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casnco

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Everything posted by casnco

  1. casnco
  2. casnco
    Fortunatly for me my visual migranes are short lived. They have a slow onset as in hours of slightly blurred vision. I almost dont notice it for a while. Then complete loss for only 1/2 hour or less. Rarely do I experience pain. Dull ache is the worst of it. I guess inlight of your suffering I am pretty lucky.
  3. casnco
    I dont blame you, I would want proof also. I do not have children but I am not sure I would want to subject my child to the affects of gluten. If you are not positive you have cut out all cross contamination and unseen gluten you should still test positive if indeed your daughter is positive. But this is just my opinion. Hope others on the board chime...
  4. casnco
    Joni, seeing an eye doctor is not a bad idea. This happens to me also. I can not pinpoint what the exact cause is and I feel confident it is usually a cross contamination. My doctor told me it was a visual migrane. She prescribed a migrane med for me but I do not take it. If it is CC glutening then I know it will pass. mine do not have a severe pain...
  5. casnco
    Great letter! Let us know if you hear any responce.
  6. casnco
    I too am four years diagnosed. Just like you this winter I had a terrable reaction and no known contamination. This reaction lasted four months!!! My skin is still recovering (dermititis herpaformosis). My husband and I read a thread on here about kissing someone who has consumed gluten. So he decided to go gluten free. And suddently I began to feel...
  7. casnco
    If you have a hard time taking pills you can put them in applesauce then take them. You hardly know they are in there. You can crush them first if you like but that will change the taste of the applesauce. Most of the time I put mine in whole. Pudding will also work. Something that you don't chew before you swallow. Good Luck.
  8. casnco
    I purchased a probiotic via a mail order company. I took them for a month and didn't notice any difference. I quit them feeling it was a waste of time and money. Then I went to an herbalist. She told me the probiotic needs to be refridgerated to keep them alive or working, whatever the term is. She gave one that says gluten free and I have been taking...
  9. casnco
    That was my biggest problem also when I went gluten-free. For Breakfast I love short grain brown rice warm with milk and sugar, or with just raw honey. Raw honey because it helps with digestion. Also I have recently started eating a hot cereal called Quinona flakes. Very good and has the texture of Oatmeal. Then there are always fresh fruits and veggies...
  10. casnco
    Unfortunatly I have the same responce to kissing someone who has consumed gluten. What a bummer!!!! Fortunately my hubby has decided to be gluten free with me. Now there is a nice guy!! And he can now have kisses anytime he wants one. I wash my hands before I eat everytime. If I am at work I know I can count on people not being carefull with the microwave...
  11. casnco
    I am certainly no expert. And I could be way off base. But my thought, for what it is worth is you could have just increased your fiber so much your body is having a difficult time handeling it. I have had reactions very similar to what you are describing (minus the hip pain) when I increase my fiber to quickly. Good Luck. I hope you feel better soon...
  12. casnco
    I don't know if you started yet but if it were me, I would definately go with the Pamela's. When I have used the Pamela's mix though I still add baking powder. It makes thinks lighter IMO. Good luck and let us all know, we are waiting with baited breath!
  13. casnco

    ARCHIVED Enzyme To Help

    casnco posted a topic in Publications & Publicity

    On this site I found this article. "Prolyl Endoprotease Enzyme May Allow Patients with Celiac Disease to Safely Eat Gluten on Occasion" The link is below for your review. https://www.celiac.com/st_prod.html?p_prodid=1468 Anyone care to comment? Anyone able to find this enzyme for purchase? Thanks in advance for your input. This sould make for interesting...
  14. casnco
    Deb: Thanks for clearing up Hashi's/Hashimoto's Disease. I will google that and see if my thyroid issues are related. Good luck with your research on the antibodies. It is a shame doctors are so busy/disinterested that we must do our own investigation and practically self diagnose.
  15. casnco
    a couple of yrs. ago I purchased a black mascara. It had hydrolized wheat starch. I sent it back. it could be different now. You should be able to contact the company for a list of ingredients.
  16. casnco
    I just googled hashis and all I found was information on pot. Is there another name for this disorder?
  17. casnco

    ARCHIVED I Am Miserable

    casnco replied to casnco's topic in Dermatitis Herpetiformis

    Wowzer and Joan: Thanks so much for your input. Wowzer. I have more anti itch ream than I knew was available to man! I am taking claritin and it seems to help a little. Joan; I just went to an herbalist on Wednesday. Of course that is not magic and an overnight cure doesn't happen. I have a lot of faith that she will be able to help me. I see a dermitologist...
  18. casnco
  19. casnco
    Sorry you are so miserable. I can totally relate. I am seeing an herbalist today because my DH is out of control. I tried all of the meds you mentioned and have had allergic reactions. I use CALMOSEPTINE barrier cream for my DH. You can order it through your pharmasist.(sp) or go to www.calmoseptine.com Good luck. keep us posted on your successes with...
  20. casnco
    Went last summer with my family and took a picnic lunch. That wasn't new to anyone because as a cost saver we have always done that. Then everyone can have one park treat. Mine was French Fries! They were on the main drag, right after you come into the park. That is all they make there and they are not seasoned! Just plain old fries. Mmmm, nothing...
  21. casnco

    ARCHIVED Maintenance

    casnco replied to casnco's topic in Doctors

    Generic: I just did a steroid taper and a shot of steroid, I cant remember the name right now. They worked great for a short peroid of time but once they were out of my system the itching came right back. Boo Hoo! How long do you do the steroids for and how much do you take?
  22. casnco

    ARCHIVED Maintenance

    casnco replied to casnco's topic in Doctors

    ENF: Your probably right about not being able to anything for us when we get contaminated. Percoset help eleviate the cramping but I don't know any doctor that would prescribe a narotic for prn use. Tee! Hee! I had some left over from my gall bladder surgery and was able to use one when I felt the cramps coming on. I know once they start I can't hardly...
  23. casnco

    ARCHIVED Maintenance

    casnco posted a topic in Doctors

    Hi, I was wondering, after being off gluten for over 3 years, should I see a specialist when my symptoms reoccure? Such as with an accidental glutening? Does anyone on this board see a specialist for maintenance?
  24. casnco

    ARCHIVED Dapson

    casnco replied to casnco's topic in Dermatitis Herpetiformis

    Thanks for the information. I just found out I can not take Dapson because it is a sulfa drug and I have an allergy to sulfa. Bummer. We are going to try tetracycline.
  25. casnco

    ARCHIVED I Am Miserable

    casnco replied to casnco's topic in Dermatitis Herpetiformis

    Thank you both for your suggestions. I called my local natural food store and they recommended me to an herbalist. I am going to contact them this afternoon. I am very greatful for your time and suggestions. Riceguy, can you elaborate on why protien should be avoided? Do you mean animal protien or all protien?
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