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Metoo

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Everything posted by Metoo

  1. Metoo
    I am gluten-free - because I had a rash I couldn't get rid of. I am 5 years gluten-free now. My son has had skin issues that are only getting worse. We have been told that they are simply excema....which is what I was told my rash was. He has had 2 sets of blood panels done now, several months apart. His panel is completely normal (and he makes...
  2. Metoo
    I had stomach cramps!!! But then I read you are supposed to avoid even gluten-free oats for the first 3-6 months of being gluten-free then reintroduce them. I reintroduced them 4 months after being gluten-free and I have not had a problem with gluten-free oats since.
  3. Metoo
    Well I have been gluten-free for a year....and it's awesome!! Except I am still having random right side pain (feels like a hernia or my ovary!)...I have been to my family doctor repeatedly for it. I went to anew Gyn for it...and she said based on my symptoms, bowel patterns she thinks I have a GI related issue. I have not been able to have regular...
  4. Metoo
    I did not test positive for celiac, but i have a rash and it's obvious I can't have gluten. In the year I have been gluten-free my family has been 80% or more gluten free. I still buy them some non-gluten-free packaged snacks or an occasional loaf of bread. During this time my 5 year old managed to gain 7lbs between 4-5 years old! This is a kid...
  5. Metoo
    I am just curious! If anyone's doctor has diagnosed them on symptoms alOne? It's been a year since I went gluten-free! I am quit good at it now! I went 4 months without a glutening! My last glutening was a Tostito Mulitgrain chip the size of a silver dollar....it was enough that within 2 hours my pinky got itchy, by 5 hours I had broken out into the...
  6. Metoo
    Lol! Tostitos Multigrain was my last glutening! I went to a party the chips were gluten-free then someone refilled the bowl with multigrain! I luckily grabbed just a small piece of one, and noticed it!! Luckily it was a small amount so my rash only lasted a week!
  7. Metoo
    I 'had' a small 1" diamter spot on my hand, that would blister, peel off, be all puffy and inflammed looking...then repeat that cycle over and over. It hurt too! Hurt like a burn would. My doctor passed it off as stress induced excema, said he had never seem an excema patch that concentrated though. 6 Months later I went gluten free and it dissapeared...
  8. Metoo
    I was at 14, the bottom of the range for my test was 12. I was instructed to take D3 at 10,000 per day for 2-3 weeks (so 70,000IU per week)...then after that back down to 5,000 per day (35,000 per week). After doing that for 3 months I got up to 55! Then I backed down to between 5k-2k per day for maintenance. And within 6 months I was back down to 3...
  9. Metoo
    1) The EMA test is over 90% accurate. 2) If you want to go through with the scope, she should continue eating gluten. Scopes are also notorious for false negatives, so even if the scope's biopsy doesn't show damage it doesn't mean she doesn't have celiac. If it were me...based on the blood test alone, with symptoms, if your doctor will diagnose...
  10. Metoo

    ARCHIVED Family

    Metoo replied to MistyRG's topic in Coping with Celiac Disease

    We were fairly gluten free...then I decided to relax about it a little bit. I have 2 young kids, that I am going to try and get tested at their next doctor appointment in a couple of months...so I want them eating gluten. So I decided to let some gluten bread back into the house. it was a mistake. Apparently now I react to cross contamination, because...
  11. Metoo
    I am pretty much grain free, besides occasional brown rice now...and the extremely occasional gluten-free baked goods, which only happens about once every 2 months or less. My suggestion is, if you haven't already start tracking your food intake on something like calorie-count.com. I started doing that and found that I was just too low on fat. I started...
  12. Metoo
    Well I am going to eat out today. I have been strictly avoiding eating out for the last 3-4 weeks to get my DH to heal up. Its healed barely..and now I have 2 social lunch/dinner things going on this week. Today is lunch, which I pretty much think I am safe, based on things I found on here. I am starting to fear the DH, its not that its just annoying...
  13. Metoo
    I believe you need to go see a doctor. Edema can be a result of serious medical conditions, kidney/heart and given that you are a marathon runner, and you are really relying and utilizing your heart/kidneys more than the average person, you should be looked at medically.
  14. Metoo
    I would consider seeing a dermatologist at this point, your rash does sound like DH. I would ask a Dermatologist to biopsy it...I would tell them you had GI issues for months/years, and that they were unable to determine a cause, and that you went gluten free...and now that are adding it back in your rash is changing/worsening. Ask them to biopsy it (they...
  15. Metoo
    Ditto THIS! After my 1st glutening....I never craved another thing in the cafeteria.. (I have DH and its so painful and terribly annoying while healing). You will get to a point you stop craving things....in the meantime though, buy yourself some Chebe Pizza Crust Mix. This was a craving lifesaver for me...I can now make pizza anytime I want it at...
  16. Metoo
    Washing my hands definitly does not help or doing dishes. I should try wearing gloves! I put lotion on afterwards and that helps a little, keeps it from drying out so much that it cracks open more. That is pretty much much what mine looks like "cracked and burned and just awful!" lol....
  17. Metoo
    first, how are your vitamin levels? Have you had them checked recently? Some of your symptoms could definitly be from a vitamin deficiency, including vertigo, nausea, lack of energy, not feeling normal during exercise (understanding that exersize does hurt, and doesn't feel great all the time =) ). I had a severe vitamin D deficiency, and besides...
  18. Metoo
    I was glutened like weeks ago, I got my area where i have my rash to heal up. no more blisters...etc. There area was still discolored though Well then two weeks ago, I cut my finger where I get the DH/rash...and it was like it caused me to break out a very small amount, I got maybe 10 blisters....since then now the cut and the skin just doesn't want...
  19. Metoo
    Welcome! Well, keep in mind the blood tests have a 30% false negative rate, so as my doctor said, if you have 100 celiacs in a room, it will only identify 70 of them...the other 30 would have a negative blood test for celiac, even though they have it! So no matter what your blood test, you should go probably try gluten free.
  20. Metoo

    ARCHIVED Work Dinner

    Metoo replied to lynxigirl's topic in Coping with Celiac Disease

    Its not fair, and it stinks. But you should go and just not eat if you aren't comfortable with ordering a salad. (which I understand... my last glutening was a salad, and I still don't know how..but it happens). I often go and just get a pop, if they want to complain about you not eating, then just say simply (unemotionally) I can't eat anything here, I...
  21. Metoo

    ARCHIVED New Symptoms

    Metoo replied to debnak's topic in Coping with Celiac Disease

    After several weeks its really not that hard. It takes like 4-6 weeks if you are vigilant and watchful about what you are eating, you will learn to do it. Not all good things in life are easy. If you want to feel better you need to make some effort.
  22. Metoo
    Thats the way I am. I believe I am lactose intolerant. I can't have raw milk at all. Ice Cream I do eat, but I feel awful for hours later on. I can handle cheese in small amounts, yogurt and things that milk is in (baked goods)...but basically I try to only eat a small amount of these things.
  23. Metoo
    I am no expert, but your blood work shows you have celiac. Usually doctors require the endoscope to diagnose you, they won't just rely on bloodwork alone, but endoscopes can have false positives. Your son probably has it too, its genetic. Do NOT go gluten-free until you are done with testing. Many people don't have gastrointestinal symptoms, or...
  24. Metoo
    If you still don't feel better after 2 weeks or so of supplementing, you might want to get your vitamin levels checked, vitamin D deficiency can cause fatique, and mine was so low that no regular supplement alone would have ever brought my level up, according to my doctor I had to take mega doses to get it to raise.
  25. Metoo
    Only young children, toddlers...etc can outgrow allergies, but not celiac just allergies. Allergies typically get worse as you get older, there is no outgrowing them if you have them in adulthood.
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