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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Skylark
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ARCHIVED "But You Can Eat Whole Wheat, Right?"
Skylark replied to earthtoneNJ's topic in Coping with Celiac Disease
When I have friends over for dinner, they generally don't notice the food is gluten-free. I made Costco pulled pork with a gluten-free barbecue sauce and served it with rice for the party. Someone commented on how different and good it was with rice instead of bread. -
ARCHIVED 2Nd Opinion Of My Tests
Skylark replied to Smarts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
OMG they stuck you on Seroquel too? You poor thing. I had to take it once when I went 10 days without sleep from a manic epsode. It knocked me out so hard I slept for almost 48 hours straight. Awful stuff but it saved me from being hospitalized (or dead). Talk about brain fog - I was afraid to drive. Look, if you're dying for paper go to Enterolab... -
ARCHIVED 2Nd Opinion Of My Tests
Skylark replied to Smarts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You do NOT have to be positive on any of the genetic tests to have celiac. They only assess risk. Your doctor who says you are at elevated risk for celiac with one copy of DQB1 *02 Positive is absolutely correct. Having DQA1 *05 Negative puts you at somewhat less risk, but YOU HAVE VILLOUS ATROPHY!!! -
ARCHIVED Celiac And Dairy Problems?
Skylark replied to srfjeld's topic in Related Issues & Disorders
Udi's makes pizza crust???? Yum! I haven't heard of people getting CC'd from Udi's. Guess it's the cheese. I was intolerant to cow casein for a while after starting gluten-free. Happily, I could eat some goat dairy. -
ARCHIVED Celiac And Dairy Problems?
Skylark replied to srfjeld's topic in Related Issues & Disorders
It could be dairy but what kind of pizza? Amy's is often CC. -
I feel for you. I had to go onto a strong antibiotic for bronchitis and it has the yeasty beasties romping about my body again. Still trying to decide if the first round of Monistat did the trick and working on getting my gut working properly again. Some herbal suggestions. Tea tree oil powder is good for nethers. Corn starch is the usual powder base...
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ARCHIVED All Meat Bologna?
Skylark replied to RachelisFacebook's topic in Gluten-Free Foods, Products, Shopping & Medications
Processed food is always "better safe than sorry". -
ARCHIVED Avocado & Floating Stools
Skylark replied to jasonD2's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If it makes you sick, don't eat it. Avocados are fairly allergenic so you might have a mild allergy to them. -
ARCHIVED "But You Can Eat Whole Wheat, Right?"
Skylark replied to earthtoneNJ's topic in Coping with Celiac Disease
I have one of those friends who picks and chooses as far as gluten-free. She knows she gets sick if she eats a lot of wheat but apparently she's not sensitive enough that she can't have a cookie here or there. She's celiac negative and probably just a little allergic. To her credit, she did bring a wonderful gluten-free pasta salad to my pot luck along... -
ARCHIVED Gluten Withdrawal! Wow... Worse Than Being On Gluten!
Skylark replied to KimKF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think this is withdrawal. I think the poor thing is just still really sick from that gluten challenge. I assume she had a full medical workup and found nothing definitive. If anything the gluten-free has probably calmed the diarrhea. Five days gluten-free is not necessarily long enough for someone as severly sick as your daughter sounds to get... -
ARCHIVED Tasty gluten-free Snack Foods
Skylark replied to RachelisFacebook's topic in Coping with Celiac Disease
There is a REASON I hardly ever buy cookies, gluten-free or otherwise. I claim no responsibility for the rapid disappearance of an entire package of chocolate coconut macaroons. It was um... the pantry hedgehog. Yes, the hedgehog that lives in my cabinets. That's my story and I'm sticking to it. -
ARCHIVED Other Possible Allergies?
Skylark replied to curiousgirl's topic in Coping with Celiac Disease
Oral allergy syndrome can come and go. I used to react to melons (ragweed cross-reaction) but now that I live in a part of the country where ragweed doesn't grow, I eat them comfortably. -
ARCHIVED "But You Can Eat Whole Wheat, Right?"
Skylark replied to earthtoneNJ's topic in Coping with Celiac Disease
There's no point in getting sarcastic. Yes, they really are that ignorant. My second cousin farms, and he got some new city-slicker neighbors down the road. They were him asking about vegetables because they couldn't figure out why their potato plants didn't have any fruit. They had no idea they had to dig them up! -
ARCHIVED Other Possible Allergies?
Skylark replied to curiousgirl's topic in Coping with Celiac Disease
I got pretty sick on a day I ate Ener-G crackers too. They were the only processed food I ate that day or the day before. I'm not soy sensitive and there is nothing listed in the ingredients of those crackers that would suggest a problem for me. I wonder how carefully Ener-G is testing their raw ingredients for gluten? -
ARCHIVED Results Question
Skylark replied to caligirl2001's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My family was the same as Ravenwoodglass. Mom saw how much healthier I was and started noticing that her stomach hurt after eating a lot of wheat. She had tests and is DQ2 but not celiac, but she sure feels better gluten-free. -
ARCHIVED "But You Can Eat Whole Wheat, Right?"
Skylark replied to earthtoneNJ's topic in Coping with Celiac Disease
Waitress: "You can't have the bread but you can have the penne pasta." Me: "Really? What is the pasta made of?" Waitress: "Flour." Me: "And what is the flour made of?" Waitress: "... oh. I guess you can't have that." -
ARCHIVED Duaghter Semi-Diagnosed With Gi And/or Celiac
Skylark replied to KimKF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Poor thing. This isn't withdrawal yet. She's just still sick from all that gluten. Sipping half-Gatorade, half-water is what I've had doctors recommend for dehydration. My understanding is straight Gatorade is a little too strong. (Yes, Gatorade is gluten-free.) Rice is fine. The jello is fine, as are the gluten-free pretzels. I like the Glutino... -
ARCHIVED New Celiac And Need Some Input On Diet/vitamins
Skylark replied to jeremytodd's topic in Introduce Yourself / Share Stuff
Welcome, and I hope you figured out the source of your health problems. For starters, most celiacs find that they are sensitive to dairy so skip the cheese and yogurt for now. Once you are healed and sure you tolerate it, cheese is great on a gluten-free diet. I tend to shop the "outside" of the grocery store. Pretty much all produce is gluten-free... -
ARCHIVED Weight Gain Ideas, Please
Skylark replied to ryebaby0's topic in Parents, Friends and Loved Ones of Celiacs
Is this a medical recommendation to gain weight from is Dr. or is he just trying not to be the skinniest guy at the beach? If he has normal energy, seems to be absorbing his food, and is getting good nutrition (no deficiencies on blood work), you might be worrying too much. I'm pretty sure Frieze is right that what he would really need to bulk up is protein... -
ARCHIVED Want To Cry-So Frustrated!
Skylark replied to lvpriest's topic in Coping with Celiac Disease
I actually don't think all gluten intolerance is the same. There are documented effects of gluten peptides on innate immunity, as well as celiac humoral immunity, and documented effects of wheat germ agglutinuin on some sensitive people. Basically, gluten is somewhat indigestible and causes all sorts of problems. Wheat is also rich in fructans, which makes... -
ARCHIVED Tasty gluten-free Snack Foods
Skylark replied to RachelisFacebook's topic in Coping with Celiac Disease
You're always hungry because your body has suddenly figured out it can get nutrition! Go onto a good multivitamin supplement, and snack on lots of nutrient-dense foods like berries and nuts. I don't really have much more self-control with gluten-free cookies than normal ones. I love Udi's blueberry muffins, the Glutino dream cookies that taste like... -
ARCHIVED Diagnosed A Few Months Ago
Skylark replied to MelissaBe123's topic in Introduce Yourself / Share Stuff
The more you cook fresh, whole, gluten-free foods for yourself the better. I don't have to read the labels at all when I make my own soup. You eat healthier, more nutritious food, and there is less chance of gluten sneaking in. Minimize eating out, and stick to places you know are gluten-free. If your life has turned around, it sounds like you're... -
ARCHIVED Dr Wants More Mammogram Films
Skylark replied to Skylark's topic in Introduce Yourself / Share Stuff
Thanks, Janet I got another call from the center confirming my appointment and they actually said something about dense tissue. I guess they just couldn't see everything. You gals have been so helpful. I'm not worried any more, which is a great change from this morning. It's so nice to have a community of kind, supportive people to turn to! -
I don't know. I have never run across soy paper! Maybe someone else can tell you. You might ask if there's an English ingredient label they can show you the first time you eat it. If it doesn't make you sick and you're sensitive, that's always a good sign. Often if you say you have a "wheat allergy" and need to see a label or check something...
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The trick with sushi is to stick to plain raw fish and sushi rice and bring your own soy sauce. Then you're eating naturally gluten-free food. The best thing to order is nigiri or sashimi and rice. Edamame, pickled veggies and ginger, and things like cream cheese or cucumber are OK too. I've also never had a problem with nori (seaweed) on things like...