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gatita

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gatita

  1. I'm pleased but a bit overwhelmed. My friend owns a classy but very busy Mexican restaurant and would like me to spend time with the cook and others so she can train staff to deal with gluten-free customers, maybe eventually offer a gluten-free menu. I don't know where to start! She said the chef has been there 30 years and is stuck in his ways, but she...
  2. I still go, but I don't always eat. Wouldn't it be amazing to know enough celiacs to have a REAL party without worrying about the food? That would be something. I am the only one in my group of friends right now who has it, although every day I do meet more people (interestingly, all in the medical profession) who are gluten-free for various reasons...
  3. How do you do that? I tried googling once and found nothing. I accidentally gave myself a "skin patch test" after a gluten challenge! I was throwing out some very stale French bread and the crust scratched my arm. I saw my skin turned red, so I picked up a piece and kind of scratched my skin some more with it to see what would happen. It swelled up and reddened...
  4. Oh man, so sorry.... I don't know how y'all do the shared household thing. For the most part, my housemate has gone along with the gluten-free thing quite nicely. Recently though he brought home some flour tortillas for himself because he missed them. But he quickly realized what a pain in the butt it was to thoroughly wipe down everything every time he heated...
  5. Boy it sure does! So glad it's over, too lol. I had such a bumpy road to healing that it's only now I can clearly see how sick I was in the three months before I gave up gluten, June, July, August.... hurts to think about it. Thanks everybody, I love the sparkly guys!!!! And "Silly Birthday"!!!! Now I know what to call it
  6. Wow, this is such a trip. For about a month, the smell of vinegar when I used balsamic in food was overwhelming. The smell was overpowering, like pure acetic acid -- and I couldn't stand the taste. I never had that happen before, it was so strange. But it went away. It was right around the time the skin inside my lips was peeling off, among other totally...
  7. From a legal point of view, this raises some interesting questions. There is no doubt there have recently been intriguing new ADA case rulings. The successful ADA lawsuit by a celiac student at Lesley University surprised a lot of us, and has led to changes in campus dining halls across the country. But there is a difference. In the case of college, the...
  8. Oh and congrats on two years down... I should say UP!
  9. Thanks for the birthday sparkler, IH! I sent my bro that very article plus a bunch of research studies, to no avail...yet. They are sending him to a university research lab in Portland (OR), so I hope someone there knows about gluten ataxia. Once I save some $, I'm going up there to show him he really can go gluten-free and life will not only be fine but...
  10. This was the symptom I worried about the most -- numbness and tingling in my feet and hands. It went away after around five months gluten-free. So I am a believer! You lose nothing by trying... I never went off corn or soy, but if you think they might be a problem, try it. I found, however, that it takes me more than just a couple of months to really...
  11. And what a crazy journey it has been.... Yup, June 10, 2012, I was sick as a dog, rushing home from a road trip with massive gut pains and, ahem, other classic symptoms . I still believe I caught giardia or something like it, and that the infection triggered my.... whatever it is. Boy was I naive when all this started. Here's what I've learned, in...
  12. Eight months for me. And sooo worth it. But boy, it was a bumpy ride! Hang in there!!
  13. Those are exactly my glutening symptoms! They make me miserable enough that I will never knowingly eat gluten again. I have a couple of thoughts... 1) Yes, go for the diagnosis. But if like me a diagnosis is hard to come by, you may want to do your own "gluten challenge" just to prove to yourself your symptoms are real. 2) Give yourself a little time...
  14. Glad to hear you're doing better! My constant D didn't stop for 8 months, (even going dairy free and keeping a food diary), so it can take a long time for some of us. Yes I am so much healthier now than even a few months ago (10 months gluten-free now) Hang in there!
  15. I am so sorry.... I noticed I had a very bad attack last week when I was super stressed about money (I know, it seems small in the scale of things, right?). My conclusion was if you do get glutened when you're stressed, the symptoms can be WAY worse. I hope you can find a few moments of peace during the rough time you're facing right now.
  16. Yep, welcome to the club! You have a great attitude, and I hope you stay involved with these boards, they are SO helpful.
  17. Yep, that's me! Ten months in, I still have occasional squirrelly gut issues, like this morning. But they are short-lived and not really a problem. I felt a LOT better after about 8 months. Now it's only bad when I'm accidentally glutened.
  18. I hear you! It's very hard not to blame every little thing now on gluten, huh? Like my latest "rash" which I actually figured out was bug bites. Maybe bugs like gluten-free people better...
  19. Oh my goodness, I just found this thread. How sad and shocking... mushroom was SO very helpful when I first landed here, and well, always, really. That's a really beautiful poem, IH.
  20. Just want to say welcome and I would LOVE to eat in your restaurant! It would be so freakin' great to eat out in a safe, 100 percent un-contaminated place. I know my non-gluten-free friends would go there too just so we could all enjoy a meal together like the old days, sigh. There are so many good, fresh dishes that anyone would like. Just make sure...
  21. How long have you been gluten-free? I've been gluten-free for ten months and the first 8 were a LOT like what you describe... all kinds of strange symptoms and weird tongue and mouth stuff. And cramps and gut things that seemed to have no rhyme or reason. All I can say is it does get better, and takes trial and error and a good food diary and time...
  22. Yup, this is true. After all, "they" say the DQ2 and DQ8 are found in around 97 percent of celiacs. So what genes do the other three percent have? And there are two reputable studies linking DQ9 (which I have) to celiac. So while doctors like to say a negative gene test is definitive, it ain't.
  23. I went through a lot of the same. But when you feel so much better going gluten-free (or in my case, get so sick when you try to re-introduce gluten) you know the answer -- you have NCGI. I understand the not wanting to come off as nutty. I went thru a lot of that at first when my tests came back negative, including the gene test. I should add that...
  24. I agree with eers, don't give up, just be there. Maybe she'll come around after she sees you're gluten-free and surviving... I get frustrated with my own brother who has severe ataxia, but because his celiac blood test was negative, he doesn't even want to try going gluten-free. Aggghhhh... I don't know anyone else who is gluten-free either, that's why...
  25. ....especially for those of us troubled by the big C!
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