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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark

    ARCHIVED Angry

    Skylark replied to Googles's topic in Coping with Celiac Disease

    Organized hazing and head games are an integral part of graduate school, and if you aren't willing to be on the short end of the stick in some power games you won't get out. You have to learn where to draw the line in the sand, and it's usually where things cross the line into discrimination.
  2. Skylark

    ARCHIVED Angry

    Skylark replied to Googles's topic in Coping with Celiac Disease

    For students, celiac falls under section 504 and Title II of the ADA legislation along with things like peanut allergies. Disabilities under Title II do not have to be explicitly named. "Learning" is defined as a major life activity, and a negative evaluation on a student's record because they are trying to follow a medically prescribed diet (gluten-free...
  3. Skylark
    The genetic test is not diagnostic. What it does is give you an idea of risk. If you have DQ2 or DQ8 and your son has the same thing, you have pretty good reason to be suspicious that his problems are celiac. The nice thing about the genetic test is that it's done from a blood sample or cheek swab and does not require you to consume any gluten. The...
  4. Skylark
    Yes, I see your point about gluten-free being a fad weight loss diet. The thing that is tragic is that articles like this discourage people from trying gluten-free. I suspect that about 30% of the US population would feel better off gluten, celiac or not.
  5. Skylark
    TTG in combination with anti-gliadin antibodies is pretty strong evidence that your neuropathy is caused by gluten. TTG can be present in rheumatoid arthritis, type 1 diabetes and inflammatory bowel diseases but you would have symptoms for any of those. For villous damage, anti-EMA is actually the strongest marker; however, since your stomach is fine you...
  6. Skylark
    I get asthma and a runny nose when I'm glutened so I'm pretty sure I have a wheat allergy too. It's not common to have both but definitely possible.
  7. Skylark
    Your own symptoms are textbook celiac. I'm a little surprised you weren't diagnosed, as a super-skinny, undersized kid with a big belly and hair falling out is what doctors are taught celiac "should" look like. Don't go back on gluten. You'll just make yourself sick. Maybe you should look at the genetic testing. It's not diagnostic but if you have...
  8. Skylark
    There is hope. I returned to eating dairy after my intestine healed and I was sensitive to all dairy, not just lactose. Casein can cross-react with the gliadin antibodies. There is also an idea of "leaky gut" where the damaged intestinal epithelium lets fragments of proteins into the bloodstream where you can react to them. It's not well substantiated...
  9. Skylark
    He's not giving you the desipramine as an antidepressant. He's giving it because desipramine is good for low-level chronic pain. My doctor put me on it for myofacial pain I had at one point and I have a relative on it for migraines. The desipramine is only treating symptoms; in other words it's basically a band-aid. It will not fix any underlying problems...
  10. Skylark
    (((hug))) Sorry, but that's all I can offer. Well, maybe one idea. Have you looked at any info on fructose malabsorption? I think bananas make my mom sick from fructose. The only other idea that comes to mind is to go back to your GI and talk to him. Maybe this is medical and not a food intolerance.
  11. Skylark

    ARCHIVED Angry

    Skylark replied to Googles's topic in Coping with Celiac Disease

    You NEED to go to your disabilities office and tell them the whole story. What they have done to you is unfair and definitely illegal. If the folks in your disability office are any good, they'll run interference for you tactfully and get your record sorted out. I got great help from the disabilities office on my campus with the bipolar. You seem upset...
  12. Skylark

    ARCHIVED Angry

    Skylark replied to Googles's topic in Coping with Celiac Disease

    Celiac disease is covered under ADA and what they have done is illegal. You have a right to be angry. You need to go to the campus disability office and fight back. You do not have to request special food at departmental functions if you think it will cause concern, but they should be able to have the "food issue" removed from your permanent record.
  13. Skylark
    If your hypothyroid was from iodine malabsorption (rare) you might be able to go off meds. Most people with gluten intolerance have autoimmune thyroid disease and sadly we are on pills for life.
  14. Skylark
    This is the same popular press that embraced the grapefruit diet, the Atkins diet, the low-fat diet, and all the other fads. Not exactly known for their accuracy.
  15. Skylark
    You have your answer, clear as day. Your body does not like gluten... at all! Stick around here and you'll see an amazing variety of symptoms of gluten intolerance and yours are not as unusual as you think. I was never formally diagnosed. I did an elimination diet and had no clue I'd turn up gluten as the problem. I'd been gluten free for a while when...
  16. Skylark
    We're thinking along the exact same lines, Nora. I was going to link those two studies and your doctor really needs to see them just before you fire him and find one with some common sense. Keeping your daughter on gluten is a terrible idea. There is no advantage to her developing intestinal damage for a "diagnosis". She is in a tremendously important...
  17. Skylark
    If your autoimmunity has some neurologic component, I imagine it could affect memory. Over the years, I've learned that you have to be really strict with this diet to get the best benefits, and neuro symptoms seem to be more sensitive than GI symptoms. I used to figure a glutening every now and again was unavoidable. I went super-strict this spring and...
  18. Skylark
    Just because it's gluten-free doesn't mean it's healthy! Gluten-free processed foods can be really expensive and not any better for you than normal cookies or sweet breads. If it's bread you're missing, look for Glutino or Udi's or pick up a gluten-free cookbook and make your own. I do buttermilk cornbread all the time, and I don't put in much sugar at...
  19. Skylark
    I didn't write that very well. I tend to have more CC trouble with heavily processed foods that have a long ingredient list with lots of additives. I agree the organic/nonorganic label has little to do with gluten, but organic processed foods do tend to have fewer additives and a less daunting ingredient list. Maybe they are made on less machinery or there...
  20. Skylark

    ARCHIVED New Celiac

    Skylark replied to bincongo's topic in Coping with Celiac Disease

    I don't know a number, some celiacs are definitely able to tolerate lactose better once they heal. Lactase is made at the tips of the intestinal villi.
  21. Skylark
    May I suggest you read some of the very detailed immunological work on celiac disease? It is autoimmune and the mechanisms are reasonably well understood. As far as celiac triggers, it appears that things that cause a lot of cytokine production tend to trigger it. Once celiac is triggered, your body learns to make the antibodies and those are lifelong...
  22. Skylark
    And even if you're eating gluten, there is an estimated 20% false negative rate on the blood tests (which your doctor apparently doesn't know). If you felt a lot better gluten-free you're clearly intolerant. It may be that you have some malabsorption causing the vitamin deficiencies as well, as we see a bunch of folks with low D and B12 around here. ...
  23. Skylark

    ARCHIVED Uti

    Skylark replied to mommyto3's topic in Coping with Celiac Disease

    Weird. I wonder if they messed up the test? It's hard to imagine a UTI with no symptoms. I also had bladder irritation that resolved somewhat going gluten-free. It still troubles me sometimes but not enough to put up with a bunch of poking and prodding to learn nothing new.
  24. Skylark
    I love that one! Glutenewbie (gluten + newbie) Newly diagnosed celiac.
  25. Skylark
    You already seem to know the answer. The tests are inconclusive because you are not eating enough gluten. High IgA is associated with autoimmune diseases like lupus, rheumatoid arthritis, liver disease, or possibly multiple myeloma (which your doctor would have picked up so don't worry). Your chronic fatigue may have some autoimmune component to it....
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