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squirmingitch

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Everything posted by squirmingitch

  1. squirmingitch
    YVW jiggles! Ah! that's an issue too jiggles.... pet food.... you can get glutened from pet food if the pet is not also eating gluten free. Also, if hubs eats gluten or drinks gluten beer & you kiss...you can get glutened. So he has to brush & brush well before you kiss --- it wouldn't hurt to wait a bit either. Do you have a gluten-free household...
  2. squirmingitch
    Well, you certainly sound like classic celiac & your response to the diet has proven that. If I were you I would just say you are celiac & that's that. Let me clue you in on the gluten challenge. Unless you REALLY, REALLY, DESPERATELY desire that official dx --- if it were me there's not a snowball's chance in hell I would do it! Many, many or maybe...
  3. squirmingitch
    You're getting a handle on it! Keep the faith!
  4. squirmingitch
    Sorry jiggles, it will do you no good to get a biopsy for dh now unless you delight in frustrating yourself. Abby gave you good advice & asked some good questions. I would only add: Are you POSITIVE you aren't getting cc'd?
  5. squirmingitch
    Yep, the rash is purple/browning now so that outbreak is on it's way to done. Yay! Wooooooooo Hooooooooooooo!!!!!!!!!!!!!!!!! Going out for a nice little snack! Sounds delish!!!! Next time eat one for me will ya? We don't have any such type of place here. The only thing we have is a small restaurant who does understand gluten-free & cross contamination...
  6. squirmingitch
    Hi missmadgirl. I'm so sorry this is happening to you. Please tell us a little more.... Are these actual boils or are they blisters? Do they itch? What size are they? Do you think you have celiac disease? Why did you come to this site --- did something make you suspect you have celiac disease or gluten intolerance? We need to know as much as possible. Don...
  7. squirmingitch
    Welcome to the board! First, your rash is not going to go away overnight or in a week..... it takes time. You need to make sure your kitchen & everything you put in your mouth is totally gluten free (gluten-free). DH is sensitive to the tiniest amount of gluten. And you need to make sure all your meds both prescription & OTC are gluten-free. NSAID...
  8. squirmingitch
    It doesn't sound like dh. However, I won't say it isn't pre dh. DH is insanely itchy --- absolutely drive you nuts, make you want to peel your skin off with a knife, insanely itchy 24/7. And dh doesn't present & then the next morning you are fine. What's happening to you doesn't add up as dh; at least not at this point in time. What is pre dh & could...
  9. squirmingitch
    Awwwwwwwwwwwwwwwwwwwwwwwww man! I know that heat. Stock up the freezer with ice packs! A cold soak in the tub might help too. Awwwwwwww honey, I'm so, so sorry this is happening to you. Geez this stuff stinks!!!!!!! ((((((((((((((((((((((((((((((((((((((((((((((ABBY)))))))))))))))))))))))))))))))))))))))))))))))))
  10. squirmingitch
    Hindsight is 20/20. I could say the same. I also searched & searched & searched until I was blue in the face when I began to get more & more places & never once did I run across celiac disease or dh. I put in every word about itchy skin & blisters every which way I could think to put it into the search engine. Think about this..... If...
  11. squirmingitch
    Have you made sure the hydroxyzine is gluten free? No, I don't think this is the butter now. That would have happened & you wouldn't be clearing & then relapse from iodine unless you ate more of it. It could be your upcoming period. Hormones affect the rash. Pregnant women will get dh when they never had it before so hormones are certainly a factor...
  12. squirmingitch
    I'm not sure if you're looking specifically for a calcium powder or just needing a calcium supplement. I got NOW brand Bone Calcium. It does not contain sugar, salt, starch, yeast, wheat, gluten, corn, soy, milk, egg. See it here: Open Original Shared Link
  13. squirmingitch
    Yes, that was the worst outbreak I have had before gluten-free or since gluten-free. It shocked the hell out of me! And it was the darkest days of my entire life. It was excruciating times 1,000. It felt like I had shards of glass embedded in my skin 24/7. Clothing was sheer torture so unless I absolutely had to go somewhere, I sat around the house nekked...
  14. squirmingitch
    The flares will hit the same places over & over again AND new places will arise. It happens. This stuff is a b%$@# with a capital B. It sounds like it could be iodine from the butter but then again it could just simply be a flare. You will not know until you test again & again. That's why it's so hard..... there are no true hard & fast rules...
  15. squirmingitch
    Not to have this get mucked up with the drug treatments above; I post this separately. For anyone who can afford it & who wants to test certain food items there are test kits available: Open Original Shared Link Open Original Shared Link
  16. squirmingitch
    I just ran across this: Open Original Shared Link she talks about using colchine for dh --- first I ever heard of that drug being used for dh. But then look up what it is & the dangers: Open Original Shared Link OY! Then there are these: Open Original Shared Link Open Original Shared Link Open Original Shared Link This one...
  17. squirmingitch
    Simone..... the groomer is into organic & pure but most ppl consider oatmeal to be organic & pure. Can't tell you how many soaps I've run across containing oatmeal b/c they think it's so good for the skin. It is if you don't have dh! So check with her about the shampoo & stuff.
  18. squirmingitch
    Oh, I'm hanging in there. Frustrated. Just got out of my epsom salts bath & now not itching for a while. Trying to play catch up with everything I got behind in while I worked on selling the house.
  19. squirmingitch
    Bird seed! Does it have any wheat, barley or rye? Someone on one of the other forums (non dh) said something about they were getting glutened by the wild bird seed. check it out. I gotta do some more brainstorming....... Nickel allergy? Nickel is in watches, jewelry, even metal barrettes.
  20. squirmingitch
    Do you bathe the not a dog dog yourself & groom her yourself or do you take her to a doggy parlor? They could use gluten dog shampoo or a lot of them are big on oatmeal shampoo these days which we KNOW would not be safe oatmeal for us. They could spray her with perfume containing gluten or even perhaps just something you are reacting to. There's a thought...
  21. squirmingitch
    Okay, so the not a dog dog has been gluten-free for years also. So there's no chance you got glutened from her. ORRRRRR.... does she play with gluten eating dogs? Does this present bilaterally? When you say a cluster & then a blister appears in the middle --- you mean a cluster of bumps & then a blister appears in the middle of each bump right...
  22. squirmingitch
    Has your dog been gluten free for years? You make me laugh. Drinking heavily.....I'll join you. I dunno, I think the derm is a waste of time considering your prior experience with him/her. Geez, you can't do tetracycline either? At least last I knew, I could. When did you last have antibiotics?
  23. squirmingitch
    With rare exception your PCP is right about derms. The derm who did your biopsy is an idiot. 1) you had been on steroids so it would be a wash & invalid. 2) you had been gluten-free for 20 freaking years!!!!! So it would be a wash & I doubt that even a little cc'ing would make a dh biopsy come up positive. Okay, so you're allergic to sulfa. How...
  24. squirmingitch
    ((((((Simone))))))) Huge hugs! Okay, let's run through this again. What is the itch like? What do they look like? Have you re-checked the labels for ingredient changes on everything you eat? How about all your topical products --- any ingredient changes there? Do you have a good derm?
  25. squirmingitch
    Bartful stated it above but I will back up what she said about Planters nuts. Within the last 2 or 3 weeks I called them to inquire if they are processed in a facility that processes any gluten products. The lady told me very specifically that it will say right on the label if it is processed in a facility that handles any gluten or other foods at all. They...
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