
LivesIntheSun
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by LivesIntheSun
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That's great news about your eyes- something similar happened to my sister. She had terrible problems with dry eyes for years and visited a host of doctors, none of whom could help. She just had to suffer with it and use eye drops and wear dark glasses. When she saw the difference going gluten-free made to she she decided to try it for herself and her eyes...
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ARCHIVED Darn Near Narcoleptic, Glutened Symptom?
LivesIntheSun replied to Aphreal's topic in Coping with Celiac Disease
Gluten makes me 'sleep for England'. In the years before I found out I would wake up in the morning, have breakfast (toast...) then intend to just lie back down for a few minutes (I'd always sleep right through til lunchtime), get up and have lunch (a sandwich), then sleep again til 4 or 5pm. I'd go back to bed at 10pm and sleep til morning. What a waste... -
ARCHIVED Do You Lose Your Marbles?
LivesIntheSun replied to raisin's topic in Coping with Celiac Disease
Yessss! Me too! I go 'crazy'. I'm normally calm, easy-going and very polite. After eating gluten I'm just foul to be around- I can't cope with anyone in my space, I cry and have rages, I feel like I'm wading through treacle just to get on with my daily chores. I tend to completely over-react to things that normally wouldn't affect me. Like someone pushes... -
Me too :-( As if being gluen-free wasn't enough hard work I need to heal my gut and I'm fed up, especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain. If anyone wants to study the issue or work together PM me.
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ARCHIVED Is Anyone Else Contastntly Hungry Or Craving?
LivesIntheSun replied to HS7474's topic in Coping with Celiac Disease
Good morning! No, I don't test my blood sugar, I do it purely on how I feel. If I'm able to concentrate, have enough energy to do tasks, and my mood is even then I know its ok. If I'm a bit shakey, can't think straight, I have out-of-control cravings and I'm irrationally irritable or weepy, then my blood sugar has dropped. It shares some symptoms with... -
ARCHIVED Is Anyone Else Contastntly Hungry Or Craving?
LivesIntheSun replied to HS7474's topic in Coping with Celiac Disease
I agree with Ravenwood glass about the proteins and fats. It sounds like you need to work very hard to balance your blood sugar (when it drops you crave sweet things). Some people (including me) have veeery delicately balanced blood sugar- I can't handle any type of refined starch (white rice, gluten free breads or pastas etc), sugar, honey. Even quinoa,... -
It might help you to know that I used to be ADDICTED to bread. I would try and incorporate it into all my meals, always volunteer to go to the bakery so I could eat it hot, when people asked what I would have as my final meal it would be 'bread', without a doubt. Cheese bread, olive bread, soda bread, seed bread.... you name it. I've now been gluten-free...
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ARCHIVED Please Help My Sister By Sharing Your Story
LivesIntheSun replied to revenant's topic in Coping with Celiac Disease
Hi Revenant, I thought of something to try- you can get the Biocard blood test (Open Original Shared Link) on Ebay, and probably in lots of other places. It tests for IgA tissue transglutaminase antibodies. You squeeze some blood from your finger into a test tube and get an instant result. It got a very positive write-up in the celiac journal. I don't... -
ARCHIVED Did You Have Weird Symptoms When You Went Gluten Free?
LivesIntheSun replied to CathyG's topic in Coping with Celiac Disease
I felt terrible for about a week- I was shakey, dizzy, very very irritable, and I had to bed at 7pm for a few nights. I remember fighting with myself not to be as rude to people as I felt like being, and I remember standing up and falling back down again, and my workmates buying me energy drinks because they were worried about me. The tiredness and dizziness... -
ARCHIVED Latin America- Heeelp!
LivesIntheSun replied to LivesIntheSun's topic in Introduce Yourself / Share Stuff
Many thanks for your reply. I have done some internet research but so far I haven't found any groups in Colombia. I did check out the Panama group though, and I have written to them to see if they have any contacts in Colombia. How is your experience of being celiac in Panama? -
ARCHIVED How Many People Are Actually Self-diagnosed?
LivesIntheSun replied to no-more-muffins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Like many people here I feel extremely let-down by my doctors' inability to twig on in the face of what now seem like some pretty obvious symptoms- recurrent canker sores, total exhaustion, severe depression since childhood. Medicated (ineffectively) for the depression, and told to go away and deal with the canker sores and tiredness, they didn't know why... -
ARCHIVED Gluten-Free Makeup
LivesIntheSun replied to precious831's topic in Coping with Celiac Disease
A very nice site for people in the UK Open Original Shared Link Go to 'Shop' on the left-hand side. A most of it is gluten-free, you can eaily compare prices, ingredients clearly listed. -
ARCHIVED Restuarant And Post-Glutening Advice
LivesIntheSun replied to Almendra's topic in Coping with Celiac Disease
What a shame, I'm sorry. When this happens to me I cancel whatever I can cancel, try and just do the bare minimum at work, and tell myself that it will only be 3 days, that I will feel better soon (it always takes 3 days for me to go back to normal). I tell myself not not take the craziness and the depression seriously, try and observe it from the outside... -
ARCHIVED I've Been Gluten-Free For A Year, But Still Have Many "issues"
LivesIntheSun replied to Cinnamongirl's topic in Coping with Celiac Disease
All of this sounds like great advice. From my own experience regarding anxiety, I would recommend working hard on your blood sugar levels, I guess the avoidance of grains which precious is doing would help a lot for this. The reason is that if your blood sugar drops, then your adrenal glands are stimulated (which can cause anxiety attacks). So you need... -
ARCHIVED Gluten Symptoms And Monthly Cycle?
LivesIntheSun replied to a topic in Coping with Celiac Disease
Hey, I don't get bowel symptoms from gluten but I sure as hell do from my period! I get all windy a couple of days before and then on the first day of my period I get cramps that are out of this world and D, I often have to spend a few hours in the bathroom suffering. Yhe trick for me is to take some pain killers as SOON as i feel the SLIGHTEST cramping... -
ARCHIVED Questions For Those That Have Done An Elimination Diet
LivesIntheSun replied to cahill's topic in Food Intolerance & Leaky Gut
It may be that you are not actually intolerant to rice as such, rather that it sends your blood sugar wild. That is certainly the case for me, if I have rice at lunchtime for example I want to sleep all afternoon and I feel generally lousy. It seems that a lot of us are struggling with a variety of factors- food intolerances, hypoglycemia, candida... It's... -
ARCHIVED My Little Curiosity Poll
LivesIntheSun replied to conniebky's topic in Coping with Celiac Disease
I go 'mental' and I get a canker sore in my throat -
ARCHIVED What Are Your Symptoms When Glutened?
LivesIntheSun replied to catarific's topic in Coping with Celiac Disease
I get an ulcer in my throat a couple of hours after eating the gluten and feel totally exhausted. The next day I feel depressed and get into rages or crying spells at the slightest (or no) provocation, I need to sleep all day and I can't think clearly. -
ARCHIVED Latin America- Heeelp!
LivesIntheSun replied to LivesIntheSun's topic in Introduce Yourself / Share Stuff
Hi MotMot, Many thanks for your reply, I will go and check out the Chinese stores. They sell yukka flour here, which might be worth experimenting with too. I think my cooking is going to have to get a lot better! Enjoy Costa Rica and keep in touch -
ARCHIVED Other People's Negative Reactions
LivesIntheSun replied to LivesIntheSun's topic in Coping with Celiac Disease
Thank you so much for taking the time to reply everyone, you have really cheered me up and motivated me. domesticactivist, I can appreciate the parallel you are drawing with coming out- this is who I am, deal with it. I think I've been semi in denial about just how exageratedly gluten sensitive I am but it keeps banging me over the head, first I had to really... -
ARCHIVED To Test Or Not To Test
LivesIntheSun replied to Carie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello, All I can say is that I'm in the exact same position and I feel for you! I've been gluten free for 4 years now and its transformed my life. It has NOT been easy with certain friends and family members (see my post on 'other people's reacions' in the 'coping with celiac' forum). I would dearly love to have an official diagnosis to please those... -
ARCHIVED Other People's Negative Reactions
LivesIntheSun posted a topic in Coping with Celiac Disease
I would like to ask if anyone else has suffered from sarcasm from others relating to their following a special diet. Here is my situation- I was depressed since I was a young child, and plagued by throat problems. I had my tonsils out, and then got ulcers constantly where my tonsils had been. I had a biopsy on a particularly long-lasting ulcer, which was... -
ARCHIVED Please Help My Sister By Sharing Your Story
LivesIntheSun replied to revenant's topic in Coping with Celiac Disease
I was depressed almost for as long as I can remember, since I was a young child. I was a psychiatric hospital out-patient throughout my teens, and took SSRIs throughout my teens and twenties. I believed I had been 'born wrong' somehow- I felt sad all the time, had panic attacks and rages. I would wake up sad in the morning and cry all day. I also had big...