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JamieRmusic

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by JamieRmusic

  1. JamieRmusic
    Awsome! Thank you for the link. Will do some digging as I see there are a lot of articles on the subject. Yeah, lectins are also a big one. I cut that out a few years back. Seems like plant foods do cause a lot of people issues. Makes one wonder.
  2. JamieRmusic
    Late reply... That's interesting for sure. Thanks for sharing! I'll take a look. I've been having a rough time with a lot of symptoms... hence my vanishing, but stumbled across something in the process. Oxalates seem to be the cause of histamine intolerance and salicylate issues for many people. Which potentially can contribute towards a "leaky...
  3. JamieRmusic
    @Scott Adams very interesting. Looking forward to seeing the result of your test and change in diet. And if transcribes into positive health changes down the road. Btw, if you still have issues with certain foods then I really suggest looking into IGG supplementation and CBD. For me it's been what took me out of being a tough case into feeling normal...
  4. JamieRmusic
    @knitty kitty Thanks I'll take a look at it. Haven't tried AIP, but I know about it. Currently using Fast Tract Diet and it helped me a lot, but have made some poor food choices the past few months due to a lot of life stressors which I couldn't fix. @Scott Adams Thanks for the reply! Yeah, lowFODMAP works for many people. It worked initially 8...
  5. JamieRmusic
    I previously did a few of those type of tests. In the end they never were conclusive, didn't change my diet into a direction which caused healing and honestly weren't accurate enough to be worth it. Many foods which showed up as being problematic weren't a problem at all and it would just narrow down food selection without big reason. Maybe they...
  6. JamieRmusic
    I see your point. It's safe to say at this point it's, like you say, there is simply too little evidence to sway either way. Instead taking a hands on approach and eliminate problematic foods regardless of cause, and try them again later seems to be the best option. May I ask what you ate while on the road to cure? I can barely eat anything besides ...
  7. JamieRmusic
    This has been a long debate for a while. Cyrex did some tests back in 2012 or 2013, and many claim them to be lacking. I stumbled across this research paper which was quite interesting and I feel is worth a read. It is, in fact, a big chance that our bodies do react to these foods as if it were gluten. I personally have that reaction to ALL grains like...
  8. JamieRmusic
    Here's a video: And some links to the products: - https://microbiomelabs.com/home/products/megaigg2000 - https://naturaldispensary.co.uk/products/Mega_IgG_2000_120_s-10003177-0.html - https://store.drruscio.com/products/intestinal-support?variant=13560088395828 - (vegan option) https://store.drruscio.com/products/intestinal-support...
  9. JamieRmusic
    So there are currently three which have been backed by evidence research. Dr. Michael Ruscio has designed one (intestinal repair formula), Microlabs has designed one which I ordered yesterday as it's shipped from UK vs US. There is one more I can't recall the name of. Immunoglobulins regulates the immunesystem in the gut and helps rebuild the mucosal...
  10. JamieRmusic
    Hey! I am curious if anyone here has personally or know someone who has used or currently use Immunoglobulins G as an aid to support their healing journey. If so, how long did it take to get sustained benefit? The reason for asking is because my gut never fully heals and I swing between progressing towards better health, only to regress again....
  11. JamieRmusic
    A little while ago I read a research paper based on the amount of gluten being stuck to kitchen utensils post dishwashing. It was neglible. I think it's quite safe to say as long as the items are cleaned properly it should be fine, but with porous, I'd be more cautious. Maybe sand down cutting boards like mentioned above, or pawn it off and get a new...
  12. JamieRmusic
    Hello fellow celiacs. After reading many questions regarding this probiotic, I decided to contact the producer. Dolphius 9 has 3 strains cc'ed. Kyo has other branded bottles which are labelled gluten free. If you want another which is 100% gluten free, I suggest the lab tested (consumerlabs) Probiotic 5. It is designed for histamine intolerance...
  13. JamieRmusic
    Yeah, eating without digestive enzymes is next to impossible. Need at least 1-2 each meal to have a fighting chance, else it comes out fully undigested. I try not to overcook the food, to keep the enzymes intact in the food and not having to draw as much of my limited supply. As for candida, treatment just doesn't seem worth it until I get my immune system...
  14. JamieRmusic
    @Ennis_TX @Jmg @Rebecca S @cyclinglady Thank you all for the replies! Diagnose I was diagnosed at the age of 2, but due to peer pressure and lack of knowledge back then, I ingested gluten containing foods up until the age of 19-20 (the most at age 19-20). Mostly because of delayed reaction which came days if not weeks or months after ingestion...
  15. JamieRmusic
    Hello! My name is Jamie, I'm 31 years old and live in Norway. Since 2011, I left Vancouver after a year of study and have been in and out of hospitals in Norway, but nobody can give me the proper tests to find the problem with my body. I can't work, I can barely eat and I am laying completely flat in periods. The list of symptoms is...
  16. JamieRmusic
    I am a member of consumer labs. They test every product to make sure us consumer have a reliable source for supplements. They are a nonprofit and have been written about in just about every credible newsagency. They're the real deal. VSL is sadly not approved gluten free, and neither is align probiotics. However, according to a study on pubmed...
  17. JamieRmusic
    Good catch. Let's hope that is a sign that they figured it out.
  18. JamieRmusic
    Yeah. If the stomach isn't fully healed then breaking down certain foods will be impossible. Obviously some of the foods in the chart won't work for everyone, but it's a good starting point. I think that, in combination with the SCD diet should, in fact, cure the issues for most true Celiacs. I am happy to hear that you at least have found some ways to eat...
  19. JamieRmusic
    I recommend you read this book. Open Original Shared Link by Elaine Gottschall. In short, it all boils down to malabsorption of starches. It will shed light on the whole mucous production issue, and how to solve it. It 99% of the time, for celiac patients, is the cause of excess bacteria that have formed in the intestines. Because the foods couldn't get...
  20. JamieRmusic
    I had the same, and it was related to foods, but also heat. As soon as I lay down under the coves in bed it would break out. I'd go take cold showers and that helped a lot. Taking anti histamines for allergies help a TON too. Combine it with cold showers and you are in paradise. I'd try that if I were you, if only temporarily. I had itching that could last...
  21. JamieRmusic
    5 years ago I had neurological issues, due to gluten ataxia. I had massive loss of cognitive ability among other things, loss off muscle control, total muscle atrophy and you name it. Back to the cognitive side of it, I could not understand right from wrong. I would have insane thoughts pop into my head, like... what hitler did couldn't be that bad. He was...
  22. JamieRmusic
    Go get a second opinion, or even better go to the pharmacy. Buy one of the xylose breath tests. They are quite accurate these days. If that fails, ask your doctor to get sent to the hospital for a real checkup. I don't trust any one doctor for an opinion. Take it from someone who has been to the hospital more times than he can count the past 5 years. They...
  23. JamieRmusic
    Hey guys. I'll try to keep it short. I recently had tests done in Denmark and found all my food sensitivities, with the hope of getting better. It's been 5 years adhering a super strict diet. Nothing seemed to work as it should. Let me rewind. A few years back I went on the SCD (simple carbohydrate diet). I was so thin and my weight rushed down...
  24. JamieRmusic
    Keep searching till you find a good doctor. I'm 4.5 years in now of dealing with hospitals and doctors. They have all been the worst up until now. Finally got into the best in my country and they are doing all tests from scratch. Including ACTUALLY listening to what I say, and not just nod and then say no it's not that. Keep pushing... stay strong.
  25. JamieRmusic
    They have tests to find out if you are allergic, intolerant or have full blown celiac disease. Don't just begin eating bread it takes 3-6 months before the inflammation calms down. Go for the D-Xylose test... Open Original Shared Link
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