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nikki-uk

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Everything posted by nikki-uk

  1. nikki-uk
    My husband was finally dx at aged 40. He too had a neg result on the bloods,but a biopsy showed positive. He has alway's been very thin,and (for as long as I've known him-20yrs!)hardly ever ate any sizeable amount. By the time of diagnosis he could only manage a few mouthfuls(he was very ill),so hardly suprising he got a negative!
  2. nikki-uk
    And I bet you eat much healthier now! Well done
  3. nikki-uk
    So glad you finally got your 'official' dx. I actually think it helps you a great deal psychologically once it's official. Hope you are feeling ok
  4. nikki-uk
    My son had a feeding tube from birth to 2 yrs(because of a heart condition) Even at this young age it was difficult to manage. To pass the tube on a teenager would require some level of co-operation on your daughters part. Docs generally aren't keen unless the patient agrees. Even though he was only a baby ,I used to have to 'pin down' my son to pass...
  5. nikki-uk
    Here in the U.K if you have an 'official' dx(Biopsy) you can get some foods on prescription from your G.P.These items can only be basics such as flours,pizza bases,breads and some biscuits Rules are diferent for the channel Isles.
  6. nikki-uk
    Hi Jen, When I grew the beans I made a frame from bamboo canes up against my fence,attaching them together with garden twine. The gardens here are oblong and have 6 ft fence panelling either side(my own little box!) Mind you the beans grew further than the 6 ft fence,and trailed down over into my neighbours garden.!(free beans for them!) They did...
  7. nikki-uk
    I can't believe I just found this thread! I love my (small) garden-hee hee and I'm getting so excited that spring will be here soon and my bulbs are starting to come up(daffodils and tulips).Thanks to Shirley on a different thread for the tip of putting moth balls down to stop the peskey squirrels digging them up. I also try to grow some veg in limited...
  8. nikki-uk
    My husband did a similar thing after he was diagnosed. He also doubted the diagnosis because he didn't feel anybetter after months.(in denial)! He ate a toasted cheese sandwich and had no reaction at all. Not long after that he had another biopsy taken which showed that his villi had healed a little bit ,but not fully healed. I convinced him that...
  9. nikki-uk
    LOL!That made me chuckle. My husband alway's insisted on 'posh' loo roll all our marriage-now he's dx'd I know why!!!....
  10. nikki-uk
    My husband has been gluten-free now for 16 months and he's still recovering,-admittedly he was very ill by the time of diagnosis though. It can take some adults up to 2 years for their gut to heal and the villi to fully grow back. After 6 months gluten-free my husband had seen no improvement in his health at all,and unfortunately a biopsy revealed...
  11. nikki-uk
    Well I don't know about that!I'm in the UK and people are just as clueless here.!
  12. nikki-uk
    I'm not a coeliac,It's my choice I'm gluten-free. In fact my husband's the coeliac. I went gluten-free(initially) to support him and to make meal times easier. I discovered that my lifelong complaint of eczema cleared up dramatically. Unfortunately, I don't get to cheat though-whenever I have any gluten I go hot and feel sick ,palpitations,and...
  13. nikki-uk
    'The Beagle flies at noon' !!LOL
  14. nikki-uk
    Thanks for asking -He's doing ok. I'll know more when he sees his psyciatrist(sp?) in a couple of weeks. Hope you are well-and keeping outta trouble! Nikki x
  15. nikki-uk
    Oh no,and it's in the thread I started Hey maybe it's the time of year? I need Karen's shell to hide in-tell me when it's safe to come out! Chin up! Karen,I'm loving your 'Mr Canadian Karen' avatar.LOL
  16. nikki-uk
    First of all I'd like to thank you all for your comments. Thought it was about time I let you all know how he is now. Things have calmed down alot-he finally doesn't seem 'manic' anymore. He's sleeping (without sleeping tabs)and his 'agitation' seems to have died down. We have an appt to see my hubbies Psychiatrist next week.I've written out...
  17. nikki-uk
    Blended veg can taste a bit gruesome! What you can do is blend your veg then freeze it in an icecube tray. Once frozen add about 4 cubes to your liquid fruit smoothie and blend again.You won't then be able to taste the veg!
  18. nikki-uk
    This is my husbands only symptom to being glutened. Before being dx he suffered from them really bad!
  19. nikki-uk
    Could he have develped a lactose intolerance? My hubbie started to get terrible headaches and stomach gripes after about 9 months gluten-free. He cut the milk out,and it stopped.Slowly he's tried to re-introduce it-and found he can tolerate small amounts.
  20. nikki-uk
    Hi Jennifer, I was in your shoes 18 or so months ago. My husband was dx with coeliac 18months ago. By the time he was diagnosed he was seriously ill,hospitalized and bed ridden some days. His weight had dropped to 110 pounds and he was in a bad way. When he got the diagnosis,at first we was really pleased,we had finally found out what had...
  21. nikki-uk
    Rachel's story of chest pain is very similar to what happened to my husband. Before diagnosis,my husband was very ill. 3 times we rushed to the hospital because of the chest pains. I was really scared he was having a heart attack. Docs could never explain the cause. I might add my husband suffers from 'panic attacks'-but these were different...
  22. nikki-uk
    It is there, if you scroll down the main page to the bottom and click on 'today's active posts' it's on pg 2. It's not showing on the main board as it hasn't been' pinned'. I'm not sure I understand this properly but here we go.. A member of admin has to 'pin' your message to the relevant subject area. Until it's 'pinned' it won't show on the...
  23. nikki-uk
    Yeah,I've heard that smoking can 'protect' you in some way from inflammatory bowel diseases! Oddly enough,my husband gave up about a year before dx Unfortunately he's gone back to smoking-but I do wonder?......
  24. nikki-uk
    Yep,I know what you mean-it's a learning curve for all our family when my hubby was dx 18 months ago. He was very ill and the docs told me they were looking for Crohn's diease or Coeliac disease.I went home and googled the 2 diseases-and promptly decided that my husband had to have Crohn's as he was far too ill for it to be 'just an intolerance to a food...
  25. nikki-uk

    ARCHIVED Hiccup

    nikki-uk replied to elisabet's topic in Coping with Celiac Disease

    I've used vinegar too!It must be an acid thing. My son that get's the hiccups does not have coeliac disease-at least his tTg was borderline-bowel symptoms continue though. Would any of you consider hiccups as another 'sign' of coeliac?(Along with his foul stools,achey legs, bloated tum,headaches...)
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