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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I took a look at it for you. Of the ten people, four went into remission with the gluten-free diet, two are still seeking help from a dietician and doctors, two wouldn't stay gluten-free and still struggle with the eating disorder. The final two were lost to follow-up, although one improved short-term. Two of the people with anorexia sometimes consumed...
  2. Skylark
    OMG. So I get to the restaurant and the waiter says "Sorry, but we only do the gluten-free injera on Wednesday and Friday but the rest of the food is always gluten-free." Squeeeee!!!! I just had bad luck on the phone and got someone who didn't speak English well. So... I had great Ethiopian food with my Udi's I'd put in my purse AND all I have to do...
  3. Skylark
    Thanks, Lucia. I've been doing a little reading and I'm seeing the same thing you're saying. Besides the injera it looks like I can eat the food. I think I'll bring some Udi's and ask for my food on separate dishes. I don't usually have issues in Indian restaurants, where they cook pretty much gluten-free except for the bread.
  4. Skylark
    In her case it's very much like diabetic neuropathy, but she is not diabetic. As far as I know, her symptoms are sensory. She gets tingling, pins and needles, numb patches, and sometimes outright pain in her feet. As far as I know there is no wasting but she is completely unable to wear tight shoes like pumps because they hurt her too much. She also suffers...
  5. Skylark
    How did you get no actual diagnosis? Deamidated gliadin antibodies are pretty specific for celiac. For starters, it may just take longer than two months. It sounds like you have been sick for a while, which means there is a lot of damage. As Sarah mentioned, a lot of celiacs do better off dairy. Some are lactose intolerant, while others are sensitive...
  6. Skylark
    If you suspect that you are truly celiac and not gluten intolerant, you cannot do the diet at 90%. You risk other autoimmune health problems and continued malabsorption. You will also probably find that over time as your immune system settles down from not being under constant gluten assault, you will react more strongly to gluten. 90% is not an option...
  7. Skylark
    Oh, yum! So are you expanding into mail order? :)
  8. Skylark
    Having both anti-TTG and anti-endomysial means you're definitely celiac. Anti-endomysial antibodies are very specific to celiac disease and some doctors say that a biopsy isn't even necessary if you have them. Biopsies can come up false negative. Think of it as looking at a postage-stamp sized area of a tennis court. It's really easy to miss damage if...
  9. Skylark
    Your doctor is also right that with a celiac mom you should stick to gluten-free if you are benefiting from it.
  10. Skylark
    Had the funniest phone call just now. A good friend invited me to her birthday dinner tonight at an Ethiopian restaurant. I called the restaurant and when someone with an accent answered I said I had a "wheat, rye, and barley" allergy. (I wasn't even going to try the word "celiac".) I asked if I could eat their injira or any of the meats or vegetables...
  11. Skylark
    I've been on a few dates since I stopped eating gluten and it just wasn't a big deal. The guys I have gone out with let me pick the restaurant and order as I need. Everyone in their 40s and 50s seems to be watching their diets for some reason or another, whether it's counting calories, watching sodium, or trying to eat for cardiovascular health. As far...
  12. Skylark
    You cannot concern yourself with other people's thoughts. It's hard enough to corral ones own!
  13. Skylark
    I have yet to run across a piece of bulletproof science. Unfortunately it would take me a couple weeks of hard work to come up with all the counterarguments and I really am not interested enough to go to that much time and work. The easiest and most obvious place to start shooting is this fellow's lack of peer-reviewed research substantiating his hypotheses...
  14. Skylark
    Sushi rice is prepared with rice wine vinegar, sugar, and salt. None of those are an issue for people with celiac.
  15. Skylark
    I got some dduk at a local Korean market and it had an odd fishy flavor. The only ingredients were water and rice flour. Has anyone else run across this? I do buy bean thread there and they have an entire aisle of different rices. The veggies there are cheap and good too. I love baby bok choi.
  16. Skylark
    That wikipedia article helped. Did you look at references 29 and 30? Apparently wine and port can be "fined" with gluten or gluten derivatives and it's sometimes done as an alternative to using animal protein. Protein precipitates some of the tanning and lessens astringency. Gluten treated wine been tested and no residual gluten remains, but that's the...
  17. Skylark
    There are studies showing lower levels of micronutrients in foods. Soils aren't what they used to be after decades of farming chemicals. But... why do some people become bipolar and not others? If it were purely diet we'd all be bipolar and the indicence would be rising as with obesity and cardiovascular problems. Bipolar would also be less frequent...
  18. Skylark
    I never buy from bulk bins. Even without shared scoops, I am concerned about what was in the bin in the past. I've never seen a bulk section that didn't have a lot of wheat, pasta, barley, and other gluten grains. I have to admit, if someone handed me a random bag of red lentils, I would pick them over, rinse them well, and then not worry about gluten so...
  19. Skylark
    Yes! It's very scary to hear a dietitian recommending this. You need to find a better dietitian.
  20. Skylark
    Funny! Got another. Foodiot (food+idiot) Person who has no idea what is in their food. Believes flour grows on flour trees in 5 lb bags. Fadliac (fad+celiac) Person eating gluten-free because it's trendy and cool. Fadliacs don't actually have any gluten-related health problems and can't figure out why you're so careful.
  21. Skylark
    What is the gluten in port wine? Good thing I stopped drinking it a few years back.
  22. Skylark
    Funny, I was just talking to a friend about this. I personally prefer to buy from a supplier like Bob's Red Mill who actively tests for gluten in all their products. I know it costs a lot more but I think it's worth it to keep gluten out of my diet as carefully as possible. Asian food is particularly scary to me after all the issues in the food supply...
  23. Skylark
    Hi there. You'll do fine on the diet. You can't worry about things like how you might react to gluten down the road. You said your blood test was very high positive, so you really need to stay gluten free. Some people with silent celiac never develop trouble from eating gluten. With luck, you'll be one of those folks.
  24. Skylark
    Hello there. Blood markers in celiac disease are notorious for being falsely negative. The single largest risk factor for celiac is a first-degree relative with it. It only takes one of the genetic markers to increase your risk for celiac, and you say you responded well to the gluten-free diet. I don't think the second EGD two weeks after going gluten...
  25. Skylark
    My easy meal is frozen chicken breasts tossed into a frying pan with olive oil and seasoned with sea salt and Herbes de Provence. They take a while to cook, since I cover them and cook slowly until they're thawed, but it's super-easy.
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