit, raw veggies with gluten-free dip, nuts, or olives. Dinner - I don't see a reason to completely avoid...
  9. Skylark
    Here's a couple references for you. Coming back from Marsh 3, you're looking at maybe two years to really recover, and some people still have a little abnormal histology after five years. Open Original Shared Link Open Original Shared Link Other things to consider are that some celiacs react to casein (milk protein) as though it were gluten and...
  10. Skylark
    Remember that nuts are quite allergenic. A migraine out of nowhere might be almond sensitivity. If I remember correctly, Emerald makes gluten-containing products on their lines and GMP cleans them. Some folks react to that kind of thing. Open Original Shared Link has gluten-free certification and packages with dedicated lines. You can order some nuts...
  11. Skylark
    With negative anti-gliadin IgA, negative biopsy, and lack of response to the diet you might not be celiac. Your doctor should have tested you for anti-endomysial antibodies or anti-deamidated gliadin peptide when your biopsy came back normal. Have you been checked for Crohn's disease, ulcerative colitis, or chronic liver disease? Anti-TTG can be elevated...
  12. Skylark
    Time to practice scathing looks. With your high TTG and damage, you're on a timeline of months. Don't let the idjuts get you down!
  13. Skylark
    Your neurologist is right that he might only show anti-gliadin IgA or IgG. The anti-TTG is for the gut version, not the brain version. Brain antibody tests don't exist yet, except a few researchers who are working on them. It's unfortunate that your neurologist was unaware the gluten-free diet makes the antibodies go away, but in fairness that's not really...
  14. Skylark
    Eat a pain au chocolat for me!
  15. Skylark
    Sounds like you should be tested for celiac with the itching and GI problems. You probably have some sort of food intolerance or sensitivity but it may or may not be gluten. Lactose and fructose intolerances can cause pain and bloating too.
  16. Skylark
    She'll be fine. There are studies on gluten challenge, and it takes a lot more than eating two pieces of pasta once to do a lot of damage. I imagine she's not feeling well because there is certainly a little immune reaction. As Peter says, it would take a lot more than what she ate to set her back to square 1. It sounds like you and your daughter are...
  17. Skylark
    Depends on the type of non-Hodgkins lymphoma. Celiac predisposes for T-cell lymphomas, particularly EATL (enteropathy-associated T-cell lymphoma). If it's a B-cell type it's not likely to do with celiac. Open Original Shared Link If you have DH, your family should definitely be screened.
  18. Skylark

    ARCHIVED Dim Sum

    Skylark replied to knomad's topic in Gluten-Free Restaurants

    You definitely need to stay on the diet. If you're anemic and have villous atrophy, you are not "asymptomatic". You have malabsorption and will be at risk for osteoporosis as well as the anemia. Celiacs who continue to eat wheat are also at elevated risk for some fairly nasty intestinal cancers because of all the abnormal lymphocytes in the intestinal...
  19. Skylark
    My mom is the one with fructose malabsorption and she's gluten-free as well. I've seen her eat salad a lot, but she's never been one for iceburg lettuce. She eats the baby greens or romaine. She has to watch what other veggies she puts on it. She eats a lot of chef salads with hard cheese (low lactose), sliced gluten-free lunch meat, or hard boiled eggs...
  20. Skylark

    ARCHIVED Overwhelmed

    Skylark replied to Gia's topic in Coping with Celiac Disease

    Wambulance on its way! (kidding) You sound like you have a million different celiac symptoms. The demotivation and depression comes with the disease. It has mental as well as physical effects. That awful itchy rash could very well be dermatitis herpetiformis, the celiac rash. Getting gluten-free for real may fix a lot of this. And by the...
  21. Skylark
    I'm so sorry your daughter is sick. It sounds like she is getting very good medical care if you're at a university hospital. The response to prednisone rather than the gluten-free diet really does suggest Crohn's. It is true that celiac and Crohn's can appear together, and gluten is hard to digest with inflamed intestines. Trying a gluten-free diet is...
  22. Skylark
    ...ugh multiple posts as I tried to make the link readable...
  23. Skylark
    ...ugh multiple posts as I tried to make the link readable...
  24. Skylark
    Hold on! First, keep eating gluten and go to your doctor to get tested. This could be celiac, and tests for celiac disease do not work if you are on a gluten-free diet. With your other health problems, you really need to know. It's important for you to know for sure, because gluten-free products tend to have a higher glycemic index than whole wheat so...
  25. Skylark
    Hello, there. May I suggest you check out all the great articles on the parent site for this forum, Open Original Shared Link ? There is a "what is celiac disease" article right on the main page with links to many articles on the diet. At first, it's better to skip prepared food. Stick to fruits, veggies, nuts, meats you cook yourself, rice, and potatoes...
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