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skbird

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Everything posted by skbird

  1. skbird
    Just wanted to mention that when I saw my doctor last month - first time since gluten-free (8 months later) and he said that I am doing the best of anyone he's recommended the diet to in 5 years. I was surprised, as I am not officially Celiac, but I think it's that people just aren't as compliant as I am, nor are they as sensitive to their symptoms. Really...
  2. skbird
    Hi Searcher - I'm curious about your ANA, Rh factor, Raynauds, etc. I was diagnosed several years back as having Raynauds which went away after about 4 years. Recently, my doc was trying to screen me for any other autoimmune stuff and found I had a positive ANA (1:320) and a nucleolar pattern. My Rh factor was negative. At about the time of the test my...
  3. skbird
    Is this the new menu? I heard they were making some changes this summer. Stephanie
  4. skbird
    My insurance may have covered some of it but I have a weird plan - only get the first $500 a year covered, then I'm on the hook until $3,500 so I didn't bother. But I did use some of my cafeteria plan funds (from work) to pay for it, and that was ok. Stephanie
  5. skbird
    Yeah, what a disappointment, dreaming about eating forbidden Chex Mix! I never liked it anyway! When I first stopped eating nightshades (potatoes, tomatoes, peppers, eggplant) I used to dream of eating pizza and Mexican food. You'd think by now I'd learn to enjoy these dreams. My husband shakes his head and says it's sad that even in my dreams I'm worried...
  6. skbird

    ARCHIVED Chest Pain

    skbird replied to jknnej's topic in Related Issues & Disorders

    Last night, a friend was over when I had a small chest pain attack and she immediately quizzed me on it and said it sounded a lot like when she has pleurisy. FWIW, that is also common in scleroderma. Sigh. Well... I guess I'll know a lot more next week (I hope!) when I have my rheumatologist appointment. Stephanie
  7. skbird
    YES! The other night I was having this highly detailed dream about making Chex Mix. Which I think I only did once in my life anyway. I got it all done, had the huge bowl (like you would see in the ads on TV) on my lap, feet on an ottoman on the couch, watching tv, and I was halfway through the bowl when I suddenly freaked out! I ran into the bathroom to...
  8. skbird
    Hi Mike - Welcome! I also figured out my gluten intolerance by going low carb. I was so happy until I found low carb bread (what is that stuff, like 99% gluten???) I have the microscopic colitis gene but don't believe I have MC, thankfully! But I have read about it and how much it benefits from a gluten-free diet. Not everyone here is Celiac -...
  9. skbird
    PS in case any of you were sad for me, chocolate does not seem to have an adverse effect on me. But I don't eat a ton of it and when I do I get the really good stuff (dark chocolate!!!) so maybe I'm avoiding some of the mold... Stephanie
  10. skbird
    No problem. I'm kind of excited because it explains a lot of adverse food reactions I have. I hope it helps someone else, too, because I have not found a good site that puts it all together. :) Stephanie
  11. skbird
    Mel and I have been talking about this on another thread - Fit and similar sprays have citric acid in them and citric acid is mainly made from fermenting a sugar with aspergillus niger, which is a mold. Many restaurants use sprays/rinses like these because they clean the veggies well and don't contain sulfites (illegal). I used to get sick after eating salad...
  12. skbird
    Actually, I think the "edumacated" part was a Homer Simpson. He throws "ma" in the middle of a lot of words, including "educated/edumacated" and "saxophone/saxamaphone." At any rate, I am sorry to hear of such a limited diet but can understand the refining project. I keep finding more and more things that cause me problems when I eat them. I'm really tired...
  13. skbird
    Here's some egg replacer info I got, don't have the source (sorry) but I haven't tried it much... I can't use the EnerG stuff because it has potato in it so I have no experience there to share. I like the idea though of using flax meal - adds fiber and omega 3. Sorry it was a bummer! I am too familiar with that experience... Steph
  14. skbird
    I heard Maggianos now is offering rice pasta. You might want to ask about that next time you are there. The closest one to me is 4 hours so I probably won't be going anytime soon. Anyway, something to ask about. Stephanie
  15. skbird
    PS saccharine is not banned at this point in time. I can still buy (or did last year) diet tonic water using saccharine. It is less harmful to me than aspartame or splenda. Stephanie
  16. skbird
    I like the rant about soda not being a food. It's not. I know it's tasty and I used to drink a lot of diet Cokes back in the day but I can't stomach it now. I can barely stomach plain soda water - the carbonation screws up my digestion. Just wanted to point out that maybe it took 24 cans of soda a day to give the mouse or rat cancer but cancer isn't...
  17. skbird
    Oh, I love Mary's Gone Crackers originals!!! Those are DELICIOUS! I got a non-gluten-free friend hooked on them this past weekend... Omega 3s is a great idea. Helps me a lot. I take fish oil, flax oil, and flax meal on a daily basis. I also eat salmon at least weekly and usually wild caught Pacific salmon. I have noticed a lot of improvements in my mood...
  18. skbird

    ARCHIVED Chest Pain

    skbird replied to jknnej's topic in Related Issues & Disorders

    Scleroderma is an autoimmune connective tissue disease, like lupus and rheumatoid arthritis. It is characterized by thickening, stiffening skin, especially on fingers, arms, face, and can occur other places in the body. Internal organs can be affected. I don't have any skin problems but do have achy joints and knuckles in my hands, sometimes in my feet...
  19. skbird
    Generic for Librax is this: 5 mg chlordiazepoxide hydrochloride and 2.5 mg clidinium bromide Your doctor must write that on the rx paper. My doctor had written my script for Librax and I asked at a few pharmacies and they said there was no generic - Librax was recently reformulated. But they said if I asked him to re-write it like above, they would fill...
  20. skbird
    I don't have either of the Celiac genes either, and my score was 9 for the IGA and 7 for the Antitissue Transglutaminase but I had been gluten free for 5 months at that point and Dr. Fine at EnteroLab recommended I stay off gluten anyway. I do have a very positive dietary response so that helps. In fact, I am DQ1 - subtype 6 as well, and that is known...
  21. skbird

    ARCHIVED Protien Bars

    skbird replied to rogue1's topic in Sports and Fitness

    Michelle - are you looking for one with low sugar? Organic Food Bar is really good (the one with chocolate chips) but isn't low sugar (though it isn't high like most other regular ones, either). It has agave nectar in it, and dates, but it tastes better than a Lara Bar (I know how much you love those! ) Open Original Shared Link Stephanie...
  22. skbird
    I used to take hyosciamine. It sort of helped me, but not greatly. I am now taking a generic version of Librax and it seems to help more than hyosciamine did. It contains a med that makes your gut relax as well as a sedative - doesn't quite put you to sleep but helps if you are anxious about how you are feeling. GasX used to be my mainstay - I always had...
  23. skbird

    ARCHIVED Chest Pain

    skbird replied to jknnej's topic in Related Issues & Disorders

    My dad has mitrol valve prolapse. I have asked my doctor about this because I've read it can be genetic but he didn't seem concerned. (sigh, isn't that the way most docs are?) I am wondering more about angina at this point. I just got an appointment for a rheumatologist for next week because of my high ANA titer level in my arthritis test last month. I...
  24. skbird
    Yeah, I've gone off of vinegars before as well as other foods - it gets confusing as to why I stop which food! I have been having gluten dreams lately - first time in a while. Don't know what it means but I'll be doing something like eating a huge batch of Chex Mix and suddenly realize the wheat and wonder if I should try to make myself throw up or...
  25. skbird
    Thanks for the heads up! I go through from time to time (used to live in Sac). I had read a restaurant in Davis was going gluten-free but didn't know which one. Thanks! Stephanie
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