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Latest Celiac Disease News & Research:
Everything posted by nvsmom
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ARCHIVED Celiac Disease In Kids Detected By Growth Screenings - Live Science
nvsmom replied to Scott Adams's topic in Publications & Publicity
I just hope doctors use delayed growth as a tool to halp diagnose celiac disease and not as a criterion "In the children with celiac disease, 57 percent of the girls and 48 percent of the boys had abnormal growth two years before their diagnosis, they found. But the children weren't diagnosed until about age 6 for girls and about age 7 for boys, the researchers... -
ARCHIVED Positive Biopsies, Negative Serology - ?
nvsmom replied to murphy203's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Best wishes! -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
nvsmom replied to HavaneseMom's topic in Related Issues & Disorders
Gemini, you're a stronger person than I. For the first 30 years of my life, if a doctor said there was no problem, or that was just the way it was for me, I accepted it completely. In my 30's I stopped going to doctors unless I needed antibiotics. I even used a midwife at home so I could avoid doctors for childbirth. LOL In hindsight, I wish I had skipped... -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
nvsmom replied to HavaneseMom's topic in Related Issues & Disorders
I hear you on that. I diagnosed every single health problem I have had since my 20's. I just went to the doctor for confirmation. LOL I too had one doctor who didn't appreciate my demands (when it came to trying other drugs). He actually told me that I need to read less. Apparently ignorance is good for my health. I don't really know all that... -
LOL My assistant coach was another mom and because this was a boys team, we always needed to make sure we had a dad in the gym for safety/ bathroom issues. LOL
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Well said.
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ARCHIVED Bristol Stool Form Scale - Poop!
nvsmom replied to nvsmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
LOL I was a 2 and sometimes a 1 or 3. I had no clue at all that it wasn't the norm. -
ARCHIVED No Serology Needed?
nvsmom replied to Emmadax's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Murphy 203, You are correct that HLA testing can help rule things out, but with a positive test, or biopsy, you probably have your answer... probably. You are correct that the HLA can help clarify some questionable test results, but from what I have read, and heard from a minority of celiacs, I believe there are a very small number celiacs who do not... -
ARCHIVED No Serology Needed?
nvsmom replied to Emmadax's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Murphy 203, You are correct that HLA testing can help rule things out, but with a positive test, or biopsy, you probably have your answer... probably. You are correct that the HLA can help clarify some questionable test results, but from what I have read, and heard from a minority of celiacs, I believe there are a very small number celiacs who do not... -
Thanks again!
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ARCHIVED Diagnosed Toddler Exposure To Gluten Tonight
nvsmom replied to absullivan6's topic in Parents, Friends and Loved Ones of Celiacs
I am sorry that he is ill and hope he is well soon. Celiacs generally feel poorly for a few days, and up to a few weeks depending on symptoms. The immediate reaction (vomitting) may fade but other symptoms like fatigue and crankiness may linger for a while. Off topic: I'm afraid that my hackles are a bit up after reading the comment about not keeping... -
Glad you are giving it a beating, Fran. Best wishes.
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ARCHIVED Bristol Stool Form Scale - Poop!
nvsmom posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This topic is all about bowel movements so be forewarned... There's been a few posts about abnormal BMs lately, and it got me thinking about what a normal poop actually is, and how to recognize it when we have nothing to compare to except ourselves. I experienced C my entire life but I didn't realize how extreme it was because it was an everyday... -
ARCHIVED No Serology Needed?
nvsmom replied to Emmadax's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Some frank poop talk: Poops can can a long time to change. In my case, I had C for my entire life but I thought it was normal. Everything was well formed but in hindsight, it was packed way too tightly. Take a look at the Bristol Stool Form Scale to check and see if your BM's were actually normal. Open Original Shared Link As I said, I thought... -
Thanks!
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ARCHIVED Mark Teixeira Calls Gluten-Free Diet Meant For Celiac Disease 'no Fun' - Emaxhealth
nvsmom replied to Scott Adams's topic in Publications & Publicity
LOL Giving up SUGAR is no fun. We have gluten-free muffins and pancakes in the house all of the time, but making them sugar free would be tougher. I wish he hadn't focused on gluten-free for this article. It sounds more like he went grain free, along with dairy and sugar free. Totally different than gluten-free. KWIM? -
ARCHIVED I Think I Might Have Hashimoto's - What Test Should I Ask For?
nvsmom replied to HavaneseMom's topic in Related Issues & Disorders
There's a fair number of us around here with Hashi's. You're smart to look into it. Thyroid testing can be tricky because subclinical hypothyroidism will often have "normal" lab results. From what I've read, people who have thyroid problems need to have numbers within a certain range in the normal reference range - that reference range is often too... -
ARCHIVED Burn In Genitals
nvsmom replied to Joana's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ouch. My first thought was it could be a yeast (candida) infection. That can cause a great deal of discomfort. The rash associated with celiac disease is dermatitis herpetiformis (dh). It is a horribly itchy rash that is very sensitive to gluten consumption. We have a forum for dh here, so asking questions about it there could give you more information... -
I have to brag! My son's basketball team, which I coach, won the gold medal for their division today! I'm so proud of him and my team. Gush gush... Yay us!
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ARCHIVED Is The Endoscopy Even Worth It?
nvsmom replied to kabons's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome to the board. How long had you been gluten-free before you went back on gluten for two weeks for your blood tests? I ask because tTG IgA levels are slower to respond to changes in diet than the DGP IgA levels. In fact, doctors will often retest the DGP to check for compliance with the gluten-free diet because it more closely reflects levels... -
Mmmmmmm. Burgers.....
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ARCHIVED Gluten Free Crisps And Sweets Etc
nvsmom replied to TashaLouise's topic in Gluten-Free Foods, Products, Shopping & Medications
This could be a really big list. Most candies are gluten-free around here (Canada). gluten-free cookies or crackers are generally labelled that because it is so unusual to not use wheat in crackers and cookies. I have about 5 of 6 brands of crackers I can buy, and cookies I usually make, but I'll buy some gluten-free brand like Glutino. In Canada... -
I doubt there would be a risk of cc... I suppose it could be possible. If you are worried, wipe the tip of the tube before using it.
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ARCHIVED How Long Did It Take You To Really Feel Great?
nvsmom replied to icelandgirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think I stopped improving at about one and a half years. My (arm) arthritis seemed to be at it's best around then, and my migraines and other problems had improved greatly. I still have some issues like periodic, annoying hair loss and fatigue, but I'm not convinced it is celiac linked. I've developed some sort of arthritis in my hips in the last... -
ARCHIVED Apparently More Celiacs Cancel Endoscopies Than Non-Celiacs
nvsmom replied to Firsttimemama2014's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Enjoy a cinnamon bun for me some time in the next week.