Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    I'm so glad your little guy is feeling better already! Sometimes the youngsters bounce back at a rate that we adults can only envy. When she has the biopsy done, try to get at least 6 samples taken. Celiac damage can be patchy so the more samples taken, the more likely that it will be caught. Also, remember that the biopsy is not foolproof....
  2. nvsmom
    The experts call your situation latent celiac, which basically just means it is probably early celiac. If you continue to eat gluten it is expected that your health will decline with more symptoms and you will eventually show damage to your intestines... which frustrates me to no end. In order to get an "official" diagnosis, you need to get sicker - a terrible...
  3. nvsmom
    It's tough being pregnant and an undiagnosed celiac. I remember having to take a nap in my car with my toddler, after grocery shopping because I could not find the energy to get the groceries, and the baby, into the house. LOL I barely remember anything from my third pregnancy - I was too tired. You should push to have the blood tests done. There is...
  4. nvsmom
    Lab tests do not correlate well with celiac disease severity. There are people around here with normal labs but with serious intestinal damage and then there are others with normal intestines (or at least the samples taken were normal) but they have very high blood tests. There is a huge variation between celiacs. The problem with testing is that in order...
  5. nvsmom
    Sorry you are sick. Recovery times vary a lot. Some people do not get a single symptoms while others are knocked back for weeks. Hopefully you'll feel better within a week or so. L-glutamine is supposed to help with intestinal lining healing. Sleep and fluids tend to help too. Best wishes.
  6. nvsmom
    Welcome to the board. The EMA IgA is very very specific to celiac disease. If you have a positive then it is pretty much a sure thing that you, well your wife, has celiac disease. Take a look at thois report from the World Gastroenterology Organisation (page 12) and you can see that the EMA IgA is indeed 98-100% specfic to celiac disease. Open Original...
  7. nvsmom
    My boys lunches usually consist of: smoothies (veggies, fruit, yogurt, protein powder and other stuff veggies (cucs, carrots, peas, peppers) fruit (mango, apples, bananas, grapes, berries) crackers (rice crackers, Mary's, ricecakes) muffins (usually coconut flour) a treat (granola bar - Glutino) pepperoni sticks and meats cheeses nuts (if not an issues for...
  8. nvsmom

    ARCHIVED Grain Brain

    nvsmom replied to MissyBB's topic in Publications & Publicity

    I read it about a year ago. I felt it was a fine book but I did not learn anything new. I knew what grain could do to your brain from reading other books for celiacs and Wheat Belly. It seemed like a long read to me - it was a book that could have been a long magazine article. KWIM? For someone who knows little about the effect of grains on our bodies...
  9. nvsmom
    For the blood tests, you'll need a gluten challenge between 8-12 weeks of 1-2 slices of bread per day (or equivalent). The general feeling is that if you eat 2+ slices, you could go for the shorter challenge, and if you only eat 1 slice, you should do it for 3 months. For the endoscopy biopsy, doctors usually want a gluten challenge of 2-4 weeks but I...
  10. nvsmom
    Autoimmune diseases like RA, lupus, diabetes (T1), hashimotos among others, are often found in the families of celiacs, or in celiacs too (many of us have a few issues). Having AI diseases in the family is a good reason to keep an eye on celiac symptoms. I have family members with celiac disease, I also have some with thyroid problems (seems like half of...
  11. nvsmom
    I agree with the others. Many celiacs are symptom free and don't react obviously to gluten but that does not mean that it isn't damaging your body in ways that will be evident in the future. You need to make sure you are completely gluten-free and not just mostly gluten-free. Ingesting gluten once or twice a month is enough to stop your healing and keep...
  12. nvsmom
    Welcome to the board. It's good that you are getting testing. Better safe than sorry since you do have symptoms of the disease. You symptoms are pretty mild but that happens in some, and the symptoms often get worse as the disease progresses. When I was in my mid 20's, I was running 3-15 miles per day, lifting weights, and working full time, and my symptoms...
  13. nvsmom
    That is such good and simple advice! I wish I had thought of it!! I need a head smacking smiley here...
  14. nvsmom
    Welcome to the board. IBS is just a group of symptoms and not really a diagnosis of anything (in my opinion). There are many around here who had IBS symptoms which did resolve with the gluten-free diet. Her symptoms are pretty common celiac and non-celiac gluten intolerance (NCGI) symptoms, and if she is not 100% gluten-free, those symptoms will continue...
  15. nvsmom
    Gemini is spot on. Those symptoms link back to celiac disease. I would be willing to bet money that you've had it for quite some time. It is not uncommon for celiacs to have a negative biopsy. The last stat I saw was that the biopsy misses 1 in every 5 celiacs - that's a large amount considering doctors put so much stock in the biopsy, "gold standard...
  16. nvsmom
    For a biopsy, I usually see a gluten challenge of 2-4 weeks with the equivalent of 1-2 slices of bread per day. Because you are going longer than that, I would ease into it a bit and start at 1 slice of bread or less for a few days. I don't know if easing in will help but it might make it a slightly less of a shock to your system. Just don't overdo it...
  17. nvsmom
    Improved health. I didn't realize feeling poorly wasn't normal. LOL I also have an appreciation for other people's food requirements and issues. I thought I was understanding before, but I think I was not as understanding as I should have been.
  18. nvsmom
    Sorry you've had such a tough go. Withdrawal only hits some celiacs. I've seen a stat saying around 30% experience problems, but I'm not sure on that number. I'm not sure what it is exactly that causes the withdrawal. I don't think it is the lack of gluten, but I'm not sure. It could be from cutting sugars or starches. It could be something else...
  19. nvsmom
    I've found it a bit surprising that women do not have celiac disease at a higher rate than men since women do tend to get autoimmune diseases more often than men. This is the first study I've noticed that has found a higher rate in females.
  20. nvsmom
    We use Summerland Sweets Blueberry Syrup, but it may not be down in the States. I would imagine that most syrups are gluten-free, but we tend to use berry syrups or maple. The grocery store is tough at first. You'll find your brands eventually - you just need to hang in there for the first few months. Don't forget to get the rest of the family tested...
  21. nvsmom
    Those first weeks are the hardest, plus some people have a withdrawal (from the sugars or starches... I don't know) which makes one feel worse with extra fatigue headaches and such. Add to that the fact that you probably are not feeling a whole bumch better yet, and the first month is tough. Stay gluten-free. You'll be happier in the long run. Best wishes...
  22. nvsmom
    It can vary. Some feel fine in a few days whereas others take a few weeks to feel better. L-glutamine helps with healing of the gut. You could try that. There is a stomach flu going around my city that feels like that. We get just marginally ill but our stomachs are off. I had one kid throwing up, another has stomach pains, and I have cramping when...
  23. nvsmom
    Your regular doctor should be able to order them, but if you see the GI, the GI should know them.
  24. nvsmom
    ... The picture in the article is of the Rice Krispies that is NOT gluten-free....a bit misleading. LOL
  25. nvsmom
    I you get a copy of the biopsy report, you could start a new thread in the per diagnosis board and some people there can help you interpret the results. Some of them have done a lot of research and reading in that area. Best of luck with the diet. Try to keep a journal too as some celiac symptoms change so slowly that you hardly notice it until you look...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.