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LivesIntheSun

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LivesIntheSun

  1. That's great news about your eyes- something similar happened to my sister. She had terrible problems with dry eyes for years and visited a host of doctors, none of whom could help. She just had to suffer with it and use eye drops and wear dark glasses. When she saw the difference going gluten-free made to she she decided to try it for herself and her eyes...
  2. Gluten makes me 'sleep for England'. In the years before I found out I would wake up in the morning, have breakfast (toast...) then intend to just lie back down for a few minutes (I'd always sleep right through til lunchtime), get up and have lunch (a sandwich), then sleep again til 4 or 5pm. I'd go back to bed at 10pm and sleep til morning. What a waste...
  3. Yessss! Me too! I go 'crazy'. I'm normally calm, easy-going and very polite. After eating gluten I'm just foul to be around- I can't cope with anyone in my space, I cry and have rages, I feel like I'm wading through treacle just to get on with my daily chores. I tend to completely over-react to things that normally wouldn't affect me. Like someone pushes...
  4. Me too :-( As if being gluen-free wasn't enough hard work I need to heal my gut and I'm fed up, especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain. If anyone wants to study the issue or work together PM me.
  5. Good morning! No, I don't test my blood sugar, I do it purely on how I feel. If I'm able to concentrate, have enough energy to do tasks, and my mood is even then I know its ok. If I'm a bit shakey, can't think straight, I have out-of-control cravings and I'm irrationally irritable or weepy, then my blood sugar has dropped. It shares some symptoms with...
  6. I agree with Ravenwood glass about the proteins and fats. It sounds like you need to work very hard to balance your blood sugar (when it drops you crave sweet things). Some people (including me) have veeery delicately balanced blood sugar- I can't handle any type of refined starch (white rice, gluten free breads or pastas etc), sugar, honey. Even quinoa,...
  7. It might help you to know that I used to be ADDICTED to bread. I would try and incorporate it into all my meals, always volunteer to go to the bakery so I could eat it hot, when people asked what I would have as my final meal it would be 'bread', without a doubt. Cheese bread, olive bread, soda bread, seed bread.... you name it. I've now been gluten-free...
  8. Hi Revenant, I thought of something to try- you can get the Biocard blood test (Open Original Shared Link) on Ebay, and probably in lots of other places. It tests for IgA tissue transglutaminase antibodies. You squeeze some blood from your finger into a test tube and get an instant result. It got a very positive write-up in the celiac journal. I don't...
  9. I felt terrible for about a week- I was shakey, dizzy, very very irritable, and I had to bed at 7pm for a few nights. I remember fighting with myself not to be as rude to people as I felt like being, and I remember standing up and falling back down again, and my workmates buying me energy drinks because they were worried about me. The tiredness and dizziness...
  10. Many thanks for your reply. I have done some internet research but so far I haven't found any groups in Colombia. I did check out the Panama group though, and I have written to them to see if they have any contacts in Colombia. How is your experience of being celiac in Panama?
  11. Like many people here I feel extremely let-down by my doctors' inability to twig on in the face of what now seem like some pretty obvious symptoms- recurrent canker sores, total exhaustion, severe depression since childhood. Medicated (ineffectively) for the depression, and told to go away and deal with the canker sores and tiredness, they didn't know why...
  12. A very nice site for people in the UK Open Original Shared Link Go to 'Shop' on the left-hand side. A most of it is gluten-free, you can eaily compare prices, ingredients clearly listed.
  13. What a shame, I'm sorry. When this happens to me I cancel whatever I can cancel, try and just do the bare minimum at work, and tell myself that it will only be 3 days, that I will feel better soon (it always takes 3 days for me to go back to normal). I tell myself not not take the craziness and the depression seriously, try and observe it from the outside...
  14. All of this sounds like great advice. From my own experience regarding anxiety, I would recommend working hard on your blood sugar levels, I guess the avoidance of grains which precious is doing would help a lot for this. The reason is that if your blood sugar drops, then your adrenal glands are stimulated (which can cause anxiety attacks). So you need...
  15. Hey, I don't get bowel symptoms from gluten but I sure as hell do from my period! I get all windy a couple of days before and then on the first day of my period I get cramps that are out of this world and D, I often have to spend a few hours in the bathroom suffering. Yhe trick for me is to take some pain killers as SOON as i feel the SLIGHTEST cramping...
  16. It may be that you are not actually intolerant to rice as such, rather that it sends your blood sugar wild. That is certainly the case for me, if I have rice at lunchtime for example I want to sleep all afternoon and I feel generally lousy. It seems that a lot of us are struggling with a variety of factors- food intolerances, hypoglycemia, candida... It's...
  17. I go 'mental' and I get a canker sore in my throat
  18. I get an ulcer in my throat a couple of hours after eating the gluten and feel totally exhausted. The next day I feel depressed and get into rages or crying spells at the slightest (or no) provocation, I need to sleep all day and I can't think clearly.
  19. Welcome to the site. :)

  20. Hi MotMot, Many thanks for your reply, I will go and check out the Chinese stores. They sell yukka flour here, which might be worth experimenting with too. I think my cooking is going to have to get a lot better! Enjoy Costa Rica and keep in touch
  21. Thank you so much for taking the time to reply everyone, you have really cheered me up and motivated me. domesticactivist, I can appreciate the parallel you are drawing with coming out- this is who I am, deal with it. I think I've been semi in denial about just how exageratedly gluten sensitive I am but it keeps banging me over the head, first I had to really...
  22. Hello, All I can say is that I'm in the exact same position and I feel for you! I've been gluten free for 4 years now and its transformed my life. It has NOT been easy with certain friends and family members (see my post on 'other people's reacions' in the 'coping with celiac' forum). I would dearly love to have an official diagnosis to please those...
  23. I would like to ask if anyone else has suffered from sarcasm from others relating to their following a special diet. Here is my situation- I was depressed since I was a young child, and plagued by throat problems. I had my tonsils out, and then got ulcers constantly where my tonsils had been. I had a biopsy on a particularly long-lasting ulcer, which was...
  24. I was depressed almost for as long as I can remember, since I was a young child. I was a psychiatric hospital out-patient throughout my teens, and took SSRIs throughout my teens and twenties. I believed I had been 'born wrong' somehow- I felt sad all the time, had panic attacks and rages. I would wake up sad in the morning and cry all day. I also had big...
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