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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I'm going to give this to you straight. You are risking some very nasty health problems, including intestinal cancer, by not sticking to the diet. People with celiac who keep eating gluten can get organ damage, osteoporosis, nerve damage, thyroid disease, and other autoimmune diseases like lupus and sjogren's. Celiac is not something to play around with...
  2. Skylark
    Hi there. Everyone new is moderated by hand until you make a certain number of posts. It keeps the board free of spam and trolling. Your post went into the queue and when a moderator logs in, they'll read your post and let it through it to the board. They are around pretty often. I don't think I ever waited more than a couple hours when I first got here...
  3. Skylark
    TTG can come up in other autoimmune diseases. I think they find it sometimes in rheumatoid arthritis. Thing is, your anti-EMA are very specific for celiac. Also, you shouldn't have anti-gliadin if you're not getting exposed to gluten. If I were you, I would check meds, vitamins, toothpaste, shampoo, dog food, any possible source of gluten. Drop distilled...
  4. Skylark
    There are people who don't test positive for celiac but feel very sick from gluten. Have you tried the diet?
  5. Skylark
    Oh, gosh. Depression is the worst and you do sound clinically depressed. I've been depressed lately from low thyroid so I understand. Grief can make you depressed, especially with a bunch of other major life changes. You've just married, are starting school, and now a medical diagnosis you weren't expecting. Remember that even wonderful changes like...
  6. Skylark
    My "gastritis" cleared up gluten-free, along with my "irritable bowel". Good luck!
  7. Skylark
    I'm pretty happy gluten-free too. It's so nice not to have all the GI trouble that I had just accepted as my lot in life. I've found gluten-free substitutes for pretty much all the refined flour foods I used to like. If we're going for nostalgia, the things I miss most really tasted of wheat. Triscuits, Frosted Mini-Wheats, and crusty French bread...
  8. Skylark
    Not a doctor, but I see a couple things. Current thinking on TSH is that some people show symptoms of hypothyroidism with TSH above 3.0 and possible even 2.5. Hypothyroidism is a common cause of high cholesterol, although I don't know that it would push it to 400. It could also be contributing to the exhaustion and brain fog. Has anyone done a hydrogen...
  9. Skylark
    An allergy blood test will still have antibodies when a person is gluten-free. A celiac test will not. They are different kinds of antibodies. Are you getting him tested for other allergies? It might help.
  10. Skylark
    That's great news! So glad to hear you've found something that works.
  11. Skylark
    Mustard seed in its natural state is gluten-free. Mustard plant is in the crucifer family, along with broccoli and cabbage. The seeds are totally unrelated to wheat, or even other grains. If you run across them, mustard greens are also safe.
  12. Skylark

    ARCHIVED Stress

    Skylark replied to K8ling's topic in Coping with Celiac Disease

    Hey k8tling - just wanted to send you well wishes. I don't know who has it harder, soldiers or their families waiting at home. Stress can worsen anything having to do with the immune system. Take care of yourself.
  13. Skylark
    ...
  14. Skylark
    What are we supposed to say? Everyone's symptoms are totally different, especially once they've been gluten-free for a while and they last for different amounts of time. I hope he's doing better today. No, they won't push bloodwork back for one glutening. It shouldn't make a difference in the antibodies four months from now.
  15. Skylark
    Somewhere deep in a thread someone mentioned the Green's gluten-free Belgian ales but I think they deserve their own thread. Open Original Shared Link They are truly gluten-free. The amber I'm drinking is made from millet, buckwheat, rice, and sorghum (plus the obligatory water, hops, and yeast). I found them in a local store and was pleasantly surprised...
  16. Skylark
    Why are you concerned about the testing? Doctors encourage it because celiac tends to be accompanied with vitamin deficiencies, thyroid problems, and other autoimmune disorders. There is no treatment other than a gluten-free diet right now but there are treatments in clinical trials and they will only work for people who actually have celiac. It's...
  17. Skylark
    You can't test for celiac in someone who is on the diet. Your doctor should have told you that. If he's been gluten-free for months and is still having issues, you need to be looking at things other than celiac.
  18. Skylark
    Genetic testing is not even remotely diagnostic. All it does is give some degree of risk. Even worse, doctors often "write off" people with so-called non celiac genes and then those people do not get proper care. Little kids are very hard to diagnose, as they don't always have the antibodies, but the first things he should get are celiac bloodwork and...
  19. Skylark
    You mention the "second test" was negative. What was the first?
  20. Skylark
    You can't diagnose this yourself! You are talking about serious neurological issues and possibly a bleeding disorder with the bruising. Your symptoms are not celiac and you have a basically negative Enterolab panel (which is rather rare). You need to do whatever it takes to get medical care. There are low income clinics in many cities, or possibly you...
  21. Skylark
    Ammo like this? Open Original Shared Link Open Original Shared Link Open Original Shared Link
  22. Skylark
    Thanks for the info about vinegar and the old gluten-free lists. I wanted to add that I have seen wheat flour occasionally in specialty gourmet mustard. It's just a case of "read the label".
  23. Skylark
    Hi, there. I'm glad to hear you're feeling better gluten-free. I suspect you're into some blood sugar issues that are causing the shifting hunger and sugar cravings. The rice and potatoes we rely on so heavily for carbs have a much stronger tendency to cause blood sugar spikes than wheat. Brown rice is better than white rice, and sweet potatoes better...
  24. Skylark
    I had that problem back when I'd get into days of chronic diarrhea. A diaper rash cream works wonders. My favorite is Balmex but Desitin is fine too. It soothes the irritation and the coating seems to prevent the BM from irritating your skin so badly. I used a panty liner to keep it off my clothes.
  25. Skylark
    Not really. Don't worry. Even if there is damage, it will heal when you go off gluten.
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