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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I've never done risotto without the stirring on the stovetop. This is the first I knew you could cook it and get the right texture in the oven. How do you live without a rice cooker? I got one within two weeks of figuring out I couldn't eat wheat any more.
  2. Skylark
    Supposedly it takes 4-6 weeks of a full gluten diet, meaning the equivalent of four slices of bread a day to have a shot at testing positive. You could talk to your doctor, get tested now, and then ramp up to full gluten for another month if the tests are negative to be sure. (But be careful. You can make yourself really sick challenging like that.) ...
  3. Skylark
    Has your doctor done total IgA? The anti-gliadin IgG is only vaild in people who are IgA deficient. In people with normal levels of IgG, anti-gliadin IgG is usually indicative of intolerance or allergy, not celiac. You should have that done before you torture yourself for no reason. I never challenged, but there is no particular advantage for adults...
  4. Skylark
    Your doctor does not have your childhood medical records and there is no sense in confusing the issue. Unless you really want the DH biopsied (and I don't see why you'd want to go through that) tell him it was a firm diagnosis. You can explain that there is a lot of damage and severe osteoporosis because the unfortunate standard of care back then was to...
  5. Skylark
    Depends on your definition of "gluten". Corn has a prolamine (gluten-like) protein called zein that celiacs don't react to. Like other prolamines, it can be difficult to digest.
  6. Skylark
    That looks great. Thanks for the translation into our irrational American measures, Karen! Do you think it would work in a rice cooker too?
  7. Skylark
    Connie, that's wonderful news. The only sad thing about it is that we'll miss your hillbilly humor around here. Glad you're feeling better and rid of those awful symptoms, and kudos to your doc who figured it out.
  8. Skylark
    Thank you very much for the high dose references. I feel a little better about your 3-5 mg/day recommendation doing harm. As you have seen, I get nervous about synthetic vitamin megadoses as I really don't think we know all we should about subtle population effects. The recent meta-analysis of calcium supplements (without vit. D) that shows increased...
  9. Skylark
    If you were diagnosed as a child with celiac and have DH, you need no further diagnosis. Celiac disease is lifelong, and your childhood diagnosis is still valid. In fact, it means you have severe celiac as the disease is hard to catch in children and 60 years ago they were only diagnosing people who were very ill. You could do serious neurological damage...
  10. Skylark

    ARCHIVED Upset

    Skylark replied to KikiUSA's topic in Coping with Celiac Disease

    What is a Stone Soup potluck? I know the story of stone soup but soup takes a while to cook. My friends do potluck all the time and this sounds fun! How does the potluck work? What do you say on the invitations? Do you really start with a stone?
  11. Skylark
    Hoax computer telephone calls??? Sheesh. Thanks very much for the warning.
  12. Skylark
    When I was dairy/soy free I made royal icing and sugar glazes for baking. With all the egg problems lately you would want to use meringue powder instead of egg whites. Royal icing is wonderful for piping. I had to go without butter/margarine but Earth Balance is making a soy-free, dairy-free margarine now. Look for different things you like too. I...
  13. Skylark
    That one result could be celiac, but it isn't as certain without the anti-gliadin antibodies. Inflammatory bowel diseases and rheumatoid arthritis can also elevate TTG. With the gluten problems in your family it makes sense to try the diet after you see the GI, even if that's the only sign docs can find. You are the first person I've seen post here that...
  14. Skylark
    Ugh. What an awful situation. People don't understand malabsorption. They may as well offer you sawdust for all the good eating wheat does. Is there any way you can get food stamps? Then you could buy some gluten-free food. I agree with the idea of getting a doctors' note. In my city, there is a food bank where we donate canned goods. I'm sure...
  15. Skylark
    That's great news! I'm so glad to hear you're feeling better.
  16. Skylark

    ARCHIVED Nystatin

    Skylark replied to Lisa79's topic in Food Intolerance & Leaky Gut

    Have you looked at the yeast-killing probiotics like Threelac or Fermplus? I'd try that before resorting to Nystatin. Threelac has worked great for me.
  17. Skylark
    Nice! I'm glad you are feeling better and that you even found a cake. So you know, the Betty Crocker gluten-free mixes are really good. I love the chocolate cake mix. It took a while for my bipolar symptoms to go away. Your gut has to heal so you absorb the nutrition your brain needs to stabilize, and then your brain has to "fix" itself. I take a special...
  18. Skylark
    Nobody is disputing the importance of adequate B12 here. You still haven't provided evidence that your recommendation of 3-5 mg sublingual daily is substantiated by any research. I'm waiting patiently for you to provide a proper long-term safety study of 5mg sublingual daily doses of B12 as you're recommending 5-fold above the norm, and with no time limit...
  19. Skylark

    ARCHIVED Upset

    Skylark replied to KikiUSA's topic in Coping with Celiac Disease

    ((( hug ))) I hate losing it over something at work. I promise you, it does eventually get easier. Your hubs sounds great and I hope he makes really good banana splits.
  20. Skylark
    It sounds like they saw general inflammation and damage. I hope you get better info from the blood tests. Once the testing is done, you can try gluten-free and see if it helps. When I have yeast infections, I usually buy a box of Threelac probiotic online. It works really well for me.
  21. Skylark
    Oh, dear. So we can't even test for levels properly. Thanks for the link... I think.
  22. Skylark
    A friend sent me this website and it's so interesting I had to share. Open Original Shared Link "FAILSAFE stands for Free of Additives, Low in Salicylates, Amines and Flavour Enhancers and is Sue Dengate's term for the comprehensive low-chemical, low-reactive exclusion diet formulated by allergists at the Royal Prince Alfred Hospital in Australia. ...
  23. Skylark
    A friend just sent me this link. Open Original Shared Link The whole website is pretty fascinating. The mention that people who seem to react to everything are often intolerant to certain chemicals in foods. If you're not up for a different elimination (understandable) this might give you some useful patterns or problem chemicals to look for.
  24. Skylark
    I'm glad to hear you didn't find cancer or any other severe problems. Stick to the gluten-free diet for a couple months. There is no harm in seeing a nutritionist. You don't sound particularly allergic so I don't know that you would get much out of an allergist visit.
  25. Skylark
    Of the three references you provided, two mention completely different cancers and one is irrelevant. In the third paper, the doctors are using B12 to protect against the cytotoxic action of chemotherapeutics which is an entirely different thing. Normal B12 is probably protective against many cancers; it's driving B12 above the normal ranges with injections...
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