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aikiducky

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Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    ...or if you do, it's in early beginning stages and doesn't show on tests yet. Did you have some symptoms, or were you tested because a family member has celiac disease? Sorry I haven't read all posts... Pauliina
  2. aikiducky
    I kinda eat a paleo diet like diet, since I (on top of gluten of course) avoid legumes and nightshades, and dairy, and generally don't eat a lot of grains. So I end up eating a lot of veggies and fruit plus meat and fish. I do have a couple rice cakes for breakfast though but that's all grain I usually have in a day. I was completely sugar free for a while...
  3. aikiducky
    Some people who have a wheat allergy, but not celiac disease, can apparently tolerate spelt. That might be where the confusion comes from. For a celiac, spelt is a no no. Pauliina
  4. aikiducky
    Kathy, I don't have anything to add, just wanted to say that to me your plan sounds like a good one. I hope you'll continue to get better and better! Pauliina
  5. aikiducky
    EXTRA BIG HUGS Can't think of anything to say either... I hope tomorrow will be better. Pauliina
  6. aikiducky
    When they did the celiac blood tests, which tests did they run? Did they check that she isn't IgA deficient? If she is IgA deficient (it's more common in celiacs than other people, too!) she will never test positive in the blood, but has to be diagnosed by biopsy. Could you kidnap her for a vacation to your house and only feed her gluten-free food for...
  7. aikiducky
    I just read on your other thread that you have been on a gluten challenge until recently? If you just went gluten free a few days ago, you'll probably have all kinds of symptoms from the gluten for at least a couple weeks still. It takes time before the immune reaction in your body calms down. Pauliina
  8. aikiducky
    I gotta agree with the others. Plus, honey, I don't think you're thinking straight. Gluten can do that to you. You can always be tested for all the parasites and tropical diseases in the world if you wish, even if you are gluten free, can't you? Not going gluten free ONLY because you want to make sure it isn't something else honestly doesn't...
  9. aikiducky
    The previous posts already covered most of it I think, so just one more question - have your vit. B12 levels been checked? Many celiacs are deficient, and I know vegetarians have to keep an eye on it, and considering you're both... Pauliina
  10. aikiducky
    I think that sounds like a pretty sensible plan. Indeed, if you feel better on the diet, why not? And if the biopsy doesn't discover complete villous atrophy, well, it doesn't give you a diagnosis but at the same time it also tells you that you haven't done too much damage yet, so in a way its also good news. And if it discovers something else, it's good...
  11. aikiducky
    You can teach yourself a new habit if you take your time to do it and make it into a bit of a game. Like decide that this is "Read The Label Week" and read the label on everything you eat this week, even though you are absolutely positively sure that it's gluten free. Read the labels on everything you use in cooking even if you already bought it ages ago...
  12. aikiducky
    JenKuz, you might think that people are more understanding if you have a definitive diagnosis but the truth is, most people don't really care. What they will respond to is how certain youfeel about your diet. I ignorantly went gluten free before my blood tests, had a negative test result and so never progressed to a biopsy (because my doc was...
  13. aikiducky
    I feel about 90% two weeks after a glutening, but completely normal only after three weeks or so. Pauliina
  14. aikiducky
    This was my thought, too. How serious have you been about casein? I find that anything with even a trace of cross contamination with cows milk will give me symptoms just as bad as gluten. It's even more of a pain than eliminating gluten but really if it's what you need to do then you should do it. Ok a really obvious question but the yoghurt is also...
  15. aikiducky
    Also not all wheat starch is made equal. The wheat starch that is used in SOME gluten-free products here in Europe is specifically made to contain gluten only under a certain norm. NOT all european products containing wheat starch are in this category, just the ones that use the wheat starch that is "pure" enough. Even so, not all european celiacs (including...
  16. aikiducky
    From an email list I'm on... "Someone out there either has too much spare time or is deadly at Scrabble. PRESBYTERIAN: When you rearrange the letters: BEST IN PRAYER ASTRONOMER: When you rearrange the letters: MOON STARER DESPERATION: When you rearrange the letters: A ROPE ENDS IT DORMITORY: When you...
  17. aikiducky
    Another idea, I don't know how well it would "fit" this board... on other discussion forums that I read, moderators are much more strict with jumping into a thread that is getting off-topic, and asking people to please stay on topic. Of course that does mean more work for the mods... Actually - to somewhat take back what I just said - thinking about...
  18. aikiducky
    Ursula, I just wanted to let you know that you have already paid it forward! It was after reading a link in your sig about lectins that I realized I'm sensitive to some of them (legumes, nightshades and eggs) and cut those out. It explained some mystery "glutenings" I kept having! I've since been able to reintroduce moderate amounts of eggs and potato starch...
  19. aikiducky
    I know the feeling of "is this all in my head?" But seriously, stop and think for a moment. Your symptoms are quite severe, and the improvement on a grain freee diet was dramatic. That not only in your head! Trust what your body is telling you, even if the tests happen to come back negative. And.. let us know how you're doing! This board is a great resource...
  20. aikiducky
    Hi Ricco, Welcome on the forum! I'm not Dutch but I live in the Netherlands as well. Have you also found the Dutch discussion board on www.coeliakieforum.nl? I don't usually post much because writing Dutch takes me so much time but I read it and it's very useful for new products etc. Pauliina
  21. aikiducky

    ARCHIVED Nausea

    aikiducky replied to gaynonna's topic in Coping with Celiac Disease

    I never used to feel nauseous until I went gluten free, then for the first... about six months I'd say, I had nausea off and on that didn't seem to have any pattern, it just came and went on it's own. After the first six months I've only had it when I get glutened or caseined. So I figure in my case it had to do with the healing process... Two home...
  22. aikiducky
    Chris, the tingling could be a symptom of vit B12 deficiency which is very common with celiac. You should have your levels checked. The headaches and indigestion are also quite typical symptoms. All in all yuo sound like a really typical case of celiac, so I think it's well worth it to try the diet after the testing is done. Reaction time after eating...
  23. aikiducky

    ARCHIVED Omega 3

    aikiducky replied to SandraB's topic in Related Issues & Disorders

    I just eat a lot of fish. I would think it tastes better... I have noticed that it helps my brain fog if after a glutening I eat a lot of green leafy stuff with salmon. Pauliina
  24. aikiducky
    If you have been having small amounts of dairy here and there, and never had a massive reaction like this, I'd guess cc is more likely? My casein symptoms are pretty much the same as gluten. The easiest way to test casein is give it up completely for a while, then eat some. Trust me, you'll know! Pauliina
  25. aikiducky
    This is kinda interesting, I got 6 out of 16, but... I could have answered yes to every single question a couple years ago. And a lot of them were still close enough that I hesitated whether or not I should say yes or no... like for instance, I'm not dizzy a lot, but often enought that I don't think it's completely normal, and my dark circles under eyes have...
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