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Emilushka

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Everything posted by Emilushka

  1. I agree completely. Don't ignore blood in your poop. Go in and see the doc - it may be nothing, but could just be that the reaction to gluten irritated something ELSE in the intestines that needs to be treated. Please do go in and see your doctor, LittleFrench.
  2. Maybe it's one of those legal things where they don't want to make promises they're not sure about, but they're not actively contaminating the product. I'd call and ask if you're not super-sensitive, but if you are, I'd just avoid the product.
  3. Emilushka

    ARCHIVED Bruising

    AMEN.
  4. Hi, my name is Emily, I am Celiac, and I have a confession: I USED TO SAY "CELIAC'S" BECAUSE I DIDN'T KNOW BETTER. I stand so very, very corrected. I usually say "I am Celiac" or "I have food allergies" (people understand that better) or "I can't eat wheat or dairy" or "I don't eat like normal people" (for the people who really don't honestly care and...
  5. I haven't gained anything since being diagnosed a month and a half ago, but I obviously haven't gone that long since diagnosis. For me, it's been more a matter of making sure I try to pack in as many nutrients as possible ... Most of my vices are gone, though. I can't have my beloved cheese and I can't have my beloved pasta (and my super-beloved combination...
  6. I would call and just ask them specifically where their ingredients come from. I've called a couple companies and if you explain you have a food allergy, they're usually good about finding out if their products are safe (or explaining what the packaging says, at the very least).
  7. Emilushka

    ARCHIVED Bruising

    Don't be afraid to go to the ER if you're worried about it being a concussion or something else serious! Docs and nurses in the ER see way weirder things than someone who fell out of bed. The way you and your husband interact will speak volumes about your relationship, and while they are required to ask you if it's safe to go home (just in case) it won't...
  8. I think with other products it is more a problem of the gluten getting into your nose and/or mouth during the shower. Or if it's a lotion, then getting from your hands into your food. I don't think the pores are so much the issue. People with Celiac can be really super sensitive, including the trace amounts from lotion into food or from shampoo into the mouth...
  9. Emilushka

    ARCHIVED Bruising

    I'm glad I was able to prevent a potential problem! YAY! I feel like I did my job today. Topical witch hazel (I'm assuming that's what you meant) shouldn't cause you any problems. I don't know that it will work, either - your bruising, unless you're getting fresh blood to the area, should be more of a matter of your body cleaning up the blood that's already...
  10. Your reply about the toxins in Arnica Montana were beyond helpful (especially since I was recently diagnosed with an ulcer). It will be great to have someone on the forum who is a doctor and a patient!!!!!!

    Loey

  11. My #1 and #4 are the same, as long as we're not counting these in order. And while my blood pressure didn't drop quite THAT low all the time, It's definitely a lot better. 2. I don't have to schedule in extra pooping time in the morning (and I'm not late to my rotations thanks to uncontrollable pooping) 3. My belly feels like a BELLY again and not like...
  12. Emilushka

    ARCHIVED Bruising

    Be careful. There is a toxin that Arnica Montana produces that can cause gastroenteritis and GI bleeding if you take too much of it. The toxin is called helenalin. I don't know what kind of dilution you're talking about with a homeopathic remedy, but be wary since that market is NOT regulated by anyone and those products do not have to be tested in order...
  13. 1) Gene testing doesn't show all the genes and would only prove a predisposition - which is added evidence, but not a diagnosis. 2) Antibody testing only works for some people and if it's negative once, I'm not sure you'd have an easy time getting insurance to cover it again. Out of pocket, the antibody testing I had done cost $300 at the lab with perhaps...
  14. What works for me is sipping a lot of water and eating very, very little (mostly plain rice, plain veggies, plain fruits). I hate that feeling. Ugh.
  15. Gatorade is isotonic, which means that it has the same ratio of water-to-electrolytes that your blood does. That's why Gatorade is so good at rehydrating after a workout; you add both the water and the electrolytes that have been lost in sweat, and instead of diluting your blood with pure water (which triggers you to pee out the water you so carefully tried...
  16. I had horrible nerves about it, even though I was pretty sure the only thing that made sense was Celiac. Hang in there. You got a great answer from your own body when you responded well to the gluten-free diet. That's not something to be ignored.
  17. There's a possibility that she might come up with a false negative on blood testing because she's pregnant and her blood volume has increased (which is normal and helpful in pregnancy, but less helpful for testing for Celiac Disease). I don't know if the volume increase is enough to significantly alter the potential results - that's a question for her doctors...
  18. There is an increased risk for T-cell lymphoma with refractory sprue, you're correct. But it's not a guarantee by any means. The feeling crummy and low-grade fevers sounds like your immune system is active, which sounds exactly like what we'd expect from a refractory sprue. When was your last blood work? Lymphoma is often found after abnormal numbers found...
  19. That's the same way I was. You can't expect every test to be positive - they're imperfect, and that's why there are so many tests that they run. If only one was enough, they'd run only one. Welcome to the Celiac Club! You've got a firm diagnosis. Time to go gluten-free.
  20. It doesn't matter what they think is "much of a livelihood" - I don't think walking back and forth on Judge Judy and saying "The parties have been sworn in. You may be seated." is much of a job but I wouldn't deny that dude proper health care. Bah. They were stupid. The next time you go in, see a different doc. Hopefully a non-idiot, non-jerk, competent...
  21. Have you been worked up for any kind of concurrent seizure disorder? Had an EEG done, etc? It's possible that instead of needing diazepam only when you get symptoms, you should be on it full-time to prevent attacks.
  22. EGD stands for esophagogastroduodenoscopy, and it really just tells you exactly where the camera goes: through the esophagus and stomach (gastro) to the duodenum (small intestine). If you get both ends scoped (EGD + colonoscopy) you're still missing most of the small intestine because the colonoscopy only gets into the very tail end of the small intestine...
  23. Antidepressants and mood-stabilizers are very person-specific. I think they're doing genetic testing to try to see if there's a way to tell BEFORE giving someone the drug whether or not it'll work on them. But you're right that the same drug doesn't always work the same way on the same person at a different time in their life, and you're also right that therapy...
  24. If they had a vaccine for hay fever, I'd take that too! My body isn't always the smartest. If I can help educate it or prevent it from damaging itself over something that's not ACTUALLY harmful, I'll totally take the vaccine. Maybe I just really miss lasagna today.
  25. I feel like I'm generally sick when I eat dairy. That includes a brain fog, but not usually jitters.
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