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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I think a celiac's gut is more sensitive to other foods. I still get bloated and have pain on occassion too, after one year gluten-free. Just yesterday, I had a smoothy with spinach, hemp, cucs, and kiwi fruit and I bloated up mildly but had such pain that I took an ibuprofen (I usually skip pain drugs). I was get cold and clammy it hurt so much... No idea...
  2. nvsmom
    (Hugs) I remember being really mad that I had to have pain and fatigue for 38 years because no doctor could, or would, connect the dots. I was pretty bitter that I could have cut just a few ingredients out of my life and had a much healthier youth - I regret that time lost. I splurged in the first few months. i felt deprived so I bought gluten-free...
  3. nvsmom
    It took me months for my appetite to fall off. After one year gluten-free, I finally do not get the shakes if I don't eat every 2-3 hours. You may need more time.
  4. nvsmom
    I think you probably are a celiac or possibly have non-celiac gluten intolerance (NCGI). The inflammation seems to be really impacting your other digestive organs (pancreatic and gall bladder problems are fairly common around here) even if your biopsy does not have a lot of obvious damage... I am not well versed in the biopsy results, but when you wrote this...
  5. nvsmom
    I would not discount withdrawal yet. I felt worse during the second and third week too. I was tired, grumpy, had shakes and a wicked headache; it was a bit like hypoglycemia. Never the less, I am glad you are starting to feel better. I wanted to suggest getting copies of all of your tests, including the thyroid. Doctors are sometimes not very good at...
  6. nvsmom
    (((hugs))) Sounds like a lovely tribute.
  7. nvsmom
    i'm lucky up here, in my city there is a rougher side of town but there are very few spots that I wouldn't feel uncomfortable walking down the street. The east side of Calgary is a little rough, but I think it is largely because that is where most immigrants live and they come from rough countries with more gang violence. Asian gangs (where English is the...
  8. nvsmom
    I gave up dairy about 10 month ago, and I'm a bit gun shy - I still haven't reintroduced it back into my diet. To be honest, I am pretty used to not having it now and don't really miss it... well, I miss cheese a bit, but my oldest son is df too so I am partially staying df to support him. I have had small amounts of ice cream and whipped cream on cupcakes...
  9. nvsmom
    Good post. You know, one year in and I still want to feel better right now. LOL I really is hard to be patient at first. Once you know what is wrong, I think most of us want to feel better fast, with any edge that will help. Most of us settle in for the long haul within a few weeks or months though.
  10. nvsmom
    Ack! LOL
  11. nvsmom
    I got MY mom to read 50 Shades of Grey last ear, and next month she's turning 70 too.... But my mom is a spit fire who lives for her grandkids, heck next month we are all going to play laser tag for her 70th....She's quite the cool grandma even if she does wear bifocals and a bun. LOL MIL left this morning. I have my house to myself again. . Overall...
  12. nvsmom
    The EMA IgA tends to be positive in those who have fairly severe damage. Essentially the body realizes that damage has been done to the intestines so it sends in the EMA to wipe out the upper layer of the intestines in the hope of killing off whatever caused the first amount of damage (often tTGs). My city's labs are like yours, they only offer the tTG...
  13. nvsmom
    With your history of Hashimoto's thyroiditis, and anemia (do you have other symptoms too?), I would err on the side of caution and say that you most likely have celiac disease. A positive tTG IgA is pretty specific to celiac disease well over 90% of the time but it can occassionally be caused by chronic liver disease, diabetes, crohn's or colitis, and thyroiditis...
  14. nvsmom
    Do you have the normal reference ranges?
  15. nvsmom
    That is a real shame that their labelling laws are so loose over there! I can imagine how frustrating that must be. I am glad that you are feeling better now. I hope it continues.
  16. nvsmom
    If those symptoms are from celiac disease, then all you can do is give it more time and cross your fingers that they will improve. At 3.5 months into the diet I felt absolutely horrible after going through some sort of autoimmune attack that lasted a few months. It really did take addressing other issues to fix everything. Celiac caused me a lot of problems...
  17. nvsmom
    Has your son's counts come up? Good luck with the blood work. Let us know how it goes, okay?
  18. nvsmom
    My MIL is a nice person. Really. She has a good heart and cries at cute kitten comercials and all that but she is so incredibly flakey. She and her significant other cam to stay with us this week on a vacation. So far the visit has been better than usual because hubby has taken some vacation days to visit - he's a good help, and since she comes to visit...
  19. nvsmom
    Have you had your blood checked? I bet you are anemic - 17 days is a long time, Was it a heavy flow? I once had super long, and extremely heavy periods; it turned out I had thrombocytopenia (ITP) which means that I had an autoimmune attack against my platelets (which are responsible for clotting). Other symptoms included extremely easy bruising and petechiae...
  20. nvsmom
    Hang in there. It can take quite a while to get better, especially in those who have been living with celiac disease undiagnosed for a few decades. i noticed an improvement in stomach bloat and pain within days but then I hit a withdrawal and my energy levels and mood took a nose dive for about two weeks - I still remember that headache. I then felt quite...
  21. nvsmom
    I forgot about thyroid antibodies! Thanks Irish. That's another test to interpret with a grain of salt IMO. I am on a full replacement dose of thyroid meds and my TPO Ab is still in the normal range, although after one year gluten-free it went from the top of normal to 2/3 of normal.
  22. nvsmom
    ANA testing is tricky. It can be caused by other AI diseases like thyroiditis and possibly celiac disease, and it's numbers can change. I have had a positive ANA in the past on different occasions but it has been normal for over a year. A positive ANA is a clue, it is not definitive. Good luck with the tests.
  23. nvsmom
    It really varies... How do you feel with a TSH of 2.4? I personally did not feel well when my TSH was around that high. When mine was a 2.6, I was achy, dry skinned, constipated and cold (temp was 96 to lw 97F). I did not feel much different than when my TSH was almost 15.... But that is just me, others might be fine with a TSH of 2.4. My lab's range...
  24. nvsmom
    The upside of having a diagnosis is in case you need special accommodations for school or work - you could be taken more seriously. It helps doctors when considering other health problems like nutrient deficiencies (D, B12, foate, iron, ferritin, calcium, potassium, zinc) but you, you can request those tests without a diagnosis. Other autoimmune problems...
  25. nvsmom
    I hope you feel better on the gluten-free diet. Best wishes.
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