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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Well, good luck! I really hope it helps you out. It's good news that you don't have the celiac antibodies if your son has it.
  2. Skylark
    Celiac tests take a day or two. Celiac isn't as huge as something like Down's. Yes, if the problem is celiac your son should start growing again on the celiac diet. Basically, the health problems go away from the gluten-free diet. The problems for celiac kids are mostly social. Kids don't like being "different" and the diet means they can't eat the...
  3. Skylark
    Shouldn't you take a kid who is pooping black in to be looked at? I though black was a sign of blood and a possible GI bleed?
  4. Skylark
    Yes, you're negative. And it's "less than 3". Your doctor had a brain spaz. So... are you going to try the diet? Plenty of people who test negative still feel better gluten-free. The tooth issues and anemia are especially suggestive that gluten-free might help.
  5. Skylark
    Yes, your problems could be celiac. Have you been tested for celiac? Doctors recommend you keep eating gluten and get a celiac panel before you try the diet. You cannot be tested on the gluten-free diet because the markers go away. You need to know if you actually have the celiac autoimmunity as it puts you at risk for thyroid problems, osteoporosis...
  6. Skylark
    Sadly, there are no answers for your questions. There are people who have all the celiac tests negative, but still have health problems when they eat gluten. Some really do seem to have celiac symptoms; others might have neurologic problems, MS-like symptoms, chronic fatigue, or psych problems like depression and anxiety. Celiac disease does follow a progression...
  7. Skylark
    I was dairy & soy free at first. Took probably six or nine months of gluten-free until I could eat them. For me it was flat-out stomachaches and sometimes D. I still remember challenging with edamame during my elimination diet. Ow! Now it's one of my favorite foods.
  8. Skylark
    I like "Caution: Hot beverages are hot!" on coffee cups. I know about the McDonald's suit and all, but it does seem like we have abandoned common sense.
  9. Skylark
    -3 ??? Yeah. You need the fax. Antibody tests don't go negative.
  10. Skylark
    My shellfish allergy was uncomfortable but not dangerous. I would get some oral allergy itchy throat and then I would be noticeably lightheaded. It only took twice for me to pin the reaction to shellfish and then I stopped eating them on my doctor's advice. We were concerned that I would sensitize more. If your reaction was dangerous, it would be much...
  11. Skylark
    As Ravenwoodglass said, you very likely have gluten ataxia. Here's a couple articles you might find interesting about neurologic diseases related to gluten in the absence of GI involvement. I'm happy to hear you figured it out! Open Original Shared Link Open Original Shared Link Researchers like Maki think that a lot more people than just folks with...
  12. Skylark
    I agree. It depends on whether your doctor will diagnose if you need one on bloodwork/family history. If you're still in school there is some protection afforded by a celiac diagnosis. I was never tested at all. I was too busy in graduate school to want to make myself sick with a gluten challenge and I really don't regret it.
  13. Skylark
    Don't sweat the genetic tests. Nobody except perhaps someone with double DQ2.5 needs to go off gluten for life based on only HLA-DQ results. The much more convincing thing for you is that people with a first-degree relative with celiac have a 1 in 20 chance of having it themselves. Eight weeks is not long enough on the diet for anything but gut problems...
  14. Skylark

    ARCHIVED New Celiac

    Skylark replied to bincongo's topic in Coping with Celiac Disease

    Try cutting out dairy to see if it helps. Some folks are also sensitive to soy but dairy sensitivities are really common in newly diagnosed celiacs. Some people find the processed commercial gluten-free foods give them trouble. It may be traces of gluten or reactions to some of the exotic flours or the vegetable gums. Stick to simple, home-cooked foods...
  15. Skylark
    Yes. During my elimination diet, I identified cow dairy, soy, wheat, and eventually gluten as problem foods. I am more sensitive to wheat than rye or barley, probably because I have some degree of wheat allergy as well as gluten intolerance. I had also been allergic to shellfish and had not eaten them for over ten years. After a while gluten-free, maybe...
  16. Skylark
    I hope I'm allowed to post in this section. (Reuters Health) - While you might be tempted to ignore those "made in a facility that processes" (something you're allergic to) labels in the supermarket, new research suggests products with these labels are in fact more likely to be contaminated with peanuts, milk or eggs than unlabeled foods. Open Original...
  17. Skylark
    There's a couple things about deducting medical expenses. First, you have to be itemizing deductions in the first place. For a student it is unusual that you would itemize because your tax deductible expenses are generally less than the standard deduction. Second, you can only deduct the part of your medical expenses that goes above 7.5% of your adjusted...
  18. Skylark
    OK, so you have positive anti-gliadin IgA. There are other antibodies they test for, including anti-TTG and anti-endomysial which are the autoimmune antibodies. Anti-gliadin IgA is an antibody that often shows up with celiac, but some people without intestinal damage have it too. Most folks with anti-gliadin IgA are gluten-sensitive in some way or another...
  19. Skylark
    I looked at your records. You don't have the "gold standard" to diagnose celiac, which would be lymphocytic infiltration and villous atrophy on the biopsy. Sadly some doctors are just a little too behind the times to diagnose on mild visual damage and positive TTG and "likely" is the best you're going to get. It must be frustrating that your doctor didn...
  20. Skylark
    I bet it's a spell checker typo and was supposed to be lutein, glutamine, or some other nutrient.
  21. Skylark
    How strange. I've never gotten poison oak or ivy either. I'm good at identifying and avoiding them but I spent a lot of my childhood in the woods and I can't imagine I avoided them that well. My brother got occasional poison ivy rashes and we played in the same area.
  22. Skylark
    Here's some info from the University of Chicago Celiac Center. Open Original Shared Link And the celiac society. Open Original Shared Link By the way, I turned these up with a very straightforward Google search for "celiac blood tests". If you want more information you might give it a try.
  23. Skylark
    What kind of blood test? Celiacs with low total IgA show anti-gliadin IgG. I had a childhood wheat allergy and I seem to have lost my allergic desensitization to wheat since going gluten-free. I have allergic symptoms when I get glutened as well as the GI symptoms now.
  24. Skylark
    I have that fear too. On the bright side, it's still pretty easy to find lowfat/fat free products and that craze was a solid 20 years ago so stuff that is popular does linger on the market. I think we'll always have the niche brands like Glutino and Kinnikinnick and with an estimated 1 in 100 celiac rate, there will probably always be celiac-friendly restaurants...
  25. Skylark
    The soak also removes some of the raffinose (the stuff Beano breaks down). I've read that some dissolves into the soak water, and the beans also start germinating overnight and metabolize some of it. That's why the overnight long soak works better for digestibility than the quick 2 hour soak. It's important to throw out the soak water and rinse the beans...
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