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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Like you, I suspect some other intolerances but I can't seem to pin the reactions to a particular food. I'm tired all the time and feel like I just haven't recovered from my recent thyroid trouble even though my bloodwork is fine on the new supplement. I'm getting frustrated enough to try the FAILSAFE food chemical intolerance diet. I think I'm going to...
  2. Skylark
    If you want to argue strict semantics, gluten is a very general term for the insoluble protein component of grains. I said "guten-like" to avoid confusing people here but corn absolutely has gluten by the cereal science definition of the word. Corn gluten is composed of zein rather than glutenin and gliadin so it is not a problem for celiacs. With somewhat...
  3. Skylark
    That's great! Congrats on getting her to understand. (We need that little cheer emoticon some boards have!)
  4. Skylark
    This is a very interesting article about gluten and casein (milk protein) cravings. Basically, they act as natural narcotics in some people so you crave them. Open Original Shared Link Occasional salt cravings are really normal if you're not eating much salt or get a little dehydrated. A serious, long-term salt craving can be a sign of adrenal disease...
  5. Skylark
    Off the top of my head... Big bags of organic corn chips Crunchmaster Rice Crackers Pirate's Booty Delimex frozen taquitos Progresso Clam Chowder Kirkland canned chicken breast Cattle Drive chicken chili (no gluten ingreds.) Mrs. May's Nut Crunch Bars Orchard Bars bags of Mrs. May's Nut Crunch Kirkland Brand Pulled Pork (good with...
  6. Skylark
    There was a published case study of ten people with severe ED and celiac who were at an ED clinic. The people who were willing/able to stay strictly gluten-free improved and the people who didn't stay gluten-free had very little change in the ED. Interestingly, there is a higher incidence of ED with type 1 diabetes, another autoimmune condition associated...
  7. Skylark
    I think that study made us all paranoid.
  8. Skylark
    Your doctor has not read anything on celiac since medical school, and I suspect that was a long time ago. Celiac is genetic and the single biggest risk factor is a first-degree relative with celiac. It does not always start in infancy and in fact can start any time in life. If the blood tests come back normal, find a more openminded doctor and push for...
  9. Skylark
    Usually, but you have to read labels. Brownie, cookie, cheesecake, and cookie dough flavors usually have wheat in them. Chocolate chips and fudge are usually OK. I agree that Breyer's is really good about labeling and the labels are pretty simple too. I also eat some of the Ben & Jerry's, Haagen-Dazs, and Safeway flavors.
  10. Skylark
    Welcome. It sounds like you belong here. If this is your list of problem foods, and rice and fruit sit well, then gluten could absolutely be your problem. It's a shame you can't get a blood test, but a good strict try of the diet will tell you whether gluten is the problem. You just won't know for sure whether you're gluten intolerant or actually celiac...
  11. Skylark
    Ugh. That doesn't sound like any fun. I hope you're getting some psychological help for the PTSD. Not sleeping will make anyone tired and sick-feeling. It took me a long time gluten-free and I had to take a lot of vitamins to get rid of my psych symptoms.
  12. Skylark
    Haven't you ever cleaned out a fryer that's had a lot of breading in it? There's usually a solid layer of crumbs on the bottom and bits of breading floating everywhere in the oil. The heat convection and bubbling in the fryer keeps the crumbs nicely suspended during cooking too. I can't imagine foods that come out of a restaurant fryer that's had onion...
  13. Skylark
    I assume your doctors will do a follow up blood test and biopsy to be sure he's healing. Feed him reasonably and see how the follow-up looks. I like In-N-Out fries better than McDonald's. That said, I eat McDonald's fries without hesitation if I'm traveling and don't have healthier choices. (Or sometimes even if I do. ) They've never made me sick...
  14. Skylark
    You might have a look at this as well if you think it's your food. Open Original Shared Link Check the symptoms page. It lists fibromyalgia and MS-like symptoms. Open Original Shared Link
  15. Skylark
    Campylobacter infections have been shown to trigger celiac. I have had good results at various times with Threelac and FermPlus for yeast. They are both pricey too, and I mail order them. I can also get Yakult here so I grab a pack whenever I'm at the grocery store.
  16. Skylark
    Ideally she would get care from a better doctor. It's possible to have both celiac and SIBO or Crohn's and refractory celiac has been mentioned. I've seen people around here mention being treated with a course of steroids when malabsorption is this severe. Is she eating dairy or oats? Some celiacs react to them as if they were gluten. Also, take her...
  17. Skylark
    Ideally he would go back on gluten for at least a month and to the doctor for testing. As GlutenFreeManna said, he cannot be tested gluten-free. If gluten makes him way to sick to consider going back on it, he'll have to go without testing but a lot of people get tired of the diet and wish they knew whether traces of gluten would harm them. If you're...
  18. Skylark
    Kinnikinnick (who makes the donuts) is a Canadian company!
  19. Skylark
    All of your symptoms can be celiac. Stick to the gluten-free, lactose-free diet for at least three months before you worry about other things. It can take time for your villi to heal and your intestines to work right. If you had a biopsy with severe damage, it can be as long as a couple years.
  20. Skylark
    Better doctors call folks with positive bloodwork and a negative biopsy "latent celiac". The idea is they're somewhere along the path to developing full-blown celiac. Wheat is a bad idea for latent celiacs, as many who have been followed in studies do develop the intestinal damage and malabsorption.
  21. Skylark
    I'm happy to say that not all casein intolerance is permanent. After about a year eating gluten-free I could tolerate casein again. My best guess from medical literature is that people with damaged villi only partially digest some proteins like soy and casein. Bits of allergenic peptides leak through the damaged intestinal epithelium and there are...
  22. Skylark
    Yes, not everyone handles oxalates well. Here's a fairly interesting blog post I turned up on Google about them. Open Original Shared Link
  23. Skylark
    It's not OK. All the good dietitian celiac sites say to avoid foods from shared fryers. I've gotten sick from "shared fryer" french fries. I can't find any information as far as gluten testing on french fries, but my body says they sometimes contain quite a bit of gluten.
  24. Skylark
    I hate when my browser glitches and double posts. *sigh*
  25. Skylark
    Neither. They are poorly absorbed sugar alcohols and can act as osmotic laxatives, pulling water into the intestine. They can also feed gut bacteria, which can cause bloating and gas. Sugar sweetened gum might be a better choice for you.
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