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skbird

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Latest Celiac Disease News & Research:

Everything posted by skbird

  1. skbird

    ARCHIVED Gp Referring Me To Gastro

    skbird posted a topic in Doctors

    Earlier this summer (June) I had gone to my GP to basically brag about how well going gluten free was going for me and could I just get some basic tests for autoimmune stuff just to make sure nothing else was going on. I then tested neg on all thyroid stuff and most arthritis stuff but had a positive ANA so my GP sent me to a rheumy who tested me for everything...
  2. skbird

    ARCHIVED Acid Reflux

    skbird replied to jknnej's topic in Related Issues & Disorders

    I don't believe I ever had acid reflux before going gluten-free. But now when I get glutened and when I eat other things that affect me poorly, I seem to be prone to it. I went through a phase this summer where I was popping Pepcids all the time. But I'm not sure that was the answer for me, either. I never got the weird voice but my throat did seem to feel...
  3. skbird
    Carbohydrates can cause fluid retention, too, and bloating. For example, when I don't eat starch on the plane, I don't swell up in my legs, but I do otherwise. Can you eat eggs? Try going on an egg, cooked veggies and cooked fruit diet for a few days, say away from grains of any kind, and see if that helps. Also, chicken and fish should be ok. Whenever...
  4. skbird
    NO kidding on the Quinoa! I just finished eating my bowl of hot quinoa flakes with bananas and peanut butter (the pb was a new idea, and it totally rocked!) - such a great breakfast! Stephanie
  5. skbird
    I've seen in my health food store one by Nature's Hilights - I can't eat it because it has potatoes in it. But someone, I think Glix recommended it. I was interested because the company is in my little town in Chico, what are the odds? I contacted them to ask if they could make a potato free one but never heard back. They don't have a working website. Glix...
  6. skbird
    Also, Food For Life has brown rice tortillas. I haven't seen or tried them yet and have read mixed reviews, but if you can find them, that's another option. I've been on the lookout because I am avoiding corn... Stephanie
  7. skbird
    Quinoa is definitely gluten free. Some grains like this are suspect because the facilities may also handle other gluten grains. I know that some countries don't consider all gluten free grains to be gluten free but quinoa definitely is. I eat quinoa flakes for breakfast often - sort of close to oatmeal. Stephanie
  8. skbird
    Here's something I just posted to another thread: Maybe that explanation will help? Stephanie
  9. skbird
    Many soups, especially cream soups and cheese soups, have flour as a thickener or a stabilizer (sometimes the milk part separates from the broth, etc). If you make it yourself, your regular recipe might not contain it. But a lot of commercially prepped stuff has flour in it - in a surprising amount of things, actually. Soup is probably going to be off...
  10. skbird
    I just got my triumph dining cards and they are looking pretty cool! I have to say I am impressed - I didn't want to pay but my brother is getting married to a Chinese girl and her family does lots of eating at Chinese restaurants and the reception will likely be at a restaurant, as well (her brother's was, too). So I thought I'd cover my bases and see if...
  11. skbird
    It's funny about corn - when I eat it, I think, boring! But the more I eat it, I crave it, I dream about it, I create entire meals with it (polenta with corn nibs thrown in is delicious!!!) and I just get out of control. It's weird. That's a red flag for me. I'm glad that description works for you. I think I read that somewhere else so I can't take...
  12. skbird
    Hi Rachel - My approach to reintroducing foods is to stay off for a few days, say a week, then start bringing small amounts back in. If problems persist, then back off of them I go. If I was still feeling bloated, I would just wait a little longer. Make a deadline for yourself, say, I will stick to my mimimal diet for, 2 weeks (or a month or whatever...
  13. skbird
    Also, if you want the minimalist approach, a good lotion for hands, body and face, as well as a leave in hair conditioner (if used sparingly!) is virgin coconut oil. There's a little learning curve with it, meaning how much you need, but it's great stuff. I don't use face lotion in the summer but in winter I put that on and it soaks right in and keeps my...
  14. skbird
    Hey Jen - Have you tried Open Original Shared Link yet? Their lotion is pretty heavy duty... I can't use it on my face but on my hands, before going to bed, it's pretty strong stuff. Also no chemicals, parabens, etc. I have had a hard time finding shampoos and stuff that are gluten free and also free of parabens that actually don't dry my hair out but...
  15. skbird
    Sigh... lovely, lovely clam chowder, especially with oyster crackers floating in it... mmmmmm.... Darn, if it weren't for the gluten in the oyster crackers, the potatoes in the soup or the clams... well, I could eat it, darn it! I have to admit I have really gotten into smelling other people's food. It does seem to help sometimes... Stephanie
  16. skbird

    ARCHIVED New Symptom

    skbird replied to LRgirl's topic in Coping with Celiac Disease

    While not everyone gets worse or more sensitive the longer they are off gluten, many still do. I'm one who is way more sensitive. I'm also that way about one of my other food intolerances - nightshades. I used to eat tomatoes and potatoes a lot, also peppers, and I guess I did feel sick a lot but didn't figure it out until 6 years back. Now I can get sick...
  17. skbird
    Hi Rachel - I'm from Chico, moved away a couple of times, but keep coming back. No St. Francis for me... It's funny, I have two or three friends who think I'm a dead ringer for a Stephanie they know. This Stephanie must really get out! And yeah, I changed my avitar - the only one was getting on my nerves. And then now this one is really big - don't...
  18. skbird
    Jnkmnky - hahahaha! I was thinking about that after I posted the depression bit, and what's really funny is that picture is me *before* going gluten free, surprisingly! I thought, "no one's going to believe me when I say I get really depressed!" oh well, nothing wrong with smiling about it all, right? Stephanie
  19. skbird
    I've read a few testimonials about cabbage soup being really healing on the gut. Take a cabbage and chop it finely, toss into a big pot and add enough water to cover, add onions, salt, pepper, other spices if you want (I add carrots and chicken broth) and simmer for an hour. I'm not very exact with recipes but this one is pretty easy to wing. Taste it and...
  20. skbird
    I know it will, and just imagine how much more peaceful you'll feel then! And happier! Just trust in that you will get there. Feel free to email me if you have any questions. Take care Stephanie
  21. skbird
    Rachel - I was really confused about the gene stuff, too, at first. Kind of like I got it but not really, and then when I got my results and they weren't either of the two main genes, I was really confused and upset even, because I really wanted an answer. I really wanted to be classified or diagnosed because I guess I thought that would help me and other...
  22. skbird
    Hi - I just wanted to chime in, I don't have a Celiac gene and I didn't have malabsorption but I have really bad symptoms when I get any amount of gluten in me. I have also seen some other people on this board report malabsorption with no Celiac gene. What your gene results mean can be boiled down to: you have DQ1 and DQ3. DQ1 is often associated also with...
  23. skbird
    The problem is that Teflon pans get scratches and gluten can get stuck in the scratches and be hard to remove. I don't know what the amount is that can be left as residue in these scratches but for myself just don't use them anymore. I did, however, use a cast iron pan at my uncle's house and got really sick off of that (they use soy sauce a lot). I think...
  24. skbird
    Hi Jan - I'm sorry to hear that you don't have any support where you are. That is really unfortunate. Hopefully, you do know that you can't have a piece of birthday cake every now and then... what crummy advice for a doctor to give! Yikes! Have you been reading through here long? There is so much good information here that should really help you...
  25. skbird
    Hi Mathilda - I have not been tested but I have experienced the same thing. I love prawns and all shellfish. At some point though I discovered that peeling them raw (also cleaning crab) causes my hands to hurt and get a rash. My husband started doing the work for me until someone saw him cleaning my crab for me and asked why I would put something in my...
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