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bartfull

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Everything posted by bartfull

  1. bartfull
    Keep pursuing this. It's not normal and you need to get to the bottom of it ASAP. We kept goofing around with antibiotics (at my own insistence.) until it was too late. I'm not trying to scare you. It might very well be a bad infection, but mine turned out to be cancer.
  2. bartfull
    Hmm...my affairs in order. OK. Alan on Sunday, Bob on Monday, Steve on Tuesday...Oh, not those affairs. OK, now that I've softened things with a lame joke, the doctor really did say that. Turns out I have terminal cancer. Lymph. "Very advanced". They say they can't cure me but they might (MIGHT) be able to prolong my life. No thanks. There's a reason...
  3. bartfull
    Well I'm generally considered pretty cranky but I guess that's not the same thing...
  4. bartfull
    I'm sorry but those of you who have husbands who blame your illness on you should leave them. NOBODY has a right to belittle someone like that. A husband is supposed to be supportive and CARE about you. If he doesn't, what is the point of being married - so you can have someone to kick around???!!! No matter what your financial situation is, you CAN...
  5. bartfull
    I got curious and went looking. I FINALLY found this: Open Original Shared Link I don't know how accurate it is but it says one cup of grain equals about a cup and a quarter of flour. Somehow that doesn't seem right to me. A cup of grain has a lot of spaces between the grains whereas a cup of flour doesn't. I'd think you'd get much LESS flour, not more...
  6. bartfull
    Hi Goobs, and welcome. It takes quite a while for most of us to feel consistently better. You'll find that you have good days and bad days. As time goes on the good days will become more frequent. My advice to you would be to first, go to the Newbie 101 thread here in the coping section. It'll help you make SURE you aren't getting hidden gluten...
  7. bartfull
    Hi Irene and welcome. I went through a period when I couldn't tolerate high sals. I was at my wit's end trying to figure out what to eat. I finally settled on just a few foods I knew were safe and ate them every single day for every single meal. Boring? You bet! But I stayed healthy. Eventually (like a couple of years?) I started being able to add things...
  8. bartfull
    Cary, the OP DID say a biopsy was scheduled, and that's why she is back eating gluten. I don't know why the cat scan is on tap and I agree it's a lot of radiation but I'm sure the doctor has a good reason to schedule it.
  9. bartfull
    I would start with the Newbie 101 page pinned to the top of the coping section here. You may well be getting cross-contamination. And yes, a food diary. And also yes, try to stick to whole foods. If you must eat processed foods, try to stick to Kraft or Con Agra products because of their labeling policies, or to certified gluten-free foods. And...
  10. bartfull
    I too fall through the cracks. I knew gluten was a problem for me so I came here and learned how To avoid CC, went completely gluten-free, and saw my symptoms clear up. Later on a great free clinic opened here (for a while - they are gone now. ) and the doctor there, based on family history (Mom was a diagnosed celiac), and resolution of symptoms, gave me...
  11. bartfull
    Think about it. The powder is on the shredded or grated cheese to keep it from sticking together. It is moisture that would make it stick together and the powder is there to absorb the moisture. Now, what happens when flour gets wet? It turns to glue, right? So they would never use flour as an anti-caking agent.
  12. bartfull
    I hope you're still staying gluten-free, Prescott. The kefir may have helped speed the healing, but there IS no cure for celiac. It's possible that the damage done from three months on gluten didn't show in the endoscopy but believe me, if you keep eating gluten it will eventually.
  13. bartfull
    When I have no other way to seal an envelope, even if my hands are dirty I can spit on my finger and then run that over the glue. Glad you're feeling better.
  14. bartfull
    No, I'm pretty sure you are safe. However they often want to do a biopsy to confirm should your tests come back positive, so you should stay on gluten until then. Go out and enjoy as many gluten foods as you can right now. Have some good, homemade bread. Have some pizza. And please, think of me while you have some doughnuts.
  15. bartfull
    Yes, think about it. Would you go into a public place and lick a doorknob? Of course not. So why would you lick an envelope that who knows how many people (and other things) have touched? A tiny corner of a paper towel, dampened and run across the surface of the glue will seal your envelope and help you avoid germs.
  16. bartfull
    I think the thing about a kitchen towel is that people often dry their hands on them when they are cooking and there MIGHT be gluten on those hands. OP, have you read the Newbie 101 thread in the coping section? If not you should, and you should also have your parents read it.
  17. bartfull
    Nope, I probably wouldn't eat there again, just as I never ate chocolate pudding again after I got sick on it when I was six years old. The thought of chocolate pudding always turned my stomach after that. BUT, I wouldn't tell everyone else I met to never eat chocolate pudding or it will make them sick. And yes, I DO consider you lucky if this is the...
  18. bartfull

    ARCHIVED in the news

    bartfull replied to frieze's topic in Coping with Celiac Disease

    It crossed my mind immediately too.
  19. bartfull
    Wow, thank you Manasota. I must say though, that if I seem like a loving person it is because I have mellowed with age, and I have mellowed with the gluten-free diet. If you had met me before the diet you would have thought I was one of the grumpiest people ever, because I WAS!
  20. bartfull
    Ian, I lost my best friend, a beautiful female kitty who had sat in the front seat of my car for 1900 miles with me when I moved from Connecticut to South Dakota. After 16 years she up and died and there was no way I wanted another one, at least not right away. But three weeks to the day after I buried her, this happened: (If you click on the "Uh-Oh...
  21. bartfull
    It could happen anywhere. A new employee, someone who didn't get enough sleep last night and forgot to change utensils, who knows. There are lots of places that are normally very good about gluten-free who screw up on occasion. I wouldn't condemn a place across the board for one mistake (although I probably wouldn't eat there again.) But I will say that if...
  22. bartfull
    I'm chiming in late here but I just wanted to mention pets as the ultimate mood booster. If you don't have one, maybe you could visit a friend who does. Or better yet, find the nearest shelter and either volunteer or at least visit and pet the kitties or doggies for a while. Last night I was hurting and couldn't get comfortable because I threw my back...
  23. bartfull
    It sounds to me that it might be contaminated. I wouldn't eat it. But what concerns me more is your statement that you're "beginning to realise the necessity, at the beginning of this diet at least, to be absolutely rigid in my avoidance of gluten, even traces." Erase the "at the beginning of this diet at least", and you've got it right. If you have...
  24. bartfull
    I gave up eating ice cream. I had been eating Blue Bunny All Natural Vanilla for YEARS without any problems but one batch was contaminated from someone not cleaning the line well enough. From now on unless I find certified gluten-free ice cream I will do without. And believe me, I loved my ice cream! I was addicted. It took a while to get over the cravings...
  25. bartfull
    Enjoy Life makes gluten-free chocolate that is also soy-free.
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