Jump to content

beachbirdie

Advanced Members
 View Profile  See their activity

  • Posts

    628

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by beachbirdie

  1. beachbirdie
    Interesting! What kind of doc do you go to? It isn't common for a doc to run something like cortisol without a fight, LOL! To answer your question, the tests sound like the doc is on a hunt for what is causing your symptoms. The CCP antibody is a test specific to rheumatoid arthritis, and the ANA is a test of general autoimmunity. Cortisol is for adrenal...
  2. beachbirdie
    I don't know if this contributes to the discussion or not, but I could not help wondering out loud why the heck we are feeding corn to dairy cows. Cows were not designed to digest corn and don't really thrive on it though it makes them pile on fat in feedlots. I'm thankful to live in an area where I can find local grass fed beef, and we have a...
  3. beachbirdie
    What are your porridges made of? Are they grains? Also...a very common ingredient in foods is soy. You could have a soy sensitivity. I think others have pointed out that the best way to narrow down a dietary problem is to cut out everything and eat only a handful of things that do not hurt. Add things back one by one, waiting several days between...
  4. beachbirdie
    You might try something radically different than what you are doing. The carbs in bread do things to your body that are kind of like a "drug high". They make you feel really good for a little while, then they leave you worse than you were before. In order to break the cycle you are in, you might want to completely give up starch for a while. I don't...
  5. beachbirdie
    I am so sorry you have been through this hell. To answer your questions, yes. Gluten intolerance/celiac diagnoses do not come easily, especially when a patient does not fit the "classic" mold. It is also a grievous thing that emergency medicine providers will pre-judge you because of tattoos and piercings, the added info in your record adds to their...
  6. beachbirdie
    If you have not already done so, I would get copies of the endoscopy report and read it for myself. There are some people here who can help interpret if you felt like sharing it. The doc saying the "intestine was not completely flat" is not very useful except to acknowledge that there IS some damage! If you have damage, and you have antibodies, there...
  7. beachbirdie
    I recently decided to go to modified primal eating/SCD along with my oldest daughter. One of the foods I miss a LOT is pizza. She found a grain-free pizza crust recipe that we tried for the first time last night, we LOVED it! It does not come out with the same soft, stretchy kind of crust that wheat flour makes, it's a little denser but neither is...
  8. beachbirdie
    I am very sorry to hear that this is happening to you. Who is on your team of doctors? What kinds of things have they looked at so far? If you are having arrhythmias that cause you the kinds of troubles you are having, it really is something that needs to be urgently evaluated by a doctor. Do you have a cardiologist? It would not be wise to play...
  9. beachbirdie
    I am so happy for you! Nothing feels quite as good as feeling GOOD! I hope it continues, and it is wonderful to hear that you were able to get help without years of struggle. WOOT!
  10. beachbirdie
    I love cream of rice with butter and pepper, just like grits! Or sprinkle a little cheese. If you want it sweet, I like it with butter and honey. I also make it with milk or half and half, then it's really creamy, kind of like cream of wheat. Make sure your cream of rice cereal isn't actually rancid. I've gotten some bitter, rancid rice cereal...
  11. beachbirdie
    How are they managing your thyroid? I have to ask though it seems like it would be obvious; are you on thyroid replacement? Do they adjust your thyroid by TSH only or do the monitor your free thyroid hormone levels as well? They should be checking Free T3 and Free T4 both, especially since you had partial thyroidectomy. TSH isn't a thyroid hormone...
  12. beachbirdie
    You are not a crazy person looking for non-existent illness. Oh...and I digress for a moment on that one; I do not see celiac as an "illness". A celiac will thrive like anyone else if they are not exposed to gluten. Celiac is a "difference" in how the body responds to certain substances. Keep in mind that this is a really important time in your son...
  13. beachbirdie
    There are some signs of celiac in your child, and your husband's siblings have celiac. The potential is there. It is common for kids to test negative even if they have celiac. Your child is IgA deficient, which really skews the testing; his elevated liver enzymes are consistent with celiac, if they haven't found any other problems with your son, and...
  14. beachbirdie
    Olive oil, lemon, fresh ground pepper! Yummy to me!
  15. beachbirdie
    You also need a total serum IgA, and you need both versions of Deamidated gliadin peptides (DGP IgG and DGP IgA). Unfortunately, getting positive tests from kids is iffy. A lot of kids test negative even if they have the disease. BUT...I wouldn't let that stop me from testing! You should be tested periodically as well since you have a sibling with...
  16. beachbirdie
    I'm not a doctor, but given the experiences of people here, I would say you should assume yourself to be celiac. Your positive EMA is a very specific test to celiac, it is a tissue damage antibody. Your DGP being positive shows your body is reacting negatively to gluten. You have symptoms. Not likely gluten intolerance, gluten intolerance causes symptoms...
  17. beachbirdie
    I'm fairly new to gluten-free living, started exploring a little over a year ago. But one of my dearest friends from high school was diagnosed with celiac back in the days before there was readily available Internet. There was no "online" to order from, and very little available in the stores outside of the vacuum-packed Enjoy-type breads. gluten-free labeling...
  18. beachbirdie
    I don't wonder that you are at your wit's end. You have a lot of misery going on and I'm sorry the medical world can not seem to find a path for you. Not being a medical professional, it is difficult to say anything too specific, and it is also difficult because you've had so many suggestions from so many people, one more might just sound like so much...
  19. beachbirdie
    I lost my dad to cancer, and am losing my mom to her complex of dementia/likely celiac/malnutrition. It is so much more painful watching my mom, because she could go another 5 or 6 years this way. Her mom went this way. It is a VERY long, traumatic good-bye. We do all have to go sometime from something, I always prayed my mom would have a peaceful...
  20. beachbirdie
    Thank you all very much! Little Luke Alastair made his appearance at 9:05 Thursday night, mommy labored about 12 hours. It was hard for her for a bit as she didn't want any medication, but when it came time to push she was quick! The doc almost didn't make it! Dear daughter had only about two more good pushes after the doc arrived, and baby was there...
  21. beachbirdie
    Not me. At my age wouldn't that be a hoot! My youngest daughter is pregnant with her first child, and after reaching the 2-week late stage she is being induced this morning! Finally going to meet my grandson, my very first grandbaby! Excited and scared here, I was drafted for coaching!
  22. beachbirdie
    I don't have time to go dig up references, I'm on my way to the hospital to help my daughter have her baby! Well, on second thought, here's a quick one: Open Original Shared Link There is plenty of literature supporting the connection between "fatty liver" disease and celiac. Fatty liver is also known as non-alcoholic cirrhosis.
  23. beachbirdie
    I'm watching my mom go through the dementia now, and she has possible multiple myeloma or lymphoma, doc can't differentiate it yet. I'm pretty certain she is celiac given other signs her body has given, and I even got her on a gluten free program for a few months. Her caregivers did a good job managing that, but now that my brother is back in mom's life...
  24. beachbirdie
    Some folks just have a high tolerance for alcohol. My husband is one, he couldn't get drunk if he tried (and he HAS tried, LOL). I hope I didn't give the impression that I was disapproving in any way of your daughter's activities. Not at all! I know alcohol is treated very differently in other parts of the world than it is here in the 'states. It...
  25. beachbirdie
    Hi Ruby's mom! Welcome! This is totally off-topic (apologies to the OP) but your mention of Ruby caught my eye...I have two Border Collies, and have had several others over the years. I love them! Glad to hear your Grave's is in remission!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.