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nikki-uk

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Everything posted by nikki-uk

  1. nikki-uk
    I think they both mean pretty much the same thing. In the dictionary definition of syndrome is as follows; 'A set of symptoms or conditions that occur together and suggest the presence of a certain disease or an increased chance of developing the disease'. Either way you look at it celiac disease can be frustrating,inconvenient and sometimes...
  2. nikki-uk
    Hi Ann,yes my husband took folic acid except on the day he took the mtx. Didn't make any difference-terrible nausea.He stuck it for a month but was losing so much weight(he didn't have any to lose as the celiac disease had left him seriously underweight)that he had to stop. Good to know it's giving you some relief
  3. nikki-uk
    My husband was dx with psoriatic Arthritis 4 yrs before the coeliac. He was neg to rheumatoid factor. He has been suffering from back pain so rheumy sent him for spinal x-rays and a dexa scan. Doc thinks it's either AS or Osteoporosis. Unfortunately hubbie couldn't tolerate the Sulphasalazine (vomiting) He also couldn't tolerate Methotrexate...
  4. nikki-uk
    That's exactly what my hubbie does at the moment-nods off after taking kids to school,wakes up around 3o clock when they come home. He's been doing this for around 4 weeks now.We all went down with a flu type virus back then,but whereas the rest of the family is back to normal,the virus seems to have left him foggy and fatigued
  5. nikki-uk
    -SIGH- I'm sorry to disappoint you,but the situation here is much the same regarding medics. My husband was dx at 40yrs(dx is nearly always by biopsy in the UK)-by that time he was seriously ill.(I also think he's had celiac disease since childhood-always been very skinny,fatigued easy etc) He's been seeing a gastro for around 18months for burning...
  6. nikki-uk
    I was trying to explain this to my 16 yr old son (who has symptoms and we want to get tested) He wanted to know the chances of him having celiac disease.(His Dad has biopsy proven celiac disease-no gene test though) I (tried) to explain to him that assuming his Dad has one of the two HLA markers that predispose you to celiac disease,he may have passed...
  7. nikki-uk
    Yes there are plenty of Coeliacs in the UK who eat Codex on a regular basis and have had biopsies that were ok.Not sure about long term though(20yrs+) There is a heated discussion about this subject on a UK board(scroll down to Zero Gluten Movement )Open Original Shared Link
  8. nikki-uk
    Thanks Patti,he's doing okay! I tend to treat the whole Codex issue much like the Oats issue-some seem to get away with it-some don't, but hubbie prefers to err on the side of caution and not chance it It's enough to make your head ache!
  9. nikki-uk
    See my attempt of an explanation in this thread!Open Original Shared Link Sorry the link didn't work-but my explanation of UK wheatstarch is in gluten-free Travel 'Definition of Gluten Free in Europe'
  10. nikki-uk
    In the UK we have a thing called Codex Alimentarius,(Codex A)Wheat Starch Alot of 'replacement' foods(breads,biscuits etc) contain Codex A,but not all. These foods are still labelled gluten-free as definition of Codex A means ''Less than 200 parts per million'' Coeliac UK deem Codex A as safe for 'most' coeliacs(whatever 'most' means) They advise...
  11. nikki-uk
    This is a top tip for removing pet hair of your clothes or cushions etc-(My cat's are forever snuggling down on my best cushions!) Put rubber gloves on (the kind you put on to do the dishes)and wipe your hand over the 'hairy' article. The fur is attracted to the rubber(it's a static thing I think)and you end up getting loads of fur off. Good for cleaning...
  12. nikki-uk
    Well that's just not good enough!LOL Only joking!
  13. nikki-uk
    No,she's Princess Michael of Kent-so married to Prince Michael-not sure who he is or how he's related to the Queen.(Gosh and I'm British-not so hot on British royalty! ) Anyway-she is a coeliac. Terence Stamp (british actor)however is Wheat Intolerant not a coeliac (although who knows,maybe he didn't get tested)and he has a food range sold in the UK...
  14. nikki-uk
    Is it just me or is there a post pinned in 2 topic areas. The post is called 'celiac symptoms without the gene' and it's in Coping with celiac disease and Post Diagnosis
  15. nikki-uk
    You may want to have a look at this site Open Original Shared Link It can tell you what the abbreviations mean,and what they are testing for
  16. nikki-uk
    My husband recently got caught out with envelopes! Resulted in terrible headache,4 trips to the loo,and night sweats. Oops!
  17. nikki-uk
    Yeah,I read that too and thought 'What??!!' When my hubbie was at his illest before diagnosis of celiac disease he was admitted to hospital for the gastro to run a load of tests. Meanwhile,I was researching all his symptoms on the internet. I kept on coming back to leaky gut,but docs don't recognise it. I am convinced that because my hubbie went many...
  18. nikki-uk
    I sympathise with you!.It is mad isn't it? I wish there was an easier way of testing! My son is currently on a waiting list to have a biopsy(weak positive bloods)-so we have to keep him on gluten-but I hate it,It goes against the grain(no pun intended!) to actively feed your child something you KNOW is making them ill Take comfort in the fact...
  19. nikki-uk
    -Yes,you do have to be eating gluten for the blood test to show positive. Unfortunately if your daughter has been gluten free (or even just wheat free) for a while it's unlikely that she would have enough antibodies in her blood to show positive. Hope that helps
  20. nikki-uk
    I just wondered how many years this board has been up and running-I see now that there are over 7000 members(!). Are there any members who have been around from the start-how popular was it in the beginning,and most importantly how on earth did you manage before? The internet's a great thing,stops you feeling isolated and in turn helps us all 'cope...
  21. nikki-uk
    I agree with ChelsE, Whole wheat pasta (which is made from Durum Wheat) has a high content of gluten. I am trying to top up my son's gluten content in his diet(waiting for biopsy) ,and where possible I try to stir some wheat flour into soups,casseroles and porridge. Good Luck
  22. nikki-uk
    Lol! Since my husband was dx we've not had gluten in the house(cleared out the cupboards)- however our son is waiting for a biopsy(inconclusive bloods) He unknowingly avoids bread cake,any gluten so I thought I would buy some plain wheatflour to stir into porridge and the like. All the way home from the shop I was thinking 'please don't burst'! ...
  23. nikki-uk
    A big positive has to be a healthier diet,-more fruit and veg,more fresh food, no processed rubbish. I'm gluten-free but It's my husband who is the celiac,(I went gluten-free to support him)but I found that my skin condition eczema cleared up ! My husband used to get reoccuring(sp?)styes on his eyelids,but none since gluten-free.
  24. nikki-uk
    Hoping someone can clarify something for me. My son was tested last year for celiac disease-and I was told all was ok,(by the nurse on the phone) Today at a follow up appt with paediatrician he went through the blood results with me. My son's ttg was a 7(lab says 8 is positive)so was classed as borderline However,I found out today that his EMA...
  25. nikki-uk
    Hey, we Brit's like to use the 'O' too! Where abouts in Oz are you? My hubbies brother emigrated to Oz 5 yrs ago and now lives in Brisbane-we'd love to visit one day. Glad you found this site-I've found it very informative. Cute cat BTW! Goodaye!
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