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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    None of the tests mentioned in this thread are diagnostic. AL CAT claims to test allergies and would not be measuring celiac antibodies. Whether they are actually measuring anything meaningful is a subject of debate. Enterolab is not diagnostic either. It's interesting information, but that's about it. Like AL CAT, there is no published work on it...
  2. Skylark
    Your question is not basic at all. I suspect you're right about your medication interfering with celiac testing but I've never read anything either way. You need to seek expert help here, as I don't know whether or not the IgG celiac tests would work in your case - you're not naturally low IgA and I don't know that your immune system would compensate in...
  3. Skylark
    For starters, no you are not guaranteed cancer. Celiac related cancer is very rare and I am not aware of any cancer risk associated with infections or allergies. Risk is only elevated in celiacs who continue to consume gluten. That said, I am concerned about your state of mind. You sound very stressed out and very worried. Is there a possibility that...
  4. Skylark
    When "mustard" is listed on an ingredient list in something like mayo, they mean ground mustard seed. It's a spice, with no gluten. If you buy a bottle of yellow mustard or honey mustard for sandwiches or hot dogs, you do need to check all the rest of the ingredients because sometimes they do have gluten (usually flour for texture).
  5. Skylark
    Yes, I do know what you mean. When eating gluten makes you feel awful for days on end, it really doesn't matter one way or the other whether you're celiac. It's pathetic that we have to use the word "allergy" to get taken seriously half the time. And yes, people who get symptoms from gluten and show up negative on the not-so-great tests are a concern...
  6. Skylark
    I'm calling my depression and insomnia from gluten neuro. This poll is getting really interesting...
  7. Skylark
    Good luck finding a good pediatric GI. I will have my fingers crossed.
  8. Skylark
    Biocard is an anti-TTG IgA test. There are other tests doctors use along with anti-TTG. I don't know about the sensitivity of Biocard, but if you come up positive, it's pretty suggestive of celiac. There are other autoimmune conditions that can cause anti-TTG so your doctor will go to work sorting things out.
  9. Skylark
    Referring to your other post, Biocard is diagnostic. Enterolab is not.
  10. Skylark
    The water helps because caffeine is somewhat diuretic, and the headache from an overdose can be from mild dehydration. As far as I know, there is nothing to counteract the effects of caffeine once you've absorbed it. I hope you feel better soon. And by the way, me and my coffee pot can confirm that not all celiacs are caffeine intolerant.
  11. Skylark

    ARCHIVED Grief

    Skylark replied to Googles's topic in Coping with Celiac Disease

    I'm five years gluten-free. My gluten reactions are pretty unpleasant and at this point gluten-containing things are not tempting in any way, shape, or form. I don't mind the smell of gluten things (in fact I rather enjoy the smell of Cinnabon in the mall) but there is no more temptation than there would be to eat those black, shiny, tasty-looking deadly...
  12. Skylark
    If it was total IgA, it's just a test for whether your immune system makes normal amounts of IgA. Low total IgA would be a risk factor, but plenty of celiacs have normal total IgA. If it was some other test like anti-gliadin IgA it could just be a false negative.
  13. Skylark
    Wow, what a scary story! I sure am grateful I never got that sick from celiac. I did a quick look on Pubmed, and yes pancreatitis can be associated with celiac disease. If it is related to the celiac disease, it usually resolves on a gluten-free diet though. Open Original Shared Link We have some folks around here who can't even tolerate the traces...
  14. Skylark
    1) Sometimes lab tests are just done wrong. That's why doctors always repeat tests that are high if a person is asymptomatic. 2) Enterolab has not provided any information on the accuracy of their tests, so you should assume they are comparably accurate to any other clinical diagnostic lab like DT. Since you have a nice series of salivary IgA tests,...
  15. Skylark
    I pick the fish. Sometimes if fish isn't handled really well it can make you a little sick. Fish histamine poisoning isn't usually associated with salmon, but there are reports of it. It tends to produce more "allergic" symptoms like your sinus inflammation.
  16. Skylark
    Around here we don't trust doctors or clinical tests as far as we can throw 'em. The whole medical system has failed many of us miserably. So many of us are self-diagnosed we're just in that self-diagnosis mindset. Yes, the clinical lactose intolerance test works fine for celiacs.
  17. Skylark
    Could be a celiac thing. Could also be lactose intolerance with the smell. Try dropping dairy and see if it helps, as many folks who are recovering from celiac don't tolerate dairy well at first.
  18. Skylark

    ARCHIVED Grief

    Skylark replied to Googles's topic in Coping with Celiac Disease

    I feel so bad for you. I went through all this with childhood food allergies. If you think it's hard as an adult, imagine having to bring a rice flour cupcake to birthday parties because you can't have the wheat cake or dairy ice cream. My parents got me some counseling, and a really sweet child psychologist helped me a lot. He taught me to focus...
  19. Skylark
    Woooohooooo!!!! This doctor is really, really good. (Not that the other is bad, just young.) He says in most of his patients T3 doesn't make a difference. Actually a bunch of his patients did not notice a difference switching to levoxyl during the Armour shortage. BUT... I'm to go to the lab for T4 and free T3 baselines and then start on cytomel. I...
  20. Skylark
    In Europe, you have to have positive lab results or biopsy to get the reimbursement for gluten-free food. If your blood tests are negative, that's your only other option. And by the way, a week sick and not eating much would not change the results. It takes longer on a true gluten-free diet for the antibodies to go away. The biopsy is not dangerous at...
  21. Skylark
    I'm glad to hear you're feeling better!
  22. Skylark
    I don't agree with this at all. There is a reasonable amount of scientific work showing non-celiac effects of gliadin on the intestinal mucosa and immune system. From that work, and some clearly demonstrated transient gluten reactions in people with Crohn's, colitis, and SIBO flareups, my hypothesis is that gliadin is more of an intestinal irritant than...
  23. Skylark
    Hi there. You're doing a great thing for your daughter. I did the same kind of diet to figure out my own gluten intolerance. You need to think in terms of groups of foods. Tomato and potato are nightshades. If she reacts to one, she's reasonably likely to react to the other, along with eggplants and peppers. Cruciferous veggies (broccoli, cauliflower...
  24. Skylark
    I'm so glad you're feeling better! Hungry is much better than sick. I wonder if you're not getting enough calories, especially since you will be healing if things are settling down. People don't use protein very well for fuel so we need either complex carbs or fats. If you took all the complex carbs out, you have to put some fats in! I don't know much...
  25. Skylark
    Time to teach him to appreciate fine wine and good scotch.
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