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Latest Celiac Disease News & Research:
Everything posted by bartfull
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ARCHIVED Gluten Free Icing and Sprinkles?
bartfull replied to manoverboard365's topic in Gluten-Free Foods, Products, Shopping & Medications
The thing is, even if you make your cookies at home and keep them covered, you will be in a room full of flour dust in the air while others are baking. Unless you wear respirator while you're there you WILL get flour dust in the back of your throat and you WILL swallow it. If it were me I would sadly have to pass. There will be other holiday events to attend... -
ARCHIVED Day 2 Gluten Free - feeling super sick?!
bartfull replied to JenDF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Is your doctor going to order a biopsy? If so you need to stay on gluten until that is done. But to answer your question, yes it is normal to feel worse before feeling better. Gluten withdrawal is a real physical thing. Headaches, dizziness, raging hunger, mood swings, and a general uneasy feeling almost as if you are expecting something really bad to... -
ARCHIVED Gingerbread House School Project
bartfull replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm guessing the small round wafer cookies are like the Nabisco 'Nilla Wafers we used to use to make boston cream pie. And Twizzlers? If I'm remembering correctly, those have gluten. -
ARCHIVED Symptoms
bartfull replied to Erin3172's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Erin, and welcome to the forum. Those all sound like celiac symptoms. There are actually 300 (!) potential symptoms, and there are some folks who have NO symptoms, even though they do have celiac. My advice to you is to make sure you get the complete celiac blood panel. It's amazing how many doctors only order one or two tests, yet there are folks... -
Welcome. First of all, celiac is not an allergy. It is an auto immune disease. The testing for celiac is much different from the testing for allergies. And allergy testing is fairly unreliable anyway. Does your son have any type of ALLERGIC reaction to any of these things? An allergic reaction would be things like breathing problems or hives or...
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I had a few meltdowns in the grocery store at first, walking out empty handed. Of course I lived on junk food before going gluten-free and the idea of eating plain whole foods seemed foreign to me. I'm not much of a cook! Definitely, eating out is the hardest part. Being spontaneous is going to have to be a thing of the past. While I always carry non...
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ARCHIVED Results came in, help?
bartfull replied to AngeryTummy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, copy and paste here. Be sure to include the ranges as some labs use different numbers. There are quite a few members who can help. -
ARCHIVED Stomach Gurggling, Pain, Exhaustion, UGH
bartfull replied to MissL101's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I buy Against the Grain frozen cheese pizza and then add my own toppings. Yummy and absolutely safe. Made in a dedicated grain-free facility.- 3 replies
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ARCHIVED turkey
bartfull replied to blahblah's topic in Gluten-Free Foods, Products, Shopping & Medications
Turkey is gluten-free as long as it is not stuffed. You can make a good gluten-free stuffing using gluten-free bread. Dry the bread first and add what ever spices or veggies you wish, but cook it in a separate baking dish because stuffing the bird with it can cause bacteria to breed. And gravy must be thickened with corn starch or potato starch instead of... -
ARCHIVED Celiac or not?
bartfull replied to ycavaz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can say something along the lines of, "Ever since I was diagnosed with celiac disease, I have not been able to eat gluten." You don't have to mention that YOU diagnosed yourself with celiac. -
ARCHIVED Constant joint pain even with no gluten
bartfull replied to fargo007's topic in Coping with Celiac Disease
Have you had your thyroid checked? Hypothyroid can cause joint pain. Also, some folks get joint pain from eating nightshade vegetables. Those are potatoes, tomatoes, peppers and eggplant. And now - this is going to sound crazy to you but gin soaked raisins put an end to my really bad joint pain. Open Original Shared Link Be sure to give... -
ARCHIVED Can My Child Help Cook My Food?
bartfull replied to StainedGlassWindows's topic in Coping with Celiac Disease
Depending on what you're making and how you plan to prepare it, you could have your child do chopping of whatever you're chopping. If it's a manual chopper, put the nuts or whatever in it and have them plunge the handle. If you're using a food processor, let them push the button. A toddler of course shouldn't be using a knife, but a potato masher would... -
ARCHIVED Sad about Holiday food you cannot eat?
bartfull replied to manasota's topic in Coping with Celiac Disease
Yeah, I made stuffing last year with the heals of gluten-free bread I had been saving just for that reason. Some was Udi's, some was Canyon Bakehouse, and some was Schar. I used the poultry seasoning that Mom always used and followed the rest of her recipe. I admit it's been years since I had Mom's stuffing but as far as I can remember, it tasted the same... -
ARCHIVED Sad about Holiday food you cannot eat?
bartfull replied to manasota's topic in Coping with Celiac Disease
Just got six pounds of grass fed, antibiotic and hormone free beef. So scratch the chicken. I'm having beef for Thanksgiving and I'll be LOVING it! -
Heart problems
bartfull replied to Kittydanger's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Even if you can never be tested for celiac, it would be a good thing to know if you have an actual allergy for two reasons. One, so you can get an epi pen in case you get exposed by accident. And two, so it can go into your medical record. If it's written in your record and you end up going to the hospital for any reason, they'll be really careful that they... -
ARCHIVED Smucker's Simply Fruit Blueberry
bartfull replied to wolfie's topic in Gluten-Free Foods, Products, Shopping & Medications
What gets me riled up is this - how can they get away with calling it simply fruit when it ISN'T simply fruit? Ingredients FRUIT SYRUP, STRAWBERRIES, LEMON JUICE CONCENTRATE, FRUIT PECTIN, RED GRAPE JUICE CONCENTRATE ADDED FOR COLOR, NATURAL FLAVORS. -
ARCHIVED Your reactions to glucose syrup.
bartfull replied to DandelionH's topic in Coping with Celiac Disease
We were typing at the same time. Anyway, I am totally sugar free so I've never had it. Can't help you with what my reaction is like. Back when I did eat sugar it was only organic things with organic cane sugar. It took a while to get over missing ice cream, but I finally AM over it and feel much better.- 4 replies
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ARCHIVED Your reactions to glucose syrup.
bartfull replied to DandelionH's topic in Coping with Celiac Disease
OK, I just looked it up. Guess it's not the same thing they give you in the hospital. It is indeed in food. And it looks like they do use wheat sometimes, which wouldn't be a problem because they would have to label it as such being that wheat is one of the top eight allergens. But they also use barley sometimes and they DON'T have to label for that. It looks...- 4 replies
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ARCHIVED Your reactions to glucose syrup.
bartfull replied to DandelionH's topic in Coping with Celiac Disease
You do know that glucose is sugar, not gluten? I have never had glucose syrup. Isn't that what they give you in the hospital, or are you finding it in food? Are you saying maybe it's cross-contaminated?- 4 replies
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ARCHIVED Velveeta
bartfull replied to GFreeMO's topic in Gluten-Free Foods, Products, Shopping & Medications
If any Kraft product has gluten, either as an ingredient or used in processing, it will say so on the label. Kraft even goes so far that if they process gluten ingredients on the same line or facility, they will tell you. Kraft is a VERY trustworthy company. They are the good guys. I wish all companies had their policy. As far as modified food starch... -
And if you go to the coping section here, pinned to the top is a thread called "Newbie 101". Read that and you'll get more great info.
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ARCHIVED Newbie to gluten-free diet
bartfull replied to Bread+Butterfly's topic in Coping with Celiac Disease
Yes! What you are going through is gluten withdrawal, a real, physical withdrawal. Headaches, mood swings, ravenous hunger, and a general feeling that something is wrong, are common. It usually lasts for two to four weeks. Then you will start feeling better. So welcome to the board! Do be sure to go to the Newbie 101 thread pinned to the top of the coping... -
ARCHIVED Surprised
bartfull replied to LookingforAnswers15's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If she was diagnosed with celiac and does not follow a gluten-free diet, she is a fool. If her daughter was diagnosed as a celiac and she doesn't see to it that she follows a gluten-free diet, it is child abuse. Her antibodies may have been low when she was first tested, but they will go up if she continues to be reckless with her health. And as for... -
Might be a stomach bug. Might be food poisoning. (I just read an article yesterday that said I think, that one out of seven people suffer from food poisoning each year and a lot of them don't realize that's what it is.)
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Does Anyone Know How To Kill Or "inactivate" Gluten?
bartfull replied to mamaupupup's topic in Coping with Celiac Disease
Karen, when I first came here there were some awesome people who helped me. I truly believe they saved my life, and I know they saved my sanity. I stuck around because I am still learning, and because I wanted to pass it forward. I hope you too stick around. It won't be long before you will be helping newbies and passing out hugs to folks who feel as...