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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    The first test they will do is a normal blood test and your GP can order it. If something comes back positive the GP will usually send you to a specialist, a gastroenterologist (GI doc for short). The GI doctor may schedule an endoscopy. That's an outpatient test and there are other people on the board who can tell you what it's like. I haven't had one...
  2. Skylark
    I agree. I'd go to a diet of 100% unprocessed whole foods before I accepted a diagnosis of refractory sprue. What I would eat (which is mostly what I eat now myself) is meat or fish you cook yourself, raw vegetables, home-cooked beans, fruits, and plain nuts. I would avoid grains completely, but at a bare minimum avoid oats and corn. As well as all the...
  3. Skylark
    Hi and welcome. Yes there are different levels of severity and all different symptoms of celiac. It can affect your stomach, bowels, skin, nervous system, and even other internal organs. This list gives you an idea of how broad the symptoms are. Open Original Shared Link You definitely should ask your doctor, but you need to be on a full gluten diet...
  4. Skylark
    What Newbee said. You would most likely have a normal endoscopy and your doctor will just say that you've always been fine. I'm glad you figured out how to feel better!
  5. Skylark
    I went to the website and my malarkey detector went off, big time. For starters, there is no way they could legitimately test 600 things for $85. Second, notice that there is no explanation of what the test you're paying for is measuring. Third, how could they afford to offer your money back if they were actually running 600 legitimate tests with reagents...
  6. Skylark
    This is a great point, that it couldn't hurt to get tested for wheat allergy. If you get a strong reaction you know that it's dangerous. And yes, you got the idea, thought I have a slightly different understanding of it. Your immune system works differently when there is a constant stimulus. Take away the constant gluten exposure and when you eat it...
  7. Skylark
    Maybe keeping a diet diary will help. It helped me figure out that I don't tolerate nightshades very well. Write down both the foods and how you feel and start looking for patterns. Maybe there is something you are consistently eating on the weekends that is different, perhaps something your husband likes for breakfast/lunch that you don't cook during...
  8. Skylark
    Eric, these all can be symptoms of radiation poisoning, particularly the chronic fatigue, weight loss and nosebleeds. Did it all start since the Fukushima accident? The situation is quite a bit worse than the Japanese government admits. Where in northern Japan are you, what is the microseivert/hour exposure where you are sleeping and spending most of your...
  9. Skylark
    How confusing. If your daughter had a positive biopsy and is growing better and healthier off gluten I don't think there is much question of celiac disease. I've read TTG can appear in other inflammatory bowel diseases, thyroid disease, autoimmune hepatitis, and rheumatoid arthritis. If your daughter shows no signs of these perhaps she just has antibodies...
  10. Skylark
    Are beans off your list for a reason or do you include them as vegetables? I make lentil and split pea soups from scratch all the time. Do you eat fish? If you're looking for more grains, try amaranth, buckwheat, or millet as well as quinoa. I also like coconut milk "dairy" as a treat even though it's processed. So Delicious brand has certified gluten...
  11. Skylark
    I would not take that supplement. I don't think that doctor buys into celiac as well as you think he does. Mine has told me to check pills and everything.
  12. Skylark
    That's tough. I would try cleaning with rubbing alcohol. Gluten is supposed to be the part of wheat protein that dissolves in about 70% alcohol. I really didn't replace a lot in my kitchen. Cutting boards that were scratched up, my colander, a few baking pans, my toaster. I kept my nonstick cookware because it was in good shape and I couldn't afford...
  13. Skylark
    I make my own broth but Herb-ox beef, chicken, and vegetable bouillon is gluten-free. Open Original Shared Link I also put gluten-free miso into broth for more flavor. I get Cold Mountain brand and it says gluten-free on the tub. It's also non-GMO. Be careful to check that any miso you buy is gluten-free because some brands use barley in the koji cultures...
  14. Skylark
    Well, I'm stumped then. Maybe someone else will help you figure it out!
  15. Skylark
    Does your hubs eat gluten foods and kiss you more on Friday nights? A gluten kiss is enough for some of us to react to.
  16. Skylark
    Soup is totally normal. So is stir-fry over rice and peanut butter and jam sandwiches. I'm not so sure about my coconut flour muffins and homemade sauerkraut!
  17. Skylark
    Bean-zyme is gluten-free. It's the same as Beano only they make it gluten-free and it costs half the price! I learned about it on the board a while ago. Open Original Shared Link
  18. Skylark
    I am flattered.
  19. Skylark
    You beat me to it with my own words. Also keep in mind that potatoes are nightshades, a problematic group of vegetables for many of us. I get D the next day if I eat them. If nightshades bother you, tomatoes, eggplant, and peppers will also cause a reaction.
  20. Skylark
    Hi and welcome. You must be doing something different Friday! Do you happen to have a drink Friday evening? I'm wondering because some celiacs are unlucky enough to be sensitive to the traces of gluten in distilled alcohol so they have to have something that isn't grain-derived. Wine, a gluten-free brand of hard cider, potato vodka, sugar cane rum...
  21. Skylark
    Glad it was helpful. I'm awfully happy to have someone as good as Fasano working on celiac and NCGI!
  22. Skylark
    I am on an "includes everything" style supplement designed for mental illness that a naturopathic psychiatrist recommended to me. It's called EMPowerPlus and is available from Truehope. Open Original Shared Link I've also had two different psychiatrists tell me to take fish oil and I've found it very helpful for hypomania.
  23. Skylark
    My understanding is that chronic intestinal inflammation is enough to cause some degree of malabsorption. It doesn't take total villous atrophy. People with Crohn's and ulcerative colitis typically have high fecal fat and can have vitamin deficiencies. My mom is NCGI, negative blood & biopsy, and has been B12 deficient for years. She also has borderline...
  24. Skylark
    The problem with going gluten-free on your own is that you cannot be tested for celiac without a 2-3 month gluten challenge. You may find that you are disinclined to eat gluten again if you feel better on the diet. Hyperthyroidism can resolve on its own and going gluten-free may really help. If it isn't too hard I'd suggest also eliminating dairy for...
  25. Skylark
    I think you probably have another food intolerance. Both dairy and nightshades (potato, tomato, etc.) get me. There are folks on the board intolerant to soy, and some to corn.
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