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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    The tests you've had aren't a very strong proof of celiac. But I assume you have some symptoms to suspect it? If you don't want to pursue further testing for some reason, going gluten free for a while and seeing if your symptoms improve is also a way to test it. For a dietary test to be valid though you need to be 100% gluten free, otherwise you migth not...
  2. aikiducky
    It's a good ideato start with simple foods. You could do vegetables, fruit, meat, fish, eggs, rice, for a couple weeks and then see how you feel. That way you don't have to spend so much time reading labels right away. I hope you start to feel better soon. Pauliina
  3. aikiducky
    I took my husband some time in the beginning to start remembering to be careful. What really helped was that he saw me get thoroughly glutened a couple times in the beginning, and I didn't hide how awful and sick I felt. If you get glutened by someone, don't try to be discreet about it. Pauliina
  4. aikiducky
    Yes, the difference is not the formula Kelloggs uses in UK and US, but the official definition of what is an acceptable level of gluten to call a product gluten free. Personally I wouldn't eat Rice krispies no matter what they say.... Pauliina in Holland
  5. aikiducky
    Hi Peta, just wanted to add one more "me too". I'm gluten free without positive tests as well. I feel so much better that I refuse to go back on gluten in order to get tested. Remember, the gluten free diet is mostly just a hassle, it's inconvenient, but that's all, otherwise it's a very healthy way of eating. So you can't do yourself harm by trying...
  6. aikiducky
    With ot without diagnosis, the treatment is a gluten free diet. I don't know if having a diagnosis would result in more follow up testing for vitamin deficiensies, osteoporosis, that kind of thing, it might, without a diagnosis your docs might not feel the need to do those. On the other hand having a diagnosis can make it more difficult to get health insurance...
  7. aikiducky
    What Ursula said - you have been gluten free for too long to get a positive test result. In order to have a positive test at this point you would need to go back on gluten, and not gluten lite but three four slices of bread every day, for several months. Personally I wouldn't do it, but it's your decision. Pauliina
  8. aikiducky
    My reactions usually start a few hours after I get glutened... more or less the time scale you were wondering about. Hopefully he'll make the connection about gluten= pain. If he's depressed about feeing sick, that should lift once he's on a gltuen free diet for a while. If he's depressed about not getting to eat gluten ever again, well, there's a grieving...
  9. aikiducky
    After you get the blood test results, I would try the diet for a while in any case, even if the tests are negative. Except if the doctor also wants to do a biopsy, in which case I'd try gluten free immediately after the biopsy! And even if you decide to keep on eating gluteny foods, I would periodically do the blood test again (like every five years or...
  10. aikiducky
    I think with a 13 year old, he really has to be on board himself, because it's too easy for him to cheat any time he's not at home. What I'd do I think is discuss the results with him, and see if he's willing to try the diet for a couple weeks at least. It might turn out that he does feel better on it. If he doesn't feel any change at all I wouldn't really...
  11. aikiducky
    The thing with lactose intolerance is that different people's bodies can produce different amounts of lactase, the entzyme needed to digest lactose. And if one doesn't drink or eat any dairy, the body doesn't produce as much lactase anymore. So completely stopping with giving her milk would actually make it more difficult to introduce it later. Of course...
  12. aikiducky
    Well, you can stay gluten free and if you feel better, consider that you've got your answer. If there is something else going on it would manifest itself whether or not you are gluten free. Realize that gluten free isn't the same as wheat free, gluten is also in barley and rye, and oats through cross contamination. So for example rice cereal with barley malt...
  13. aikiducky
    Reflux could be a symptom of celiac, so I'd definitely mention it. Pauliina
  14. aikiducky
    Yes they are off limits! Pauliina flying by...
  15. aikiducky
    As I said, I don't know for sure that it's a symptom of celiac, but mine went away on the diet. If he's already gluten light it shouldn't be too hard to go completely gluten free. But I'd let his doctor know anyway just in case, don't you think? Pauliina
  16. aikiducky
    I feel just like that as well if I get some gluten by accident! If your parents have a hard time believing you, please ask them to read this thread. I don't even get very bad tummy aches or anything, but I feel absolutely horrible if I get gluten, sad and anxious and depressed and angry, my head gets really mixed up. I hate feeling like that, and I'm...
  17. aikiducky
    Well, obviously I'm not four, but I used to have night sweats before I went gluten free. So I guess it could be a symptom. Since he's already had blood tests, there's nothing to stop you from trying the diet. Although I'd also contact his doctor. Is there celiac in the family? Pauliina
  18. aikiducky

    ARCHIVED Dizziness

    aikiducky replied to allison's topic in Related Issues & Disorders

    I think that's a possibility, several people here on the board have had to lower their dosage of different meds because they started to absorb them better after going gluten free. maybe it would be an idea to ask your doctor about, not going off it but just adjusting the amount? Pauliina
  19. aikiducky
    Hey, you could use that method with a thermos can as well! Thanks fpr the tip! Pauliina
  20. aikiducky
    How long does your typical gluten reaction last? I ask because mine can sometimes last up to three weeks (not the D necessarily but stuff like bloating, nausea and fatigue). So if you had something a couple weeks ago, maybe ate at a restaurant and got cross contamination on something? It could still explain why you feel bad again right now, but in that case...
  21. aikiducky
    I make what you could maybe call corn or rice tortillas with either corn starch or rice flour, or sometimes both mixed, coconut milk until I have the almost right consistency (runny but thickish), olive oil, and some salt. The coconut milk gives a slight flavor but it helps them stay softer. And with toppings I don't taste the coconut anymore. I use coconut...
  22. aikiducky
    Maybe you could find out about a gene test for your kids? That way you'd have some idea about how likely they are to develop celiac or gluten sensitivity. Or, since your doctor sounds like he's on board with your diet at least, ask him about testing the kids. Have they got symptoms that make you suspicious, or is it just in case? Do stick to the diet...
  23. aikiducky
    You need to be eating gluten for a considerable period of time (think at least three to four months) for there to be enough damage for a positive, and even so, false negatives are quite common. So yes your test result is pretty meaningless. I've seen infertility mentioned as a symptom of celiac disease. I don't have kids so I can't tell you what to do about...
  24. aikiducky
    I agree with what the others said, three weeks is not long enough, you risk getting a false negative result that way. Besides, being gluten free doesn't affect testing for ANYTHING ELSE. If your doc really just wants to check for other conditions, you can happily stay gluten free. But if the diet has resolved your problems, I don't quite see the point...
  25. aikiducky
    I'm very very sensitive and I haven't had any problems with the gluten free products at Tesco or Sainsbury's. Not very scientific I know but for what it's worth. Dunno about long flights, from here to England is one hour so I usually eat before. Pauliina
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