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cavernio

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Latest Celiac Disease News & Research:

Everything posted by cavernio

  1. cavernio
    -Every animal is different. Some animals digest things we can't and vice versa, and some will have internal mechanisms to make nutrients for themselves from other things they ingest. That's about the worst argument I have ever heard for vegetarian or veganism. It would have weight if it looks into the mechanisms of food digestion and use and explained itself...
  2. cavernio
    Welcome to your medical system. Take a ticket and wait. Story of my life.
  3. cavernio
    Coffee affects me more being gluten free. I've been dairy free almost as long as I've been gluten free, and coffee's always had a strong effect on me regardless. I don't think dairy made me groggy specifically, but I think it may have caused body temp fluctuations.
  4. cavernio
    I've developed what only makes sense to be DH on one of my fingers, and I get peripheral nerve pain if I've passed some low threshold of gluten. I seem to get tooth and gum pain (just nerve pain in my mouth instead of extremeties) a day after I have been glutened. I once got bumps on my neck and lower skull and ears. I'm still not over the mental problems...
  5. cavernio
    Nutritional deficiencies. Just about every deficiency under the sun can cause depression. A nutritional deficiency could also explain the constipation that never went away too.
  6. cavernio
    My finger looks almost identical to the OP Carybear. The rash on my finger has since improved and gotten worse a few times, and the blisters have gotten bigger, and the blisters look like this when a tad larger. The dry, peeling skin is what comes afterwards, and yes, that's what's most prominent in the photos daninero posted, and I agree, that doesn...
  7. cavernio
    I think that when a celiac immediately goes gluten free, you will be absorbing far less nutrients than you otherwise would. Celiacs have leaky guts that let everything and anything in, which I suppose must mean proper nutrients. As soon as you stop having gluten though, the leaky gut due to gluten consumption seems to go away fairly quickly. But the proper...
  8. cavernio
    The antidepressant could have been working against you the entire time by not letting you lose weight. Same thing as causing weight gain. I've never been down as low as I had been before starting antidepressants. Like typical depressed people and classic celiac patients, I lost a fair bit of weight. Antidepressants made me gain, and I too remember it being...
  9. cavernio
    Did you get tested for any other vitamin problems than iron? B vitamins, all of them, are essential for energy. Lack of B6 can cause night sweats specifically. B12 is another common one that they probably tested for though. If you collapse at work you're no help to them either. I don't see how excersising will give you more energy at this point, it will...
  10. cavernio
    Within a week my skin cleared up from what I'd call regular acne. Bloating and abdominal pain took, well, a few months must have been. I rarely get hot/cold spells or feel like I'm getting the flu now. But I still have very little energy, moderate excersise drains me, my neuropathy comes and goes (always worse the day or so after I excersise at all, and...
  11. cavernio
    Cooking only makes food easier to digest, which I'm pretty sure makes some nutrients accesible, whereas otherwise they just aren't. Some nutrients will get destroyed or otherwise removed in cooking, but that's not the same thing. Certainly burnt or charred food creates free radicals, and high temp fried foods change fats from cis to trans, but that doesn...
  12. cavernio
    I never used a mix before being gluten free, and the hell if I'm going to pay extra for one now! Pancakes, especially gluten free ones, are about the easiest things to make from scratch. Flour of your choice, beat an egg, a liquid of your choice added to your desired thinness, half a tsp of baking soda if you want some fluffiness, and you're set. Don't worry...
  13. cavernio
    If she's diagnosed with it and she's not doing anything about it, you can't be gluten free for her. In my family, me even mentioning to get fully tested results in eye rolling or a burst of anger. I can send trustworthy medical info, but that's about it.
  14. cavernio
    Well the sugar in milk is lactose, and a lot of celiacs don't break it down properly due to intestinal damage, so if low blood sugar would result from only having the protein in milk get absorbed, then that makes sense I guess. I wouldn't be surprised if differences in blood sugar could be something like an intolerance. I'd probably, however, call diabetes...
  15. cavernio
    The reaction in regular soy sauce would probably have been from barley hordein, whereas triscuits would be regular gluten. But there's a lot of stories on here about people who accidentally or purposefully eat whole servings of gluten and seem to feel fine, while tiny amounts on some unknown thing make them feel sick for days. One theory of mine is that...
  16. cavernio
    Yes they might impede improvement. Of note is that 'traces of x' isn't a mandatory statement. Barley, oats, or rye aren't even mandatory labelling for ingredients. Oats may or may not affect you, and there can be gluten free oat products. I'm just not sure how much you'll feel better on a gluten free if aren't a celiac or gluten intolerant.
  17. cavernio
    I think it would be really important for her to also know to not eat anyone else's food at school or daycare or wherever. I don't have kids myself, but 8 seems just old enough that she can really grasp the seriousness of eating something bad for her, and for you to teach her what foods she can and can't eat. Yes, I have found out that many soaps are gluten...
  18. cavernio
    "Do we need to keep food separate, use different utensils, avoid French fries that may have been contaminated in a fryer, etc?" Pretty much. Most dishes can be cleaned thoroughly enough though, but then you have to use a separate or clean cloth for them. Things like scratched frying pans or baking sheets that get that brownish coating on them though aren...
  19. cavernio
    If I were in your shoes I would go back to the doctor. You may have something else wrong with you too.
  20. cavernio
    I have always had more of an effect of coffee than a similar amount of caffeine from tea or cola. My mom gets a pretty upset stomach from coffee (and she's the only person who bothered to get fully tested for celiac disease, she doesn't have it), and I have a cousin who gets heart palpitations from it if she drinks a large cup. Caffeine will speed up...
  21. cavernio
    I'm with gottaski. Don't decline anything, but don't eat the food from the restaurant. I'm not sure if you should tell them you're gluten free beforehand or not, don't think it will make much of a difference. I think if you bring your own meal it may come off like you're prepared for anything and are responsible. The topic about what you're eating will come...
  22. cavernio
    The Tim Horton's I once worked at had steeped tea and then different teabags. Possibly sources of CC at my specific store would be the green tea bags which were a giant box (100 or more) of individual bags that the lid was torn off for ease of use. There used to be bagel crumbs in them all the time (or at least the sesame and poppyseeds off the bagels) because...
  23. cavernio
    Our society revolves around eating food which isn't safe for a celiac. Physically our bodies demand food, and the smell of glutinous foods still make us hungry. Going out to eat and getting glutened 'more oftened than necessary' is hardly the same as drinking yourself into hangovers so bad you can't work. Mainly, you have to knowingly consume a lot of alcohol...
  24. cavernio
    My tongue never feels right, dry or swollen or sores on the sides. My b12 tests in a safe range, but I still take 1000ug every few days since it's never been too high. Dairy makes my tongue really dry. Never so bad as you're describing it though, it's a little extreme and warrants someone looking at it. A lot of people seem to report feeling worse at around...
  25. cavernio
    I don't feel sorry for myself. I haven't felt sorry for myself much at all the past 9 years. I'm mad at people who compare themselves to others and think that if they can do what that person is doing, then that other person must too. And I brought up mental illness because such comparisons are most often done when there's nothing obviously wrong, so therefore...
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