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pricklypear1971

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Latest Celiac Disease News & Research:

Everything posted by pricklypear1971

  1. pricklypear1971
    Okay folks, it's my first gluten-free adventure! We are driving to Legoland (Tucson to San Diego) in a few weeks. Our hotel has a small kitchenette (stove, pans, fridge, micro). Legoland is very gluten-free friendly and has lots of food options. I think we'll eat breakfast at the hotel 2 days (cook in the room), lunch at the park 1 day, dinner at a...
  2. pricklypear1971
    Yes, it's gluten-free. They say they mark "wheat" clearly. I stick with plain vanilla and chocolate - tried the java chip and it was much sweeter, IMO. Coffee is ok too, but a bit sweeter than chocolate or vanilla. They have these "5 ingredient" ice creams whose labels are easy to read compared to competitors. It may be made on shared lines, but...
  3. pricklypear1971
    Thanks for all of the responses. This week is much better. I need 5 small meals a day...the more fiber mixed in with protein and veggies the better. The Moosewood Cuban Black Bean recipe is perfect - beans, rice, 400 veggies - some of it pur
  4. pricklypear1971
    Here: Open Original Shared Link This says incidence is LOWER but not nonexistent. Good luck and don't give up!!
  5. pricklypear1971
    The dairy (if you aren't already) is tough. Carageenan is a pain, but as long as you're off dairy it's doable. Don't try to find a milk substitute. All of them have sea salt and/or carageenan except one hemp milk...and btw it was gross. I used a few pads of butter in egg whites and was fine. Egg whites are fine to sub for eggs (but I am sooo tired of...
  6. pricklypear1971
    Google "thyca" for a list of high-iodone goods to avoid. If you have enough iga in your skin, if it meets enough iodone...you'll probably get a rash. Just because it's topical, doesn't mean it doesn't hit a mucus membrane and get in.
  7. pricklypear1971
    First, yes your body needs to heal to absorb nutrients well. If you haven't been tested for vitamin deficiencies do it, and supplament as needed. Also, I got a rude shock last week - I reacted to something in a construction site - possibly gluten since sometimes it's used in wallboard and joint compounds. So BE CAREFUL at work. Gloves, face mask, wash...
  8. pricklypear1971
    The only time I've suspected (and when I realized they may be an issue) sals caused a huge DH flare and neuro issues. So yes, the reaction can be just as bad. The DH may have been from iodone (salt) or red food color....but the neuro was from something else. I ate Riceworks chips, that are supposed to be gluten-free...so it was either sals or gluten that...
  9. pricklypear1971
    I'm a halfy, too. Half on the dq2, half on the dq8, and one hit on the dq9. I have an Enterolab kit I haven't sent in yet. I had a hard time with my last lab results, mentally...so I'm procrastinating.
  10. pricklypear1971
    There are non dairy chocolates. I have no idea what they are, just that they exist. You could do nondairy covered nuts (melt nondairy chocolate chips). What about Buckeyes, using the same chips? That's peanut butter, sugar, a fat (use dairy free sub) and dip half in chocolate, right? Yes, I'm a chocoholic. What about a cake or something similar...
  11. pricklypear1971
    This would mean I have to buy a scale...
  12. pricklypear1971
    The most frequently troublesome are b's, iron (full panel plus ferretin), d, calcium, magnesium, vit k, maybe a. Anyone else want to chime in??
  13. pricklypear1971
    If you have a local celiac support group, tgey may know of a doctor that can help you get testing, perhaps at a reduced rate.
  14. pricklypear1971
    Aside from gluten intolerance (regardless of your biopsy), that's a lot of acidic foods (oj and tomato sauce) combined with long periods between eating. That's a recipe for an acid attack for me! Try keeping the acid diluted with water, eat low acid foods, eat meals close together. That may help. And if going gluten-free helps, by all means DO IT.
  15. pricklypear1971
    Glutening can last a while - 1-2 weeks for most. Don't use seasoning mixes. I have no idea about Emeril's. You can make his Bam from scratch - look it up. Try a Neti pot for your bloody sinuses. Nose bleeds are another story, I can't help there. The dehydration I don't know - most need a lot of water after glutening.
  16. pricklypear1971
    Yes, be careful at TJ's. So far the only luck I've had are the creme br
  17. pricklypear1971
    I remind myself I could "function" on gluten (ok, not WELL, and not at the end...) and didn't panic at every red spot or tummy upset while on gluten. And there's no reason to start now (okay, there's a slight reason...,). I just take a deep breath and move on. Most days I can (much easier to do now OFF gluten). But don't get me started on bm's!!...
  18. pricklypear1971
    Nope. Have you had your thyroid checked and been checked for Hashimoto's? I was sick all the time before I started thyroid meds. Now, it's quite rare (except for those mysterious gluten things).
  19. pricklypear1971
    Annual. I believe you can order the jewelry without subscribing to the online service. Check the website and see.
  20. pricklypear1971
    I was pleasantly surprised MedicAlert fit Celiac, Hashis, corticosteroids, sulfa, cephalexin on mine!!! Plus my id# and their phone#.
  21. pricklypear1971
    Yeah. I've got to revisit this one... I think I got glutened last Monday (from construction materials, evidently).... I thought I got away with a bit of a rash.... but OH NO I DIDN'T. I started getting hypoglycemic 36 hours later. BAD. Today is the first day I haven't had to to eat 2 breakfasts and 2 lunches two hours apart. Evidently, that's...
  22. pricklypear1971
    What kind of cook puts flour in a Creole dish? You're supposed to cook it down to thicken. I know, not your point exactly but there is a definite difference between a dish with a roux base (which Creole isn't) and one that is. You could taste raw flour in a Creole dish. Ick. Tell your Dad if he's going to thicken to use cornstarch. If he wants a roux...
  23. pricklypear1971
    I'm not surprised to hear this, but it sure makes me nervous. I tried explaining to my mother why I want her tested...because if she's in the hospital they may kill her before they test her. The danger isn't so much in what SHE does (ok, it is....) but in what doctors will DO to her. I wear that bracelet because if I'm alone it's my only hope of...
  24. pricklypear1971
    Very interesting, indeed. I've also been considering the "gut health" issue, and have been considering supplements to address that issue specifically. That said, I am someone who HATES taking pills/supplements so that's saying a lot.
  25. pricklypear1971
    You can't analyze it day by day, unless you have a major reaction. Then, that should clue you in to a trigger or a source in the last 48 hours or so. Just keep in going....do what works. Concentrate on eating a well rounded diet (minus gluten, milk). Keep your food diary, get your testing. And check your vitamins for gluten, milk!!!
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