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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    La Choy was also gluten-free last time I checked. I like the San-J tamari much better though.
  2. Skylark
    I use that one too. Tastes great and I checked recently and they were gluten-free.
  3. Skylark
    I joined this board to ask exactly that same question. I have become quite a bit more sensitive on the diet. I used to be able to eat french fries and not worry about the fryer or go to places like Taco Bell and not worry about CC. Suddenly I started reacting to very small amounts of gluten and now I have to be very strict. 20 ppm foods occasionally get...
  4. Skylark
    It is unusual to be sensitive enough to react to distilled spirits. I just mention it so you're aware there is a slight chance. Yes, a potato vodka would be gluten-free without question. I drink single malt scotch all the time and don't react. I tried some Redbreast recently and my stomach got oddly upset.
  5. Skylark
    I've gotten glutened by supposedly plain 100% beef burgers and more than once by supposedly plain salmon. I have no other food sensitivities and beef and salmon that I prepare myself at home are fine. Butter and oils are not an issue. I cook with butter and olive oil all the time. I am quite certain the issue is CC from griddles and grills, as when...
  6. Skylark
    Has anyone tried this? Does it make good bread???
  7. Skylark
    You live with your body; your doctor does not. It's great that you don't have celiac antibodies or damage because you can absorb your food. You are gluten intolerant, which pretty much requires the same diet as celiac. Doctors aren't very smart about gluten intolerance, but gluten can definitely make you anxious, tired, and sore. I haven't eaten a...
  8. Skylark
    The issue is how sensitive you are. Restaurant kitchens are not gluten-free and people are moving fast. Your plain veggies could be cut on a board where someone was slicing bread a moment before and your plain meat could be put on a grill that had bread or gluten-containing sauce. I order salads with no croutons and oil and vinegar all the time and I...
  9. Skylark
    Oh, wow. Corn is almost harder to avoid than gluten. You must cook a lot! In this state you can get brown rice on the WIC package instead of bread or tortillas. Is that an option where you live?
  10. Skylark
    Summarizing links was Jestgar's excellent advice. Glad it helps and you found the info useful.
  11. Skylark
    The TTG IgA could be caused by the "weirdness" in your intestines. TTG can come up with other inflammatory problems as well as celiac. You've had the testing done, so there is certainly no harm in trying the diet.
  12. Skylark
    First, make sure there isn't a celiac clinic in your area. Some offer free screening and you can't be tested once you're on the diet. You do sound like your problems could be gluten. As far as diet, start right on celiac.com, the main site for this forum. You can have NOTHING from wheat, rye, or barley on this diet. Oats are out as well unless...
  13. Skylark
    Don't worry. It heals. I didn't figure out I was gluten intolerant/celiac until my late 30s. We just have to catch up on calcium with lots of weight-bearing exercise, supplements, and calcium-rich foods.
  14. Skylark
    It sounds like the restaurants you're visiting are not taking enough care to prevent cross-contamination. If you're super-sensitive I don't know that you'll even find a salad made in a gluten-covered restaurant kitchen consistently safe because of CC on the cutting boards. I personally don't have trouble with restaurant salads served with oil and vinegar...
  15. Skylark
    With the fructose malapsorption, did you cut out fructans as well as fructose? My mom has that and she cannot eat things like onions, asparagus, brown rice, or whole wheat. Onions are particularly hard for her to digest. She would not be well if she cut out only fructose and left the fructans in her diet.
  16. Skylark
    There is a lot of info about HLA-DQ in that wikipedia article. There are two halves to the molecule, alpha and beta. The first number comes from the beta half and that's all many labs test. So if you only knew you had 0602, you would be DQ6. The thing that's different is not you, but your tests. You had alpha chain tests as well as beta so we can narrow...
  17. Skylark
    First of all, the papers I linked are part of the peer reviewed literature and written by one of the world's best celiac researchers. Your doctors should take them into consideration. If you have access to a medical library (perhaps at a local university) it would be good to bring them the full articles. Also, remember that you can seek a second opinion...
  18. Skylark
    With the gluten and dairy, some celiacs' anti-gliadin antibodies recognize casein. This doesn't happen in all celiacs, so there are some negative studies around as well. Open Original Shared Link Open Original Shared Link There was also an interesting study on biopsied mucosa where damaged mucosa could not break down casein. Bigger fragments of food...
  19. Skylark
    Just pick them over and rinse them well. They will be fine. I have found an occasional grain of some sort in split peas and lentils. Why can't you get tortillas? I don't know if WIC gives you Mission brand, but their corn tortillas are made on a dedicated line.
  20. Skylark
    If only my doc had told me to give up wheat instead of coffee for my gastritis...
  21. Skylark
    Going by Open Original Shared Link, you're DQ6.2 and some sort of DQ9. That A*0210 allele isn't very common and it's not even on the Wikipdeia chart. So yes, you are "genetically gluten sensitive" by Fine's accounting, along with over 99% of the US population. In seriousness, I think Ravenwoodglass is double-DQ9 and she's biopsy diagnosed. Your...
  22. Skylark
    What a tale. The surgery sounds beyond awful but I'm so glad to hear they found the cause of that stabbing pain. I hope it's gone for good after the ordeal you went through to be rid of it!
  23. Skylark
    Runny nose and congestion is usually caused by a true allergy rather than celiac. It is possible to have wheat allergy along with the celiac disease. I seem to have my childhood wheat allergy back these days, probably from losing my natural desensitization on the gluten-free diet. Last time I got into a little gluten, I woke up in the morning sniffling...
  24. Skylark
    Damn doctors. She is celiac and you're getting spectacularly bad medical advice. "Slight cell damage" is not a normal biopsy in someone with anti-EMA. Please read these studies on anti-EMA and take them to your doctor. Basically people with anti-EMA almost always go on to develop worse damage. One of these studies was even in kids. Open Original...
  25. Skylark
    If you're celiac, all the antibodies go away on the gluten-free diet. So yes, you'll get a false negative.
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