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Latest Celiac Disease News & Research:
Everything posted by srall
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				ARCHIVED 5 Years Gluten Free- Encouragement For The Newbies
srall replied to sandsurfgirl's topic in Coping with Celiac Disease
It's good to hear you are doing well. I used to post more 4 years ago when I went gluten free and I always loved your spunk and spirit. The gluten-free lifestyle does get easier. I have had to go deeper with my healing as I was diagnosed with another auto-immune disease this past March (Sjogren's) but I love that I've been able to manage both diseases... - 
	Hi. Bad mom here. I am over 4 years gluten free as is my daughter. The house and kitchen are gluten free. My 11 year old and I have this down. EXCEPT for the fact that I am an idiot. I switched us to a new shampoo without reading the label (insert head smack here) and after my daughter broke out with a terrible rash on her scalp I *duh* realized that...
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				ARCHIVED Now Jade Riviera Maya Mexico
srall replied to gancan's topic in Traveling with Celiac Disease
Well, I realize this is bringing up an old post but I did promise to come back with my review. We got back Saturday from Now Sapphire Resort Riviera Maya. My report isn't quite as glowing as gancan's but it was okay. I think if you are extremely sensitive to cross contamination, or even just pretty sensitive, you may find it difficult to navigate eating... - 
	For me joint pain from nightshades does seem to be cumulative, but I don't know if this is typical. My diet is mostly paleo, but I am not really a fan of low carb, so I use white potatoes and some rice, and even orange juice to get enough carbs to feel good. But a few weeks ago I was getting massive hip pains and I realized I'd been eating potatoes every...
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				ARCHIVED Newly Dx - Reading And Learning A Lot
srall replied to moosemalibu's topic in Coping with Celiac Disease
I'm so glad you have your diagnosis. I hope this doesn't sound at all cruel, but whenever someone in my life tells me they are diagnosed with celiac, I actually feel a little happy for them because I know (if they stick to the diet) that they are going to feel so much better very soon. I second the Udi's chocolate muffins. They are so good. They... - 
	
	
				ARCHIVED Apparently You Guys Were Right, It's All In My Head!
srall replied to Renegade's topic in Coping with Celiac Disease
One more person to advise that dropping dairy means ALL dairy. I continued for about a year to just use cream in my coffee and had pretty bad D almost constantly. It was when I finally dropped all dairy that I started to heal from the damage dairy was doing to my body. And I know it's frustrating when you feel like people are telling you that things... - 
	
	
				ARCHIVED Does Lactose Produce The Same Symptoms As Gluten For Some?
srall replied to answerseeker's topic in Coping with Celiac Disease
For sure yes. (I have problems with both lactose and casein) Through the process of elimination, I realized that most of my crippling stomach issues were actually from dairy rather than gluten. The gluten was causing MANY other symptoms, but the dairy was giving us (my grade school daughter and me) both hives, allergy symptoms and very very very bad, ahem... - 
	
	
				ARCHIVED Brother Has Same Symptoms But Wont Adhere To Diet (Rant)
srall replied to whitepine's topic in Coping with Celiac Disease
Kindly say your piece, then leave it up to the other person. When I was 42 I went gluten (and dairy and corn) free after many years of symptoms, but 2 years of rapidly failing health. I watched my younger brother suffer from the same health issues and be diagnosed with diabetes at age 40 but refuse to even consider going gluten free (His gastro tested... - 
	
	
				ARCHIVED Well I'll Be Darned. No More Nausea And D... Y'all Were Right.
srall replied to gatita's topic in Coping with Celiac Disease
When I am 100% paleo including no wine (*sob*) I feel amazing. I can even "cheat" with a few lentils and white potatoes here and there and still feel pretty good. I tell people even if eating this way (all the meat) takes some years off my life, I'm okay to feel so amazing everyday. Especially when you consider the contrast from before my diagnosis (ncgi... - 
	
	
				ARCHIVED Morning Versus Afternoon
srall replied to HumanDecency's topic in Coping with Celiac Disease
That is quite a story. Realizing that I have an auto immune disease and that I will still have very bad days even when being as careful as humanly possible has been one of the hardest things to come to terms with. - 
	
	
				ARCHIVED Morning Versus Afternoon
srall replied to HumanDecency's topic in Coping with Celiac Disease
Sadly I have been gluten, dairy, corn and soy free for over 3 years, and I still feel the absolute best every morning, until I eat something. Even after my morning cup of coffee I still feel great. Until food. My feeling is that I have a leaky gut that just needs to be addressed once and for all. I feel like I should go on the GAPS diet but after... - 
	
	
				ARCHIVED Celiac Symptoms But Doctor Doesnt Believe In Food Intolerances
srall replied to Jo1977's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
YES. - 
	
	
				ARCHIVED Is Eating Gluten Worth A Possible Diagnosis?
srall replied to aberlee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My path was so similar to yours. I had a host of health problems that the doctor would shrug off. My mother had already been told to go gluten free by her GI a couple of years earlier, so based on that and another friend's advice (she had given up dairy, soy and wheat) I tried the diet for 30 days. Well...the short story sort of picks up kind of at the... - 
	
	
				ARCHIVED Completely Different Personality
srall replied to DavidB73's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
In addition to many other symptoms, my rage and anxiety were pretty bad on gluten. You're a great husband! I wish my husband would give gluten free a trial. - 
	
	
				ARCHIVED How Strict If You Are Ncgi?
srall replied to raistlinm's topic in Related Issues & Disorders
Absolutely 100% gluten free. No question. Personally I think I do have celiac based on the fact that I had a very specific rash from eating gluten, but by the time I got myself to the doctor I had been off gluten for 2 months and even though the doctor was pretty sure it was celiac I wasn't willing to do a gluten challenge. That said, after 3 years... - 
	
	
				ARCHIVED What Other Communities/forums Are You A Part Of?
srall replied to JoshKelly's topic in Coping with Celiac Disease
I agree. No need to spend money on a program when there is so much free info available. I just know grain free was the final chapter in my journey to feeling good...actually paleo because the sugar and wine are problematic too. So there are also some great paleo sites when people are ready for that. I love Whole 30 and even PaleoHacks. - 
	
	
				ARCHIVED What Other Communities/forums Are You A Part Of?
srall replied to JoshKelly's topic in Coping with Celiac Disease
I have seen a lot of posts poo-pooing this particular "doctor" (actually I think he's a chiro) but I have to say the only way I feel really good is grain free. I know it's not the solution for everyone, but if someone is looking for that final "oomph" then grain free might be the solution. - 
	
	
				ARCHIVED Now Jade Riviera Maya Mexico
srall replied to gancan's topic in Traveling with Celiac Disease
That is great. I didn't see that when I looked at the Now Sapphire website. That is a huge relief. We are not going to be there until January 2014. In the meantime I have Manhattan this summer. Pretty easy I'm guessing. Then Colorado which is my hometown. So I can report back on Riviera Maya Mexico in a few months! I'll be watching for your report... - 
	
	
				ARCHIVED Now Jade Riviera Maya Mexico
srall replied to gancan's topic in Traveling with Celiac Disease
I cannot believe you just posted this. I'm going to this resort for a week in January for my sister in law's wedding. I researched their website yesterday and it looks like they have 7 restaurants (including a couple that would be out for us)...I do remember one restaurant had seafood which I thought was a pretty good sign. We cannot be the first celiac... - 
	
	
				ARCHIVED Gluten Free Dating - Turning Negative Into Positive
srall replied to ndw3363's topic in Coping with Celiac Disease
I love your perspective. I've been with my husband for several years now, but I often wonder how I would have navigated dating with all the frees (gluten/dairy/corn/soy/oxalates oh my) I do however worry about my 10 year old. i realize she is at least 6 to 20 years from dating (if I had my way) but I really think about her not being able to go out... - 
	
	
				ARCHIVED Amsterdam, Paris, Edinburgh, Dover, London, Canterbury
srall replied to melrobsings's topic in Traveling with Celiac Disease
We were in London two years ago. I thought it was as easy to be gluten free there as in most big cities in the U.S. (I live in Minneapolis and it's very easy to be gluten free here...probably because I mostly eat at home) The one thing about London/England was that we could always get a steak and chips (fries) or potatoes in pubs that never caused... - 
	I definitely get very bad joint pain from gluten, but even when there is absolutely no dairy/corn/gluten/soy in my diet I still can get pretty stiff based on how much alcohol I've been drinking, how much rice I've been eating (that's our only grain) and even how much sugar. If I'm eating a paleo diet with very little alcohol (for me this means wine) and...
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				ARCHIVED Cracks/sores At Corners Of Mouth
srall replied to JaneWhoLovesRain's topic in Related Issues & Disorders
I am speaking only from personal experience here. There may be much better advisers. I personally get those cracks when I'm vitamin B deficient. Usually a few high doses of b will get rid of those cracks pretty quickly. I know celiacs are often deficient in b. Also, one of my really good friends is a nutritionist. I haven't seen her on a professional... - 
	
	
				ARCHIVED Malabsorption And Excessive Bowel Movements
srall replied to GFreeMO's topic in Coping with Celiac Disease
For some reason I'm remembering 11 days. I'm not sure that is correct but it was a many days. - 
	
	
				ARCHIVED Christmas Family Event. Beyond Frustrated
srall replied to Skysmom03's topic in Coping with Celiac Disease
Another coping thing struck me. My daughter and your son are both nine. We started a little game called McDonald's day. You know those days where you just want to drive through the drive thru instead of making everything from scratch? Or everyone else is eating treats and making cookies and while your gluten free cookies are okay...it's just not the...