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bartfull

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Everything posted by bartfull

  1. bartfull
    Hi and welcome. Unfortunately gluten withdrawal is very real and it sounds like that's what's going on with you. Headaches, mood swings. insatiable hunger, and a general uneasy feeling as if something bad were going to happen any minute now, are all symptoms of withdrawal. For some folks it lasts a week or two. Some folks have it for a month or...
  2. bartfull
    Not that much is known about NCGI, but one thing they have found out through studies is that people with NCGI are even MORE likely than folks with celiac to have neurological problems. That means it is just as important, maybe even more so if that's possible, to be as strictly gluten-free as you can. If you go to the coping section here you'll see the...
  3. bartfull
    I'm one of those who is intolerant to soy - sometimes. I had gotten it back for a while but since I got CC'd in June I am again off of corn and soy. That being said, I had started eating some things that contain soy, although I didn't overdo it because of the GMO thing. It really is true that almost all soy is GMO nowadays. BUT!!!!! The stuff you...
  4. bartfull
    OK, if you read this thread you will see that CyclingLady, with credit to NVSmom, has listed all of the tests you need. Some folks only show positive on one test, but they do indeed have celiac. That's why it's so important to get ALL of these tests done. https://www.celiac.com/forums/topic/113610-after-positive-gene-test-what-bloodwork-to-order/#comment...
  5. bartfull
    IBS is not a diagnosis. The word "syndrome" means, "a group of symptoms", and that's all it is. You need to get tested for celiac. The symptoms you describe could all be celiac symptoms. There are over 300 possible symptoms! If your doctor won't do the testing, see a different doctor. And it is vitally important that you continue eating gluten until...
  6. bartfull
    WOW! I just got an incredible Christmas present - fresh, flown in from the coast, Alaskan king crab legs!!!!! REAL seafood here in the middle of the country! I've been looking up the best way to cook it and it looks like 10 minutes in a 350 oven, in a baking dish with a little bit of water is not only easiest, but best tasting. (They say boiling makes them...
  7. bartfull
    Chris, if you're still here, I'm sorry if I offended you, but I only told the truth. Knowledge is power as they say. And if you read Gemini's post you will see that you aren't the only one who gets sick from the smell. Neither she nor I said anything negative about you personally. All we said was that the smell of gluten foods can't cause a celiac reaction...
  8. bartfull
    Hi Chris. Are you newly diagnosed? How long have you been gluten-free? I ask because you can't get sick from breathing gluten "fumes", although if you went into a bakery or the kitchen of someone who had just baked you CAN get sick from flour dust in the air. But if you are newly gluten-free, you can feel ill for many reasons or no good reason at all...
  9. bartfull
    Yeah, it stinks that you have to stay on gluten until all testing is done, but remember, the end is in sight. While you're waiting, go to the coping section here on the forums and pinned to the top you will see a thread called, "Newbie 101". Read that thread. Make sure you click on all of the links provided. Take notes. (Seriously, we remember things...
  10. bartfull
    "So, getting diagnosed at 30 is not unusual although I don't know why the surgery would have precipitated the intestinal symptoms." I'm not sure doctors have figured out WHY, but celiac often presents after physical or emotional trauma. Many folks have had similar experiences after surgery or childbirth, or even the loss of a loved one.
  11. bartfull
    If you're sure you are totally gluten-free (No gluten sneaking in by way of medications or supplements, or cross-contamination), it could be another food intolerance rearing its ugly head. Dairy would be the first suspect, followed by corn and/or soy. The way to find out would be to eliminate them all until you are feeling better, then add back one at a time...
  12. bartfull
    I think a written 504 plan would be a good idea. He has a lot of years of schooling ahead of him and unless it is written out he may get a teacher next year or the year after that who WON'T try to keep him safe.
  13. bartfull
    I agree!
  14. bartfull
    You have celiac. The small intestine, if spread out, is the size of a football field. Of course they missed the damage, but with numbers that high on your blood work, I'm sure it is there. That means being 98% compliant in the diet is not good enough. You need to be 100%, or as close as is humanly possible. Go on over to the coping section and read the...
  15. bartfull
  16. bartfull
    No, not wise, just experienced. And you are welcomed to come to the Black Hills any time. We'll have dinner at my house because the only gluten-free restaurant in the area (that pizza place I always rave about) burned down the other day. I sure hope they rebuild.
  17. bartfull
    I always bring my own food (yes, and dishes and utensils) when I go someplace. I just tell the people something along the lines of, "I get SO sick from gluten that I have made it a rule to never eat anything I didn't prepare myself." Then to soften it I admire all of the food the other folks prepared and tell them how much I wish I could eat it because it...
  18. bartfull
    Fisher nuts told me their nuts were NOT safe because they make gluten containing stuff on the same line. Of course that was a can of cashews. I don't know about their bagged stuff for baking. Planter's nuts are safe (unless the ingredients label says otherwise), but I don't think they have bagged nuts for baking either. Can you get nuts in the shell...
  19. bartfull
    Yes. If it were me I would continue eating gluten and DEMAND the full celiac panel. After all, you are paying the doctor so that makes you in effect, the boss. If your doctor still refuses, tell him or her you are going to find a doctor who WILL.
  20. bartfull
    At this point I wouldn't be worrying about other food intolerances (except dairy). You are most likely going through gluten withdrawal which can make you feel lousy. And on top of that, at one week in just about ANY food can make you feel sick. You might eat the exact same diet three days in a row with two days feeling fine and the other feeling sick. For...
  21. bartfull
    I absolutely love your screen name! I'm glad you are going for testing. If you test positive your wife will believe you and maybe even be sorry for what she said. I'll tell you a story - when I was a kid my Mom was always complaining of health problems. One day it would be a headache, the next day joint pains. She'd complain about her stomach, then the...
  22. bartfull
    Most gluten-free substitutes are full of calories. Find a few good tasting gluten-free cookies, crackers, and pastries. And of course even the gluten-free breads are high in calories. It's too bad you can't eat much ice cream but maybe you can find one of those non-dairy ice creams. There is one whose name I can't remember which is made of coconut milk. You...
  23. bartfull
    It should start getting better soon. Mine lasted about three weeks. For some folks it'll go for five or six. In the meantime, go to the Newbie 101 thread pinned to the top of the coping section here for a wealth of information about the diet. And welcome to the board! Feel free to ask a lot of questions because we're here to help.
  24. bartfull
    Maybe if you show all of this info to the ex?
  25. bartfull
    Can't help you with the graham crackers but I just looked up gingerbread house icing and it is basically "royal icing". That's the stuff they make the hard flowers out of. You use three or four beaten egg whites, a little vanilla, and a bunch of powdered sugar. Make it the night before and refrigerate it. By the time she gets it to school it should have softened...
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