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Emilushka

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Everything posted by Emilushka

  1. Emilushka
    It depends on what they're made of. A nodule could be the liver tissue itself either scarring or making some kind of weird nodule thingy - hormones can do this, or potentially other things. A lesion is more likely some kind of external damage like a cancer or damage from a previous surgery or other non-liver source. But that's a strictly medical perspective...
  2. Emilushka
    Lots of options for what could be going on, but it's definitely time to talk to the GI doc. Doesn't sound like Celiac-only damage. Cysts on the liver can be from lots of things, but a rising lipase level is concerning for something going on in the pancreas that didn't show up on the scan. Lipase is made only in the pancreas whereas the amylase can come from...
  3. Emilushka
    B - coffee with soy milk, Lara bar L - banana, small box of raisins, 2 rugelach, 2 cups of salmon S - small handful cashews (salted, roasted, YUM) D - red quinoa cooked in low-sodium veggie broth with steamed veggies (mix of frozen) and garlic in soy sauce, veggie broth, and hot pepper flakes, can of tuna added at the end, ate about 1/3 the whole...
  4. Emilushka
    The problem with Celiac is that you're talking about an immune response (because it's an autoimmune disorder) which causes a pretty large reaction to even a small amount of the offending substance. Think of it this way: if you have hay fever, even sniffing a little bit of pollen by having a bouquet nearby can cause a lot of sniffles, coughs, etc. It's a much...
  5. Emilushka
    B - Lara bar, banana, cashews L - 1/2 peanut butter sandwich on rice almond bread, rugelach, salmon cup S - finished the cashews from breakfast D - beef stew with carrots and potatoes, dried mango slices, glass of wine ETA: mangoes!
  6. Emilushka
    C-reactive protein and sedimentation rate are both nonspecific markers of inflammation - anything that causes inflammation will raise both of them. They're useless for diagnostic purposes unless you are trying to track inflammation due to a known cause (watching the markers go down indicates that the inflammation is subsiding). In babies and young kids, the...
  7. Emilushka
    Gluten-free since 9/10/2010. My biggest problems were reflux and stomach-related symptoms (with some massive diarrhea, but I'd learned to schedule around it so what bothered me most was the pain). I am doing SO MUCH BETTER with those. Occasionally I get some cross-contamination or accidental glutening, but I've learned that if I catch it at the time, I...
  8. Emilushka
    Cheapest I can think of is rice, frozen veggies, and ground beef (try to find stuff that's a "manager's special" because it's knocked down in price, then immediately freeze/cook it). Canned veggies might be on a better special than frozen at your grocery store.
  9. Emilushka
    ... but then they glutened me. So much for being great about Celiac. They brought me wheat noodles.
  10. Emilushka
    There's a Mongolian Barbecue-style restaurant in my town that I'm headed to tonight with a group for a work event. The cool thing is that when I called, they said they'd had a Celiac nutrition expert come through and evaluate their grill, ingredients, and sauces for gluten so that they could make their offerings more Celiac-friendly! And they always have...
  11. Emilushka
    The hardest part for me is really having to cook all the time. I personally don't find the actual cooking that difficult, but being that inventive consistently gets really old really fast. And finding gluten- and casein-free convenience foods is also difficult. There are only so many times in one week that a girl can want beans or chili!
  12. Emilushka
    I like fresh or steamed fruits and veggies. Those tend to agree with the most people here, and they're definitely a healthy way to go if you can't think of what else to do. For protein add tofu (if soy is OK) or beans or meats (chicken breasts are easy to find and use). For flavor try a curry or even just salt, pepper, and olive oil. Rice tends to be easy...
  13. Emilushka
    How much protein are you counting as "plenty"? How many grams per day are you eating?
  14. Emilushka
    I don't think you actually need any more testing. You have the antibodies in the stool - which is where it makes sense to find them if they're attacking the intestines. The anti-tissue transglutaminase is the TTG that can be measured in the blood, and the other relevant level was the anti-casein antibody. Sounds like your kiddo has intolerance to both gluten...
  15. Emilushka
    The key problems with Chinese food are soy sauce and fish sauce, both of which often contain wheat. Be careful with those two things. The problem is that they tend to sneak into Chinese food in ways you wouldn't expect. PF Chang's is relatively Celiac-friendly, as Monklady123 said. The problem with fried rice is that it likely has soy sauce in it, and...
  16. Emilushka
    I like my chili like that too - more like a veggie soup than a traditional chili. Only I do add some beef sometimes. Was it too spicy for him? Sometimes kids are more sensitive to spiciness than adults. Although I assume you've made this for him before and you know his tolerance levels...
  17. Emilushka
    Hi Amy! I'm the only one in my family who's been diagnosed Celiac. We can help you learn to eat gluten-free and get your kitchen in ship-shape order. My husband still eats gluten in my kitchen and there are ways to make that OK (as long as you're not one of the super-sensitive Celiacs). Get the endoscopy done, then one the procedure is over go for...
  18. Emilushka

    ARCHIVED Endoscopy?

    Emilushka replied to jststric's topic in Doctors

    The Celiac damage is more commonly small intestine, so the colonoscopy isn't for Celiac detection. The colonoscopy you were recommended is for cancer detection. Everybody gets them unless they're stubborn.
  19. Emilushka

    ARCHIVED Endoscopy?

    Emilushka replied to jststric's topic in Doctors

    I'm assuming you're getting the colonoscopy as the regular screening for colon cancer, which is done in everyone over 50. That's not the same as looking for Celiac damage. The colonoscopy is a camera inserted in the anus and projected up through the large intestine all the way past the appendix to the very end of the small intestine. For those over 50, the...
  20. Emilushka
    I don't think those two are known to be related. Lichen sclerosis is pretty common, though. And treatable.
  21. Emilushka
    Buffalo burgers ... maybe bison? I can't remember which one you can buy in the store. Whichever one is not an endangered species is the one we're eating!
  22. Emilushka
    Hospitals will charge you a fee for your records. The easiest way to avoid additional costs is to ask the new doc to make you a photocopy of the records (or ask the old doc to do so). Avoid having to get things directly from Medical Records if you can - that's how you avoid the fee.
  23. Emilushka
    Bacon! I actually only ate bacon for dinner tonight. Sometimes it's great to be an adult.
  24. Emilushka
    What are you allowed to bring into those countries?
  25. Emilushka
    As has already been said, the endoscopy can come back totally normal (I got both ends scoped and was normal but the antibody panel and diet response proved the Celiac diagnosis). I hope your endoscopy doesn't show too much damage and your symptoms clear up quickly on the diet!
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