Jump to content

bartfull

Advanced Members
 View Profile  See their activity

  • Posts

    3,056

  • Joined

  • Last visited

  • Days Won

    75

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by bartfull

  1. bartfull
    Thyroid problems can cause constipation. Mine is being tested right now. In the meantime I eat lots of nuts - about four or five ounces a day, split up into two doses. One after breakfast and one in the late afternoon. It helps.
  2. bartfull
    I'm not familiar with your story (sorry). Did they do the full panel? I think you should still be eating gluten so in case they want to do a biopsy you'll be ready. I also would go ahead and call the doctor. Sometimes if results are negative they don't call you at all, or they take their time about it. If you call that will also remind them that you're...
  3. bartfull
    I agree with Cycling Lady. It would be good to know for sure. But think about that 75% thing. That means 25% of people who only do two weeks are misdiagnosed. That's a full one quarter. If it were me I would do the full 12 weeks and while you're waiting, shop around for a GOOD doctor who will do the full celiac panel.
  4. bartfull
    Gem, South Dakota is one of those states who chose not to expand medicaid. If I had small children I could get it but I don't. And I couldn't get Obamacare because I make little enough to qualify for Medicaid, if only this state had expanded it. The good news though is that if I'd had the blood work here it would have cost $676. Because I went to Rapid...
  5. bartfull
    Thanks. So I went and I really like this doctor. He ordered the TSH, free T3, free T4, and a sed rate. He believes it's very likely that I do have thyroid trouble but he also is pretty sure there is something else going on. Either lupus or psoriatic arthritis or both. Because I have no insurance we're going to start with the obvious first. He said my...
  6. bartfull
    Unless the ingredients in an oat-based product say "Certified gluten-free oats", I wouldn't eat it. Most oats are contaminated from being grown in the same field, harvested on the same equipment, and stored it the same bins as wheat. Even then, some (but by no means all) celiacs react to certified gluten-free oats. Most gluten-free items that are tested...
  7. bartfull
    Well, my appointment is at 4 o'clock today. And I have no idea how I'm going to pay for all of this. They told me a "simple" office visit is $200 but mine will be more because it will take longer and it's a first visit. Probably around $400. The blood work will be over $600. So it'll end up being over a thousand dollars! Terry said he'd pay for the blood...
  8. bartfull

    ARCHIVED Ouch

    bartfull replied to darlingnea13's topic in Coping with Celiac Disease

    Omaha is one of the few places in the midwest that has great food period. It's no wonder you have so many restaurants with gluten-free menus. But if one lives in a small town, not near a city, restaurants are a definite no-no unless they are owned and run by someone with celiac.
  9. bartfull

    ARCHIVED Ouch

    bartfull replied to darlingnea13's topic in Coping with Celiac Disease

    Perfectly normal. When I get CC'd it takes three weeks before I'm back to myself. I don't remember your original thread but if you haven't done so yet, please go to the Newbie 101 thread in the coping section. It'll teach you how to avoid CC. And if you can possibly do so, stay away from restaurants.
  10. bartfull
    Most companies use corn.
  11. bartfull
    After you've read the U. of Chicago Celiac link, go to the coping section here and read the Newbie 101 thread. Make sure to click on all of the links there too. You may even want to take notes. Then check out the "What's for dinner" thread here. You'll get lots of ideas for fabulous foods and meal you can make. When you're ready to try gluten-free bread...
  12. bartfull
    I hope I put this in the right section. As most of you know I have no insurance. Well a good (dear sweet) friend has offered to pay for lab tests for me. According to Dr. Google I have a lot of the symptoms of hypothyroid - wrist pain and numbness, hip and shoulder pain, thinning hair, lifting nails, fatigue, a NEW rash that looks like eczema, and...
  13. bartfull
    OK, first of all there is no such thing as a gluten allergy. You can be allergic to wheat or to rye or to barley, but not to gluten itself. But allergies are not the same thing as celiac. Celiac is an autoimmune disease. I believe the genetic test you had was probably to see if you had the most common celiac genes. MOST but not all people who have celiac...
  14. bartfull
    I think what you should do is find a good dermatologist who knows about celiac and DH, keep eating gluten, and have a biopsy of clear skin next to an active lesion. If you've been reading the DH section you already know that often, folks with DH will come up negative on the blood tests.
  15. bartfull
    And once testing is completed and you're ready to go strictly gluten-free, do read the Newbie 101 thread here in the coping section. It'll teach you what to expect and how to avoid cross-contamination. And feel free to ask as many questions as come to mind. We're here to help.
  16. bartfull
    Have you been strictly gluten-free since your diagnosis?
  17. bartfull
    It's a shame that you got glutened on vacation but this setback might well have happened anyway. Many many many of us go through a "honeymoon period" when we first start the diet. We start feeling GREAT. And then a couple of months later we start feeling lousy again. It happened to me. It took a long time to get the damage and it will take a long time...
  18. bartfull
    I'm so sorry to hear you are going through this. I wish I could give everyone a bit of my "ostrich syndrome". Over the years I have gotten really good at not thinking about things that would bother most people. Maybe I should call it Scarlett syndrome instead, as in Scarlett O'Hara's famous saying - "I'll think about it tomorrow." I have no insurance...
  19. bartfull
    Thanks for the info. I would never risk eating in a place like that anyway. Even if they DID have dedicated fryers there is too much risk of CC at a place like that. Employees who touch buns also touch french fries. And besides, almost evey time I ever went there or McD's, they screwed up the order in one way or another. I'd never trust them to keep my food...
  20. bartfull

    ARCHIVED Guilt

    bartfull replied to Redhead03's topic in Related Issues & Disorders

    Think about this - because celiac is genetic there is a very strong likelihood that you inherited it from one of your parents. Would you have rather THEY didn't have YOU? Life is so GOOD, even with celiac! As Not Me said, with scientific advances it's only going to get easier, and as Eloise said, she is glad her parents had her. GO FOR IT!
  21. bartfull
    Yeah, I've been on a bunch of cat websites all morning looking it up and I've decided to return these free samples. This stuff is BAD!
  22. bartfull
    It used to be that I couldn't get gluten-free cat food here but a groomer opened up three doors down from my shop and she carries Taste of the Wild. She has given me some free sample bags to see which flavor Patches likes. One is roasted venison and wild salmon, the other is trout and smoked salmon. They also have bison and venison. They sell it for $11 a...
  23. bartfull
    And avoid dairy at all costs! While it's true that many of us can't digest dairy until we are healed, it sounds to me that you may have an allergy to dairy. It often does cause problems with folks who have asthma and is known to increase mucus in the respiratory system.
  24. bartfull
    When I first started I couldn't even eat lettuce. Just about everything set me off. One of the things that helped was going strictly organic for a while. Grocery store sweet potatoes set me running, organic ones did not. Blueberries took almost four years to get back - even organic ones. Corn was my worst enemy and soy was not far behind. White potatoes,...
  25. bartfull
    Can you get copies of the tests he did and post them here? A lot of doctors don't know enough about celiac to do the full panel. But to answer your first question, a lot of us had that wonderful "grace period" where we started to feel great, then backslid. It takes a long time to heal.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.