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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. Legu, can you change anti-depressants? It sounded like the SSRI you are taking is what originally caused the spots, though I am not sure if your liver condition factors in to it as well.
  2. If you are going for an endoscopy (not a colonoscopy:) ) that was not good advice. You need to be continuing to eat gluten ahead of the endoscopy. Edit to add: Sorry! I read your comment as "stop" instead of start. You should be eating gluten until after the scope and should've been eating it before during and after the blood tests.
  3. Probably. One person with celiac disease I know drinks craft beer, but most beer has gluten (its heart is gluten), and people with celiac disease should not be drinking it, as far as I know.
  4. Not directly related to your question, but while beer is gluten, yes, if there is no wheat in it (ie, if it's made from barley), the gluten comes from a different source. Barley gluten - hordein. Wheat gluten is known as gliadin. Rye gluten is known as secalin. Presently, assay tests (or lab tests) are only commercially available for the...
  5. Hi there, You should follow up with your doctor and/or ask for a referral to a gastroenterologist. Someone knowledgeable, with time and curiosity needs to take a look at your labs. As a commenter pointed out, you have a high sedimentation rate (ESR), which as you pointed out, can indicate inflammation. So that's the first part of the sentence, what's...
  6. It is good advice to track as much as you can. I try to do this in conjunction with detailed study of the body's anatomy and physiology (GI tract specifically). Both pieces are what I need to know and knowing them works for me, personally. There are other things that could be causing your D, but it's early days yet, and the advice to track is good. Just...
  7. Hey, Do you qualify for Medicaid? Getting a definitive answer from a colonoscopy is news to me. Usually the gold standard for a diagnosis of Celiac is biopsy with an endoscopy. As I understand it, Celiac is not the same thing as an allergy, meaning you may or may not expect a fast reaction to gluten. I would guess it varies by person. Further...
  8. The Washington Post also did a medical mystery story on MALS: Open Original Shared Link Both women are petite. Also consider a sliding hiatal hernia, which is diagnosed by endoscopy usually.
  9. Colonoscopy + others...(small bowel series, and others)
  10. Ok, so the cholesterol is fine but what about the triglycerides? You say you have had a bile duct problem in the past...where I'm going with this is pancreatitis (chronic). Have you already ruled it out? Biliary tract disease is a risk factor for pancreatitis. As far as I understand, the pain of acute pancreatitis is excruciating and any provider would have...
  11. Is the pain bad? If you get in the fetal position, is your pain relieved? Is the pain worse after eating or drinking alcohol? Have you gotten a complete blood test? If so, what are the results? What is your blood glucose? What is your triglyceride level?
  12. UPDATE: So as I have said, I was worried that my occasional D was indicative of an unhealed gut/small intestine/duodenum. I thought and thought about this. If my gut were really unhealed, wouldn’t I be having a lot more that occasional diarrhea? I think I would be. So now I’m thinking that the diarrhea may be a result of IBS. Here's why: it see...
  13. Yes, GFinDC you've got the gyst of what I am after. If I am reading your response correctly then, you think that inflammation in the gut caused by gluten ingestion is enough to trigger diarrhea, quite apart from the state of one's mucosa? That would be good news for me. More information on this inflammation reaction in the gut with gluten ingestion is precisely...
  14. Your test results, to me, seem to indicate that you do not have celiac disease. (Everything is within normal levels.) And, your total IgA is high. Many people with celiac disease have low total IgA levels (10-15 times more frequently than people in the general population). The total IgA is conducted because about 3% of people are IgA deficient. If you...
  15. Thank you for responding. Yes, I understand not to eat gluten. I suppose, I wasn’t clear. I understand that there are reasons for D other than celiac disease. What I am asking is, within the context of celiac disease, is there another reason apart from villi blunting for D? My suspicion is there is not. In which case, if, after being gluten-free for s...
  16. If after having been gluten-free for several years, you get D after ingesting gluten, does that mean you have an unhealed gut? In other words, what is the pathogenesis of the D reaction in celiac disease – or better put: is D only a symptom of celiac disease when the villi are flattened? If true, that means after 6 years of being 99.5% compliant, my villi s...
  17. I don't have the soap with me now so I can't check the label. Looking on line - nothing.
  18. RMJ - can you give a link about what you said about the antibodies going down after three weeks? And, which antibodies? Thanks!
  19. My favorite is/was Roger and Gallet, but I think that it might contain gluten (hard to find out). Does anyone have recommendations? Thanks!
  20. As of November 2015, there are three completely gluten-free restaurants in Washington, DC, more depending upon how you count. The Little Beet is a new gluten-free restaurant. 18th and Connecticut Ave NW. Shophouse Kitchen has four locations around the city. It is Southeast Asian cooking. Rise is a gluten-free bakery in the northwest neighborhood...
  21. Hello, Good catch. I've seen the Celiac genes written the way you wrote but I've also seen them referred to differently (HLA-DQA1 and HLA-DQB1; or HLA DQ2 and HLA DQ8), but I think the way I wrote it was wrong. I don't know enough about genetics to articulate what the difference is in the different way it's referred to, but as I like to say, it's worth...
  22. Just to clarify, I was originally writing about Rudi's. (Just so we're all on the same page.) But I must admit to being surprised that people are buying what I consider to be fairly standard, unspectacular gluten-free bread (Rudis, Udis for example) at such high prices - that Target price is nuts. Unless things have changed in the last week, the most...
  23. I completely skipped over the wheat allergy. For some people, it is a life-threatening event that is true. (I see she is not scheduled for endoscopy but rather colonoscopy and gastroscopy. Maybe the gastroscopy is what I would normally call an endoscopy. In any case, biopsies should be taken if testing for celiac disease.) Even if I had a wheat...
  24. You certainly have celiac disease symptoms. Yes, you will have to eat gluten every day for 2 weeks before the endoscopy. The link you provided after that discusses the gluten challenge (serology), not how to eat before an endoscopy to check for celiac disease. [EDIT: Just re-read it. It does say to eat gluten 2 weeks prior to an endoscopy] The last sentence...
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