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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Skylark
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ARCHIVED Elimination Diet - Making Me Sick?!?
Skylark replied to lucia's topic in Food Intolerance & Leaky Gut
ELISA can help guide an elimination diet, that is you don't want to start with foods you react to by ELISA. A reaction on ELISA is not a guarantee of allergy or sensitivity, particularly with IgG. I also had the same understanding that intolerance can really only be found reliably by elimination. You absolutely eliminate the big 8 as they account for... -
ARCHIVED Gave My Son Barley: Bad Poop Reaction
Skylark replied to brendab's topic in Parents, Friends and Loved Ones of Celiacs
Most folks around here have had doctors say 4-6 weeks for blood tests, and at least 2 months for biopsy. And yes, finding a good doctor is probably the hardest part of the whole thing. -
ARCHIVED Sugar Intolerence Or Gluten Allergy?
Skylark replied to myreggie33's topic in Related Issues & Disorders
Also get a hydrogen breath test for fructose malabsorption. Wheat contains fructans and is a problem food for people with fructose malabsorption. -
ARCHIVED No Way To Turn Entire Home gluten-free
Skylark replied to Aphreal's topic in Parents, Friends and Loved Ones of Celiacs
The gluten-free stuff is really expensive. I totally know what you're talking about because I figured out I was celiac in grad school. I never got that into buying gluten-free baking mixes and flour and whatnot. Corn tortillas are really cheap around here, and I get big bags of cheap rice at Indian or oriental grocery stores depending on what kind I want... -
ARCHIVED Wine Gluten Free?
Skylark replied to ToriMartin's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Truth. I just wanted folks to know that if they think they reacted to red wine or port, they're not losing their minds. -
Our local celiac support group talked to BJ's and they are using a dedicated station and separate pizza boards in the oven for the gluten-free pizza. I've had it twice. It's really, really good and I didn't react at all. I think that manager was just dumb.
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There are two things you can react to in dairy, lactose and the milk proteins. Lactose intolerance gives you the D because undigested lactose passes through your intestine carrying lots of water with it. If you have bacteria that digest the lactose you'll also get bloated and gassy. The protein reaction is allergy or intolerance, and allergies can cause...
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ARCHIVED Wine Gluten Free?
Skylark replied to ToriMartin's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Celiac Foundation and other groups also list distilled vinegars and spirits as gluten-free, yet some people here react to them. I have gluten reactions to one particular brand of Irish whiskey myself, while other brands are fine. If you search red wine here, you'll find sporadic reports of reactions and some people here are very good at distinguishing their... -
ARCHIVED Ttg Test Results Negative...
Skylark replied to Marz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, it can. Diagnostic labs usually use automated equipment so technician skill doesn't affect things much, although it can in assays like anti-EMA that are run and read by hand. Variability tends to have more to do with equipment age and brand, batches of assay reagents (this can be a really big factor), blood sample handling, and the details of how that... -
Usually foods where you can read all the ingredients are fine. If it says it's been processed on equipment that also processes wheat, pay attention when you eat that food. If it gives you any trouble it was probably cross-contamination and you might want a different brand.
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ARCHIVED You Guys Would Know... Do You Think I Have A Gluten Allergy?
Skylark replied to myreggie33's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi there. Yes, your trouble could be gluten especially with the bloating, feeling hungry, and constipation. If you're willing to try the diet, I'd recommend cutting out both gluten and dairy for a couple months. Start strict, remembering you can always challenge and see if you tolerate a little dairy later on. A lot of us find B vitamins helpful too, particularly... -
ARCHIVED Gave My Son Barley: Bad Poop Reaction
Skylark replied to brendab's topic in Parents, Friends and Loved Ones of Celiacs
You probably need to talk to a GI doc. There are lifelong consequences to celiac disease and it might be better to find out for sure. A doctor who is knowledgeable about celiac could advise you about gluten challenge with rye and barley and do the celiac testing. Obviously the tests have limitations, especially in little kids, but my understanding is that... -
ARCHIVED Sweating One Minute, And Freezing The Next....
Skylark replied to missceliac2010's topic in Coping with Celiac Disease
It's summertime and warm to start with. I wonder if your shower is too warm and you are just overheating yourself a little. Have you tried a cooler shower? -
ARCHIVED Sorting Through Inconsistencies
Skylark replied to beachlvr's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi there. I can help with a few. 1. Corn tortillas - Mission brand is made on dedicated lines. 2. I have never reacted to corn chips but some super-sensitive folks have because of cross-contamination. I did react to potato chips once. Many flavored chips do have gluten. Lay's Stax are made on dedicated lines and are gluten-free. 3. BBQ sauce - read... -
I have been eating at In-N-Out for years. I've never had a reaction. So much fun to get fast food!
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ARCHIVED Gave My Son Barley: Bad Poop Reaction
Skylark replied to brendab's topic in Parents, Friends and Loved Ones of Celiacs
Hi there. Have you had him tested for celiac? -
ARCHIVED Pls Post Your Enterolab Numbers And Your "actual" Results
Skylark replied to Gardening's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was not impressed by the "Overall Health" or "Improved Health" slides either. I'm not sure they would be statistically significant. It looks as if gluten-free is generally helpful for GI issues. Some publications on celiac have noted this, and suggested it might be due to changes in microflora. Good questions, and definitely not answered by the material... -
ARCHIVED Anyone Try Naet? (I.e. Allergy Elimination)
Skylark replied to jasonD2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Why wouldn't you just do a standard elimination diet or do some more ELISA testing with an allergist to see what might have changed? NAET is going to help you. Pretty much all of the kinesiology approaches to allergy have been debunked as hoaxes. Here is Stephen Barrett's article on NAET. Open Original Shared Link -
ARCHIVED Question About Supplements
Skylark replied to adab8ca's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If there is villous atrophy you will not absorb supplements well. -
ARCHIVED Pls Post Your Enterolab Numbers And Your "actual" Results
Skylark replied to Gardening's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The information you're looking for is in the "slide lecture" at Open Original Shared Link It only works right in Internet Explorer. E-lab is not diagnostic for celiac, with 29% of his normal volunteers showing anti-gliadin IgA. This is consistent with other publications and is the main reason I keep cautioning people about Enterolab. He did get antibodies... -
ARCHIVED Kind Of Worried About My Son
Skylark replied to mommyto3's topic in Coping with Celiac Disease
My super-picky nephew got most of his protein from peanut butter for a couple years. If your son can eat peanuts, try giving him a sandwich on Udi's bread. Chicken nuggets are another favorite food and I'm sure I've seen them gluten-free at some health food stores. We were really concerned about his pickiness and limited diet but the pediatrician says... -
ARCHIVED Ttg Test Results Negative...
Skylark replied to Marz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, it's noise. There are lots of sources of noise in clinical assays, including proteins and enzymes in plasma, traces of hemolyzed blood, or slight antibody cross-reactivity. The reference ranges are set to be above the normal amount of noise in the assay. In an assay like this, your reading of 1.4 means the result is completely indistinguishable from... -
ARCHIVED Not Sure What To Think
Skylark replied to Pink Lady's topic in Parents, Friends and Loved Ones of Celiacs
Hi there. It's hard to find antibodies in little kids so a positive test probably means he's celiac. The GI doctor will probably want to do an endoscopy to check for villous damage in the lining of his small intestine. As Beth said, don't take him off gluten until all the testing is done. If he's celiac all the antibodies and damage they look for will... -
ARCHIVED Help With These Symptoms! Tmi
Skylark replied to precious831's topic in Coping with Celiac Disease
I guess it's not food poisoning. Wow, that's a strong food intolerance. So sorry it's still lingering. -
ARCHIVED Help With These Symptoms! Tmi
Skylark replied to precious831's topic in Coping with Celiac Disease
Raw meaning unpasteurized? You probably food poisoned yourself. Bloody diarrhea is a medical emergency and I'm glad you are OK. Did you tell your doctor the symptoms were associated with eating raw dairy and that you suspect food poisoning? Campylobacter and E. coli O157:H7 can both cause bloody diarrhea and are found in raw milk. Campylobacter illness...