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eers03

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by eers03

  1. I too enjoyed jogging and being moderately active prior to diagnosis. My weight decreased and I became rather weak around the time of diagnosis and even got to a place where I couldn't really work out at all. For me, I was drastically underweight. I chose a weight goal, (170) @ 5'11' and used MyFitnessPal, the iphone app, to help me track my daily...
  2. For what it's worth, I've heard the "low-gluten" suggestion before but for Celiac's, this is sorely inadequate. I recommend partaking in the wine or "blood" but not the wafer or "body." My priest approved this practice as well. This is obviously subject to your religious beliefs and those could certainly differ from mine, and thats okay. Hope this...
  3. I had the same problem. I took osteo biflex for about a month and noticed a difference. Maybe it would help. It's an OTC supplement. Good luck.
  4. It's awesome when someone offers me food or beverage that I really want nothing to do with. "Oh, yeah, I have Celiacs Disease - seriously - can't have that - its just bad news!
  5. Hi - This happened to me as well. Here are some thoughts to ponder that may help... 1. Make sure you are making an extra effort to stay hydrated. I don't mean drink gallons at a time but make sure you get adequate water. 2. Eat bananas. Make fruit smoothies at your house and drink those once and awhile as a change up. 3. Consider taking some Osteo-Biflex...
  6. It takes 1/8 of 1 teaspoon to create a chemical response in your body to Gluten whether you feel that effect or not--it's there. I have seen research (although I can't cite it, sorry) that said eating (1) cheat meal per month increases the mortality of someone with celiac disease by 600% in long term studies. It seems like I found these stats on a .gov...
  7. I cannot disagree with the logic behind going ahead and running both panels just to be safe. Good idea.
  8. A biopsy is really your call. I will tell you that they used a different celiac panel for me because I am IGA absent. I have no IGA whatsoever. Your child is only 1 point out of normal range. The IgA marker is surely adequate. Perhaps adopt a holding pattern for now and do follow up labs in 6 months? You have elminated egg, lactose, and gluten. You...
  9. It has. It made me acutely aware of my mortality. So, instead of working the same job that I didn't care for just so I could get a nice check--I left it. I went to a place that I belong and fortunately, the people embrace me regardless of my dietary needs. I promise you this, I will call out anyone that tries to deny me a meeting/networking opportunity...
  10. Put a moratorium on health related questions and talk. (if possible) Then, busy yourself. (to the extent possible) For me, the busier I am, the less I think about negative things. The less I notice aches. The less I question every quirk in my body. It doesn't magically fix things but it sure does seem to help. I know that sounds so easy but I understand...
  11. You're in the right place! This place has provided peace of mind many a time. Post any time!
  12. No. 1/8 of one teaspoon creates a reaction in our bodies even if we don't feel it per se.
  13. Yes, you should see your doctor and request the blood tests for Celiac that bartful mentioned above. I had benign lesions and elevated enzymes for my liver. The enzymes returned to normalcy on a gluten free diet. The joint pain, the liver enzymes, the anxiety/depression, its definitely worth checking into celiac disease. Good luck.
  14. Welcome to the forum. If you are reacting to rare gluten consumption as you stated, you need to never consume it again. Ever. There is research out there that makes gluten to a celiac look like poison to a normal person. Congrats on your determination and open-mindedness to listen/learn/apply what you figured out. Right on!
  15. Welcome to the board! Ask ANYTHING. I sure do. How you feel is completely normal. It took me months to finally convince myself that everything is going to be fine. You'll get there. It takes time to adjust but you will. Eventually, your dietary requirements will seem less like an extra effort and more like a normal way of life. Promise.
  16. That's intense! I assume you are on blood thinners now, yes? Make sure you are getting plenty of water. Some blood thinners require you to drastically lessen your consumption of leafy green veggies... You might check on that. Maybe go light on the caffeine if you are a partaker. I would obviously shy away from alcohol if you are a partaker as well....
  17. Tell your husband it is the equivalent of getting the worst possible cramp from eating a 12 ounce steak with sides, washing it down with a bottle of beer and then going for a brisk run immediately following. Its sharp, it lingers, and the worst problem is, you're not running on a steak--you were merely cross contaminated!!! It's basically like that...
  18. This is a really good idea. I wish I could claim it.
  19. It heals. If the bleeding persists you should consult a doctor, PA, or nurse practitioner. I agree, bright red could be temporary but dark/black/sandy blood needs to be checked out. Stay away from gluten if you think its helping and absolutely stay away from lactose if you know you are allergic.
  20. You are not alone! I think this is very common. During my last trip to Mayo for follow-up on my celiac disease, I met a phlebotomist who had the same problem. She was scared it was some kind of heart issue. All of her tests were coming back negative. She eventually found out she had celiac disease. After a few months of eating gluten-free her symptom...
  21. If you are going to eat a banana, I suggest doing it in the morning with your normal breakfast. Eggs and bacon, or on top of a waffle, or mixed in your gluten free rice crispies... If I eat them early in the day, I'm fine... If I eat them later in the day its like all my other food plus a banana is just too much to handle and I will get heart burn... ...
  22. I would not mention anything about your diet on your profile. I agree with Irish, play up what you like to do. If you find yourself going to dinner, go to PF Chang, ask for the gluten free menu and just be casual about it. If on your date, you act like its a big deal, your date will think its a big deal. If you act casual, they are more likely to be open...
  23. I'm not sure so someone please chime in... Cortisol levels can also be a metric for Addison's Disease, yes? If thyroid is checking out okay then it seems like that is what the cortisol would point to. I'm on shaky ground here. Not sure on this but it seems like when I was at Mayo they tested my cortisol to check for Addisons. Mine checked out okay.
  24. Create a goal weight and track your calories. If at all possible, never miss that daily caloric intake goal. Gaining some weight will make you feel better. Its exactly what I had to do. If you have an iPhone or iPad there are lots of apps that will help you do this.
  25. Hi there. I can see why it may feel confusing. As mentioned above, some MS patients improve on a gluten-free diet. Either way, I don't think it can hurt you at all to go gluten-free. If you are still concerned that you have MS, you might read more about the effects of casein. Some seem to think that both gluten-free and Casein free can be beneficial...
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