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aikiducky

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Everything posted by aikiducky

  1. aikiducky
    There's been a lot of good ideas in this thread. But I think what it really boils down to is what you wrote above. The first person to convince of the importance of being 100% gluten free is yourself. If you really truly start to see gluten as a poison for you, you'll automatically take much less risks with cross contamination and such. I bet that...
  2. aikiducky
    For me, increased thirst is a glutening symptom, and it goes away a few days later again. I just obey it and drink more after a glutening. A reaction can come six hours after eating the glutened food, so it's quite possible that it was the fries. The time depends on how quick your immune system is to react I think, since the gluten reaction is actually...
  3. aikiducky
    Three weeks off gluten is a really really short time. I wouldn't worry about additional intolerances until you've been gluten free for a while longer, maybe say three months or so. It just plain takes time to heal so you can expect ups and downs in the beginning. Pauliina
  4. aikiducky
    If you only have the beginnings of villi damage it's not so odd that your blood work is negative, blood work really is only reliable in people who have no villi left at all. Nowadays the up-to-date doctors do recognize beginning villi damage as an early sign of celiac. So you might just have caught it early. It's not a bad idea to cut out milk too from...
  5. aikiducky
    Skipping breakfast wouldn't affect the test. But you need to know that a lot of adults have negative blood tests anyway, and you might still have a positive biopsy despite negative blood tests. Pauliina
  6. aikiducky
    I take a vitamin B complex that has all the different vitamin B's, plus I take a fish oil supplement for omega-3's. I notice a difference in how I feel if I forget them for a couple of days. Plus I try to eat plenty of dark green veg and some fatty fish like sardines every week. Pauliina
  7. aikiducky
    If both your ttg and ema were positive, I think your chance of a positive biopsy is very very high. You might want to start researching the diet, which brands to buy, try some gluten free cookies, eat all your favorite gluten foods for the last time. This board is a good place to start, and the parent site, celiac.com. Welcome aboard! Pauliina
  8. aikiducky
    If you are gluten free before the tests, it might give a false negative. The same goes for the biopsy, so if you have continued to eat gluten free, that makes any more testing unreliable. Have you felt any better on the gluten free diet? Not necessarily completely better, but at all better? Pauliina
  9. aikiducky
    I disagree with the suggestions to take medication... well you would know best yourself but it's necessary to go through the anger if you want to get to the point of acceptance of your new life change. (hightop girl, I think your councelor friend was right on the money) So go ahead and be angry! It's does suck to have to turn your life completely around and...
  10. aikiducky
    The blood tests aren't very accurate especially in adults, I've read. You could ask for a biopsy to see what the state of your intestine is. Were you eating gluten at the time of the blood tests? Pauliina
  11. aikiducky
    This is exactly why I do it the way I do, that is, I try to get as far up the food chain in the restaurant as possible when I order. Wait staff aren't necessarily food professionals, they can be just students for example. And a menu doesn't necessarily list all details of a dish so you can end up with surprises. All that said, I would probably give...
  12. aikiducky
    When you've been gluten free for a while you get more sensitive to it, so you are probably reacting to things that are cross contaminated now that you didn't react to in the beginning. Eating out you always take a risk of cross contamination, that's why it's important to talk to the people at the restaurant. They need to know that your meal has to be...
  13. aikiducky
    What I do, if I can't call ahead, is I ask for the manager right away when I get there. The rest of my company can go and get seated and I talk to the manager somewhere aside. Or actually at the table is fine for me as well but if you feel self conscious you can do it before going to the table. I explain my limitations to the manager and ask what they'd suggest...
  14. aikiducky
    It called denial. Denial is a very natural reaction to a big life change, it'll be followed by other emotions before finally getting to acceptance. I think your husband will come around with time. There's no other treatment to celiac, but luckily the available treatment, a gluten free diet, isn't too hard to do once you get used to it, and best of...
  15. aikiducky
    A negative biopsy can mean a lot of things. It can mean a completely healthy intestine but it can also mean that the damage was just short of complete, if the doctor goes by the old definition of celiac where you have to have complete villous atrophy before getting diagnosed. It might be useful to ask your doctor what kind of criteria he has for positive...
  16. aikiducky
    I just wanted to point out that the real purpose of a dinner party I think is to socialize with your friends. The food is a kind of a nice context to do it but the real purpose is to be with friends. So I would say bringing your own food doesn't beat the purpose of a dinner party from my point of view at least. usually when I explain it to people this way...
  17. aikiducky
    You can start right here on celiac.com, there's a safe ingredients list and unsafe ingredients list if you go to the main site (celiac.com). Label reading is a bit of a hassle in the beginning but don't worry, you'll get used to it. Pauliina
  18. aikiducky
    You might discuss going straight for the biopsy when you meet your GI doc. Blood tests are often negative in adults, even if they are not IgA deficient, and some people still show positive on the biopsy despite the negative blood tests. Personally I would also consider trying the gluten free diet anyway, AFTER all the testing is done and whatever the test...
  19. aikiducky
    I'm afraid you need to give it up 100% for the rest of your life. But after a while, when you've figured out what you still can eat, and you start to feel so much better - it really isn't the end of the world. Don't go gluten free yet if you're going to have a biopsy, it can affect the results as your intestine starts to heal. Pauliina
  20. aikiducky
    Don't worry, you're not back in square one. You might feel like it for a while (in the beginning it took me two-three weeks to get over a glutening) but the longer you stay on the diet, the stronger and healthier you get and that helps with recovery from the occasional glutening. There really isn't much you can do to speed the process, eat things that...
  21. aikiducky
    My experience, now 3,5 years gluten free, has been that in the first two years my reactions got worse, but lately they have been milder. So there's hope yet. Of course I'm still just as strict. But accidents happen and I'm happy they don't give me quite as bad symptoms anymore. Pauliina
  22. aikiducky
    It's only quite recently that the blood tests were developed that are used to screen silent celiacs. I assume that's the reason there aren't any long term studies yet. In 20-30 years we'll have much more information about how the silent celiacs that are being diagnosed nowadays are doing. Pauliina
  23. aikiducky
    Not really very long term, but I came across this study that I found interesting. They interviewed two kinds of celiacs, ones with symptoms, and ones without, one year after starting gluten free, and found that quality of life had improved for both groups. So if you're wondering about whether it's worth it, apart from all the scary scenarios, there's also...
  24. aikiducky
    Has your dermatologist biopsied the rash? A skin biopsy would show whether or not it is dermatitis herpetiformis (hope I spelled that right!) and if you have DH you have celiac. Of course the dermatologist would have to be a little bit knowledgeable about DH to make a correct interpretation of the biopsy, so that is a concern... Pauliina
  25. aikiducky
    This caught my eye. You had flattening of the villi in your small intestine, but they told you it's negative for celiac? You might be interested to know that the newest guidelines for diagnosing celiac also recognise that the villi are going to be flattened before they are completely wiped out. Your doctor might have gone by the old-fashioned definition of...
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