Lisa

Here is some good information:

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srthomas, believe me the allergen law is NOT useless. Before the U.S. was required to list the top 8 allergens, life was MUCH tougher for people with celiac. Hidden wheat was the main problem in more than 95 percent of cases. Rye is never hidden and most of the time barley is listed as malt. Celiac organizations DID lobby to have all gluten listed, but eventually realized the top 8 allergens was what could be accomplished. It was a good compromise. Soon, we'll have a gluten-free standard as part of that deal.

Yes, in a perfect world all gluten would be clearly labeled and companies would never process in a facility with gluten and the gluten-free standard would be zero ppm. Ain't going to happen. But what we have now is so much better than when I was diagnosed more than 8 years ago.

richard

I do have to agree with Richard. In the past five years since I was diagnosed, GREAT progress has been made to make my life easier and YOURS.

Look toward the future. Request fairness. Some things in life are trial and error. Don't ask the world to dance circles around you. Learn what you can and share it with those who are like you. Everything is not a fight. Life is simple, don't complicate it.

I had no problem. The worst part was the anticipation. Bring someone with you to ask questions or to listen for you. Although awake, I could not remember anything what was said, after the procedure.

And you certainly need a ride home.

The biopsy should be pain free, there are very little nerves in your intestinal lining.

Hi everyone ,

After being diagnosed last week I am on my 4th day of gluten free. I can not believe how different and better I feel. Already Iam sleeping through the night .. No morefoot cramps inthe middle of the night.My stomach no longer feels like I drank acid after I eat. I am not so tired during the day.. I go back to the oncologloist hemotologist tomorrow to get an iron level. It has to be better because for the first time in over a year I DIDNT EAT ICE all day. Not even a cube. My question is can some one send me some normal foods I can still eat? I did make a loaf of gluten free bread, which was so so.. I have hd Gluten free pasta not bad but what else can weeat what is a days worth of eating look like?

Can someone email me a menue of what you eat or snacks I can make at home?

Lynnet

Lovletter at aol dot com

Hi Lynnet! Take a walk around the Product section of this forum. It has some great information.

I thought this was pretty cool. So im 13 and i'm gluten free(thru enterolab, cant say its really celiac, but..)

I went to my friends christmas party, it was 4 girls. me, her, another friend, and one of her friends i didnt know. Her other friend was gluten free too! even dairy free like me:)!

A few weeks later, i went to a sleepover with my 4h friends. One was corn and gluten free! I was so surprised!

Even at school, i told someone no thanks to a cookie, and she's like why? and i said i cant have it. she was like "oh you cant have gluten?" without even knowing me well!

I'm not saying that im truly "happy" that so many people have it, i'm just a little happy that people actually are starting to be aware!

Just thought i would share:)

It's nice not to be alone anymore.

Is Arbor Mist wine gluten free? I bought it thinking it was...I think I even drank some after being gluten-free before and was okay...yet suddenly I'm getting paranoid with doubts.

I found some threads saying it was okay, but those were from 2004, 2005...anyone? Please? I want to drink it lol.

https://www.celiac.com/celiac-disease/gluten-free-alcoholic-beverages-r218/

I just came home from the doctor after finding out that all the health problems i have been having over the past year has turned out to be

Celiac Disease and I have to have a Gluten free diet. I was handed a magazine called Living Without and after browsing through it and reading online for a little while about this condition and what it entails -- I am very overwhelmed! I live in a very small town and there is nothing but the basics in this small town and am thinking I am going to have to start buying my food online. I would have a three hour drive to get to the largest city to find a specialty store that carries the products I need. I have been looking online at some stores and the prices for bread, pasta is like almost $5.00 for a box of pasta or a loaf of bread without shipping. Are there some people out there from small towns that are in the same situation that could guide me to some spots that you have found online that have reasonable prices etc? Thanks so much!

Hello and welcome! You have found a great place to learn

Start simple. Don't buy gluten free foods right now, you won't like them. And take a deep breath.

By starting simple, I mean, eat naturally. Meat, fish, rice, potatoes, fresh veggies and fruit.

Cecelia's Gluten Free Grocery Shopping Guide, or Triumph Dining Grocery Guild will help you through your first years, when shopping for main stream gluten free products that you can find at any grocery store. After a year, you will be able to read labels successfully and need not depend on lists.

Our recipe section here can give you some great suggestions.

And read, read, read here.

I was just introduced to the book Breaking the Vicious Cycle by Elaine Gottschall. I am

considering attempting the Specific Carbohydrate Diet discussed in the book. Just

wondering if anyone is familiar or if they have tried it and seen any positive results.

Here is a thread that can tell you everything you may want to know and MORE :

https://www.celiac.com/gluten-free/index.php?showtopic=62006

I bought a bunch of Mars candy bars on sale right after Halloween because I remember reading multiple old threads that mini and fun size Mars candy bars, such as snickers, are justs as gluten-free in mini size as they are in larger size. (I think I had gotten glutened by mini almond joys in the past.) Even Richard had contributed to one of the threads and said mini snickers are gluten-free, so I thought I was super safe.

So I put the bags in my freezer. I opened a new bag of 'fun size' snickers yesterday evening, and I am definately feeling symptoms today. I started a food journal last month and nothing else looks suspicious. (I primarily have been eating things I'm cooking with safe whole foods.) The label on the bag of snickers doesn't list any wheat or barely, and supposedly Mars is clear in labeling.

Has anyone else reacted to 'fun size' snickers, or should I look elsewhere for what feels like a glutening?

Somethings things are just a mystery.

Well I tried to post the link but this forum won't take it (as you can see), but if you go to the link and the product information on the site, it takes you to purchase through amazon an it's on page 6. It's listed as a single item for $49.31, 6inch round 1.25 pound new york cheese cake.

http://astore.(Company Name Removed - They Spammed This Forum and are Banned)/wwwpamelaspro-20/detail/B002LLFW40

Salax, I don't doubt what you saw, but wonder if it was a mistake. Who in the world would buy a 6" cake for that amount of money. That's outrageous! and I'm a large fan of Pamela's.

Wow...I am drooling.

Only problem is it's really expensive.

I get that gluten free flour mixes are expensive but cream cheese? Common now, 6 inch round cheese cake for $50 bucks, seriously?

Might have to make my own.....*puts the gloves on*

Where did you see $50.00 for a 6" round cake? It might be a per case price, not an individual cake.

Starbucks used a mom?

Yup! Meet Dr.Lucy:

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Yeah!!!

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Who was their research person?

She is a mom just like us, who struggled to find everyday products for her son, who has multiple food intolerance.

Every time I see a new product, I am thankful for the great advances in research, awareness and product availability. Five years ago, there was nothing!

...and anxiously waiting to find Pamela's new product, Ready to Eat Cakes and Cheesecakes (in the frozen sections)!!! Yum!

www.pamelasproducts.com/cheesecakes.html

anyone?

Here is some information that might be helpful:

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Do NAUGHT tell my dh this or I will hunt you down

Oh dear..my laugh for the day.

See ya around Dave.

Some people report that they are more sensitive to gluten, once they are on the diet for a while. It's not unusual at all.

Dairy can mimic some of the same symptoms as gluten, but once the villi heal in your intestines, dairy can often be reintroduced without issue.

Keeping a food diary can help you pinpoint a problem.

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https://www.celiac.com/articles/21480/1/Significance-of-Screening-Detected-Celiac-Disease-in-Children-with-Type-I-Diabetes-A-Case-Control-Study/Page1.html

No butter? Do you mean they are dairy free! Oh how happy i would be:)

is there any information any where on this i would like a dairy free gluten free cookie:P

The newspaper article that I read this morning said that they are free of most allergens. Some do contain soy. Dr. Lucky cookies of Virginia Beach:

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Gluten Sensitivity v. Celiac Disease- What do we know?

1/7/2010

A great deal changed in 2009 in the area of gluten sensitivity and celiac disease. My book, The Gluten Effect was published early in the year and I must confess that my co-author and I felt like quite the renegades during the year we were writing it and for several months following its publication. The reason was that there seemed to be two distinct camps in the field: those that felt that celiac disease was the only

The claim of product status as gluten free, is totally voluntary at this time. The criteria for "gluten free" has yet to be established and adopted, by legal standards, in the US.

Does Quaker test random batches?

Are they manufactures on shared lines?

Are they processed in a facility with other wheat products?

Do they list these disclaimers on their label?

At this time, everyone wants to jump on the gluten free bandwagon. It's a blessing and a curse, with out a legal standard. Inform yourself and draw your own conclusion.

Simply put, MSG is not a problem for people with celiac. Period.

richard

Richard, although MSG no longer contains gluten it IS a problem for some people, Celiac or not. Period, as you put it. Do not be so dismissive of something just because you do not have a problem with it. For those how want to know, MSG is made from beets usually. And unless your food is coming from another country, or react to MSG it is considered safe. Note I said safe, not good.

On a website related to issues pertaining to Celiac Disease, and it's associations, MSG is not of a gluten concern in the United States.

It's well known that many do not handle MSG well, and many have addition sensitivities.

I went on the gluten-free diet last summer before consulting with a doctor. Going gluten-free has been a miracle. I am considering seeing a doctor in the Twin Cities because I can't help but wonder why going gluten-free has changed me in a positive way. Am I really sensitive to gluten? Is it alright if I go to a doctor without gluten in my system?

Every available test, requires gluten to be active in your system. It's clear that you have a gluten sensitivity at some level.

But, if you have have digestive difficulties in the past, it might be wise to visit a doctor. You can google Celiac Sprue Association and find some local support group in your area and medical recommendations.

Welcome! And congratulations on your pregnancy.

If there is a clear indication that you may have Celiac Disease, it's essential that you begin the diet immediately.

Consuming gluten sets off an autoimmune response which takes place in your small intestines, resulting in your body attacking itself.

The villi, which are the receptors for all nourishment that supports the body, are damaged in this "attack".

Vital nourishment cannot get to you or the baby.

Beginning the diet can be challenging at the start, but this forum will guide you though.