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srall

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Everything posted by srall

  1. srall
    Just had to chime in. Even the most accommodating families can't figure it out. Last year we went to a huge family reunion in another state. We were told that there would be gluten free food for me and my then 8 year old daughter. Every single night while everyone ate pizza, or fried chicken or ...another gluteny meal my sweet aunt (who I love dearly...
  2. srall
    Interesting you should post this now. I was just researching this. I think I have a problem with a high oxalate diet. Sometimes I feel best when I quit the green drinks, almonds and even sweet potatoes. I don't know if it's connected or I just had some sort of plant poisoning. i think at the very least rotating greens and varying the diet will help....
  3. srall

    ARCHIVED Curious...

    srall replied to Skittles's topic in Coping with Celiac Disease

    Most of the time it's just a few days. Two times it's been about 3 weeks of pain pain pain. I think in those cases it was cumulative gluten over the course of days. Both times I was on trips out of the house.
  4. srall
    When I am not doing well, because even on a completely gluten free diet there are times when I'm just not feeling great, I will get myself to a paleo or perfect health diet (which allows rice and potatoes). I do organic, whole foods and only feed myself. This is how I feel absolutely the best. I personally cannot handle gluten free substitutes at all...
  5. srall
    Um. Yes. I do react that severely. To wheat and corn. And now you have me wondering if my Thanksgiving glutening which crashed me until yesterday (so 2 1/2 weeks) may have been corn...or both corn and gluten cc. I don't know. My response is very very similar to yours. My inflammation led to a pinched nerve in my neck which cut off all the feeling...
  6. srall
    I know what you're asking...I always just thought it depended on how far along the disease had progressed. I know some people respond to the diet immediately and some take years. So I assume it's how weak your body has gotten before you were diagnosed. Age might make a difference too. My daughter seemed to get better after only a month. (was age 7) ...
  7. srall
    I agree everyone has different symptoms. Also, I have learned that I have specific reactions to different foods. In the past I have blamed all my stomach issues on gluten, when I now know they are really a reaction to dairy. (My daughter though still has clear stomach issues if glutened) My first sign of getting glutened is that I go outside my head...
  8. srall
    I find that I can eat rice a few times a week (and rice flour) with no problems EXCEPT when I'm in a state of inflammation from a glutening. Then I have to cut rice and all nightshades until I'm completely over it then I can use rice, rice flour and nightshades sparingly again. Seems to be true for wine too. A lot of people finally get full relief when...
  9. srall
    I got glutened over TG and am still suffering. Usually it seems like it only takes 3 to 5 days but this is a doozy. It's like fibromyalgia pain and fatigue....oh and a pinched nerve on top of it. So, the upshot is since I am a SAHM and my family is fairly sympathetic I've been watching a lot of t.v. and going to bed around 7:30 at night. This is coming...
  10. srall
    Diana, I also have to say that I ate at PF Changs yesterday with a lot of trepidation (don't know why...just not as plain as Outback I guess) Anyhow, I had zero problems yesterday or today. I will say that I am not sure about eating grain free there. Plus $$$ for 7 people. But maybe dishes can be split? But I would say if you can cook for yourself and...
  11. srall
    I have an app for whole foods on my iphone that we've used as we travel. We go to Florida a lot, but never Pensacola. Anyhow, probably like your travel, we now make sure we have a kitchen and know where all the WF's and Outbacks are. I know that's not organic, but my daughter and I can get a steak and potato and they seem pretty aware of gluten free diets...
  12. srall
    My mother, myself and my daughter all have dreams of accidentally eating gluten. My daughter and I are about 2 years gluten free, and I believe my mom is 4 years gluten free. I always have a dream where I am eating something then 1/2 way through think, "What the heck am I doing? This is loaded with gluten." Like I totally forget to think about gluten...
  13. srall
    I have one other word of advice, which may cause some controversy. IF you self diagnosed (I did) I would from the get go just say you have celiac. When I first went gluten free it was out of desperation to feel better but I didn't know what to do besides an elimination diet. Once I'd narrowed down that it was gluten I went to the doctor. She looked at...
  14. srall
    Yes the fatigue will go away. But you are only 3 weeks in. Healing might take 6 months to 2 years. And within that space of time you should see marked improvement. Don't let that time frame bum you out either. I think it just helps to be prepared for a little bit of a long haul. I think what most people experience is that you start to have good days...
  15. srall
    This actually sounds pretty normal, esp 3 weeks in. I remember very well trying to come to terms with the fact that I'll never eat a pizza or hamburger again, not another ice cream cone...everything was going to change. I had to learn to COOK for heaven's sake. It's a lot to go through mentally on top of everything that is happening to you physically....
  16. srall
    I could give you a lecture about cheating, but I think deep down I know the only reason that I don't cheat is because I couldn't get away with it. I got some cc at my inlaws house for TG and have been racked (wracked?) with pain for days. I've also been sitting on a heating pad constantly. But it sounds like you're ready. Once you get over the hump and...
  17. srall
    I can't think of specific restaurants anymore, (we were there summer before last) but we were able to eat gluten free pretty easily. It sounds like your husband is not gluten free, so I would imagine it would be fairly easy to eat gluteny veg meals. We had a lot of luck at Indian restaurants. There was one in Earl's Court but I can't recall the name....
  18. srall
    I just have to agree with the elimination diet. That is initially how I figured out that I was gluten intolerant. (Personally I believe it is celiac disease but I wouldn't put myself through the testing...and that is not to say being gluten intolerant is less serious than celiac) Anyway, for me and my little girl, we had the same reaction to corn that...
  19. srall
    I was so sick for awhile that I cut gluten and dairy at the same time out of desperation. So when i added dairy back in (for a split second) I realized that dairy was actually what was giving me the severe diarrhea. I think gluten was doing a lot of things to my body, but the dairy was what chained me to the bathroom. My daughter (child) also gets those...
  20. srall
    Oh absolutely! You can research this board and find many stories of people glutened for the first time after being gluten free for even just a few weeks. I had one bowl of soup (not even a piece of bread) and was bed ridden with joint pain, fatigue and a nasty DH rash for 3 weeks. It's very possible.
  21. srall
    To the OP: I still need to read everyone's responses, but here are my reasons. I went paleo (grain free) because I knew I could still feel a little bit better. I've really learned to listen to my body as a result of being sick for so long, then healing myself with my diet. Personally I found that I do better with some white rice and white potatoes because...
  22. srall
    Good luck! I checked out your post to see if I could offer any advice but you have got it covered! Have a great time!
  23. srall
    Um: Paleo diet not *pale* diet
  24. srall
    FWIW, corn makes me feel just as awful as gluten. And my daughter who is nine, I think has an even worse reaction because she gets really bad hives too. I am always very interested to read how young people fare on this board, especially college students because I will be sending my daughter off eventually and she cannot eat gluten, corn, dairy or soy....
  25. srall
    Sort of on that note: I heard from 2 different people over one weekend that they put their dogs on a grain free diet because it's so much healthier for the animals...but they themselves would "die" without bread.
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