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aikiducky

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Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    I had nausea when I first went gluten free, too, and i didn't before that, so i think it was some kind of a reaction to changing my diet. I'm sorry to say it took me about six months gluten free before it went away. But eventually it did! Pauliina
  2. aikiducky
    Yeah, I guess I wasn't clear. I'm married to one of them. We used to hang out at the concert hall when we started dating back in high school. A couple of geeks. Pauliina
  3. aikiducky
    To me it sounds like they have such an extreme idea of what the diet entails ("you can only eat veg and grilled meat without anything") that it puts them off even trying. It might help if you can give your sil a list of normal mainstream products that are gluten free so that they start to realize that it's possible to be gluten free and still eat pretty ...
  4. aikiducky
    My hubby just put this on his website and I thought as there are a few musicians on here as well that some of you might like this. It's the first movement from Beethoven's sonata in a minor for piano and violin, played on a fortepiano (the predecessor of our modern piano) and violin. Open Original Shared Link Scroll to the bottom of the page and...
  5. aikiducky
    You'll go on to getting better and just plain feeling good! Pauliina the optimist
  6. aikiducky
    Maybe someone else can confirm because I'm going from memory, but isn't DQ1 the one that is often connected with neurological problems? Because from your description of symptoms I was almost sure that's the gene you would have! It's not recognised as one of the main celiac genes, but (my opinion) that could well be because the damage is happening elsewhere...
  7. aikiducky
    One more idea - for me, dairy gives more or less the same kind of brain fog as gluten. If you're still consuming dairy, you could try cutting it out. Pauliina
  8. aikiducky
    It's quite possible that both her belly and her knees really hurt, those would be not too uncommon symptoms of celiac. Constipation is also quite common as you already heard. I think the information on that site might just have been old, products sometimes change their ingredients, so it's always best to read the label every time, even when you've bought...
  9. aikiducky
    My first thought is that you probably won't know what reaction is what until you have the celiac question sorted out. An intolerance to milk protein, casein, can give similar symptoms as celiac, so once you are gluten free it's easier to see if that's the case. The way to test it is to see how you react to dairy products that have little to none lactose...
  10. aikiducky
    What Ravenwoodglass said - I agree the best thing to do right now is to get to a quiet place and just rest. Deal with all of the mess later. You can't have all that external stimulus right now. Pauliina
  11. aikiducky
    If you're still reading, I just logged on, maybe you're already out of the library... I don't have more good advice, I agree the most important thing is to stay as calm as you can. Would it be possible to go to your aunts and just downplay the whole thing somewhat like "I'm not myself today so don't read to much into this, Mom and I had a tiff so I thought...
  12. aikiducky
    I think gradually is the way to go. Yoghurt is a good second thing to try because it's also lower in lactose than plain milk. And you might want to try just a little bit of yoghurt at first and build up. It's true about the temporary lactose intolerance, but you can build your tolerance up again. Pauliina
  13. aikiducky
    Ironically, when I get glutened I get so depressed I really hardly care about anything. I think it's scary, much scarier than the mild stomach ache etc. I get. Jerry, I didn't mean to sound harsh, I was posting in a hurry. I hope you have a fabulous cruise! Pauliina
  14. aikiducky
    How comforting is it to think it might be damaging your brain instead? Pauliina
  15. aikiducky
    I can think of at least two possibilities why your blood test could be negative and you could still have celiac: 1. The more symptomatic a person is, the earlier they will seek testing, which will mean that the more symptomatic people might actually have LESS damage by the time they are tested, and get more false negatives. This might apply to you. You...
  16. aikiducky
    I think whether or not to do the biopsy depends on what you need it for. If you think it would be useful to have an "official" diagnosis, then you should do the biopsy. I can imagine that with a positive biopsy, some other tests and treatments might be offered to you (like checking for vitamin deficiencies or osteoporosis, for example). But on the other hand...
  17. aikiducky
    Your symptoms sound very similar to mine (lack of focus, eyes not focusing, tiredness etc.). Mine are completely gone on a gluten and casein free diet, and return if I have either gluten or casein. I'd definitely give the diet a good try. And I want to stress again, at least for me it's just as important to be casein free as it is to be gluten free. Pauliina
  18. aikiducky
    I'm also in the mostly neuro and mood crowd...and yeah I get the slurred speech, too. Also, just like gfp said (nice to see you back btw! ) I also sometimes only get the neuro and mood stuff and very little, or very mild gi symptoms. So maybe it was a case of a very very light glutening? Happy you're feeling better. Pauliina
  19. aikiducky
    I'm afraid the above is only true for people who already have extensive damage to the small intestine. Yes the TTg test is very good at detecting people with extensive damage, but the damage doesn't happen overnight, and in people who are tested earlier on (like possibly you, you're still quite young), the test is only something like 40 to 60% accurate. So...
  20. aikiducky
    Raisins can work as a laxative, and give you gas, all by themselves without any help from any gluten. When you think about it, raisins are dried grapes, they're really a very condensed form of fruit. They also contain a lot of sugar which can also be a problem for some. Pauliina
  21. aikiducky
    Jenny, I'm so sorry you're having such a hard time. I agree with Ursula that the key here is your husband. He's married to you, and even though it's understandable that it's easy for him to just go along with his family - that's what he grew up with after all - his first loyalty now should be to you, and not them. He should be setting an example of...
  22. aikiducky
    Jerry, FWIW, I get the "mood" symptoms from gluten just like you, and I also react the same way to casein. You could test it by cutting out all dairy for a couple days and then having some, repeat a few times if necessary so you know it's not a coincidence. Pauliina
  23. aikiducky
    Welcome to the forum! For question one, I don't really know, and I don''t really know if anyone really knows. "Officially" doctors have only been calling it celiac disease if you have a small bowel biopsy that shows that the vili in the interstine are flattened. Any other gluten related health problems have been called gluten intolerance or not acknowledged...
  24. aikiducky
    I think with a positive gene and symptoms your doctor is actually being prudent to consider a biopsy. It's entirely possible to have negative blood work and a positive biopsy! Pauliina
  25. aikiducky
    It's quite common for first degree relatives to have asymptomatic celiac, at least I've noticed it time and again on this board. I think what happens is the one family member with the most obvious symptoms gets diagnosed first, and then if other family members get tested, they may find out they have celiac even though they had so little symptoms (or symptoms...
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