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sunny2012

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Latest Celiac Disease News & Research:

Everything posted by sunny2012

  1. sunny2012
    I was not diagnosed for 40 years. I was near death, rushed to hospital via ambulance, passing out from low hemoglobin, and very serious all over body damage when doctors finally gave my symptoms some serious thoughts. I still have terrible stomach troubles. There are days life literally is not worth living just from not knowing that removing gluten would...
  2. sunny2012
    "I don't remember all gluten items making me feel sick? " stick with 100% gluten free. You will eventually feel better all the time. You will eventually realize that you are very used to being pretty sick a lot. I have been doing this for 20 plus years. Right now my biggest pet peeve is the idea of needing to "feel sick" when gluten is consumed. People...
  3. sunny2012
    Celiac can become life threatening if not treated seriously by all who are in the household. Limited choices is the perfect way to deal with this issue. IF they choose gluten items out of the house, they are also choosing to wash up according to your requirements. Otherwise, no more gluten.
  4. sunny2012
    The way a law is implemented and enforced matters. Manufacturers are self policing. What they report as safe is accepted as safe. Right now, there are no requirements that gluten be identified in medications. Fillers and binders are considered harmless and fall under the inactive ingredients clause. Sec. 201.117 Inactive ingredients. A harmless...
  5. sunny2012
    I was so sick when I was diagnosed 20 plus years ago, that everything I ate caused me serious troubles with digestion. I had to eat very small meals of only fresh meat and freshly cooked veggies for nearly 9 months until I could actually start feeling better. The lining of my intestines was so damaged that the doctor said it was completely smooth to the eye...
  6. sunny2012
    Most people will talk without totally swallowing all that is in their mouths. I have found bit of bread in my water glass. Now I eat away from everyone else who can't chew and swallow without talking.
  7. sunny2012
    Any changes in life cause us to grieve. Google stages of grief and see some steps to adjust to this new life style. The constant need to be aware of every single ingredient, careful of what we touch, how our food is handled, and even stored in the grocery is exhausting. It take so much to stay well when even prescription medications can legally contain...
  8. sunny2012
    Most generics use cheap fillers and binders to lower the costs. The problem is that they are frequently created overseas and full disclosure on the ingredient list is not always available. If you are in the U.S.A., there is no law that actually requires medication manufacturers to fully disclose the ingredients in medications. At my pharmacy, it is up...
  9. sunny2012
    The other thing is comfort foods when one has a cold or flu. Please explain why the gluten-free chicken soup in the can has to be filled with spices and hot sauces? (because when I am too sick I don't have strength to make it from scratch). I lose nearly 10 pounds anytime that I catch cold.
  10. sunny2012
    Ravioli!!!! I'd die for a gluten-free ravioli. (Only kidding....I could actually make them myself except that I have serious muscle, bone and nerve damage from poor understanding of this disease decades ago when I was Finally diagnosed at the brink of death.
  11. sunny2012
    My biggest frustration is restaurants that have a caveat at the bottom of the menu, "We can not be held responsible for 'normal' cross contamination that occurs during the preparation of foods in the kitchen". If raw chicken can be kept from contaminating everything else, so can gluten free. Also, there is no point in claiming that an item is gluten-free...
  12. sunny2012
    You may need to educate your pharmacist about which brand or manufacture to purchase for you. Get the list of gluten-free meds and refuse to accept anything with gluten. THey can choose which to order for you.
  13. sunny2012
    I get food from a good friend all the time. Even gluten-free foods can be cross contaminated when shelved among gluten flours, breads, and such. She just does not get it. So I simply thank her for her thoughtfulness and toss the entire package or bag. Some people simply don't realize that we can end up starving to death if we constantly take risks. And...
  14. sunny2012
    I only eat what I bring or make. There really is no need to expose yourself to this risk. Even without symptoms, the damage in your gut is there. And that can cause slow life threatening issues. We need each inch of our intestines to absorb the nutrients they were designed to take in. I almost died from Celiac due to lack of understanding by doctors at...
  15. sunny2012
    I never eat anything at pot lucks. People are simply not aware enough to be careful not to use the same spoon in multiple items.
  16. sunny2012
    We live near that particular resturant. Have been going since the inception of the extended gluten free menu. We were there two weeks ago and had a very nice gluten free onion. No mention of these changes was made to us despite knowing every server and the owner of the resturant. The manager moved several years ago and yet the continued the gluten free....
  17. sunny2012
    I went to the Roswell, GA Outback on Saturday June 15, 2012. They no longer have an EXTENDED gluten free menu!!! Don't bother to make the long drive. WORSE- they will let customers wait in line, be seated, order and receive drinks, and only when an item is ordered do they inform you about this major change to their menu. The hostess staff coyly claims...
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