Lisa

Please forgive me if I am the only one ignorant here. I know the "G" is for "Glutamate" and I think that MSG is a spice or a sugar of some kind. I just want to be sure that MSG is gluten-free. Does anyone out there know?

No gluten in MSG. Not real good for you, but no gluten. AND, no ignorant questions here. Any question is a good one, because 100 other people thought about asking the same question.

There are defined stages of dealing with Celiac.

At first, I was confused and had to learn what Celiac Disease was after my diagnosis. Then, I felt a sense of relief that I did not have a life threatening disease.

And I remember standing in the middle of the isle in the grocery story and getting so angry with my eyes filling with tears.

The learning curve is very steep, but many, many good people here helped me make my way through this struggle.

There are many support groups around the country. What city are you near and I will pass on some support links. But, this is the best one around.

Here is some light reading , on the complexities of Celiac Disease:

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I will agree with you that the diagnostic envelope for Celiac Disease is far too narrow.

Hi Alicia and a BIG welcome. If we can help you in anyway...just let us know.

So my genes from enterolab were HLA-DQ 3,3 (subtype 8,7) can someone tell me what in the world this means in a way i can understand??? Im very confused.

And I had on the fecal antigliadin test a 26 (normal less than 10) but on the fecal tissue transglutimanase it was a 9(normal less than 10) does it mean anything?? One positive and one negative. It says to stay off gluten because i had a positive. any other info? thanks

https://www.celiac.com/gluten-free/index.ph...mp;#entry558863

Regarding the gene thing:

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Genetic testing for celiac disease

Celiac disease is a multigenic disorder associated with HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302). HLA DQ2 is expressed in the majority (>90%) of those with celiac disease and DQ8 in about 8%. The expression of these HLA-DQ2 or DQ8 molecules is necessary but not sufficient to develop celiac disease and accounts for only about 50% of the genetic component of the disease. Studies in sibling (sib recurrence risk for celiac disease of 10%) [42] and of identical twins (concordance of 70%) [43] suggest that the contribution of HLA genes in celiac disease is less than 50%. The determination of the presence of HLA DQ2 or DQ8 is now available commercially. The role in the diagnosis of celiac disease is however limited because of the low specificity of the test for celiac disease. These HLA types are present in about 30% of the normal population. Their absence is useful in excluding celiac disease. The role in assessment of the presence of HLA DQ2 or is: 1. In the presence of an equivocal biopsy, 2. When someone is already on the diet, 3. To determine which family members should be screened for celiac disease

According to my understanding, there is no specificic "celiac gene". The only benefit from the gene testing is to determine if you are genetically predisposed NOT to develop Celiac.

Here is a listing of a few. All distilled alcohols are considered safe:

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

Hi everybody,

Can we have Celiac or gluten intolerance with a negative genetic test? I don't know if it is possible. My biopsia didn't show Celiac , it came back showing gastritis. My dr also ordered a blood test, only one, and was negative. I don't know why he didn't order a complete Celiac panel. Anyway, I went gluten free after the biopsia and got a lot of better. After one month gluten free, my dr told me the tests were negative and to try gluten. I did, and after a few days I got diarrhea, bloating, abdominal pain and so tired. I am thinking to order the genetic test. Do you think it can be usefull in my case?

Thanks a lot for your time,

George.

Hi George,

Here is some information on gene testing:

Open Original Shared Link

Genetic testing for celiac disease

Celiac disease is a multigenic disorder associated with HLA-DQ2 (DQA1*05/DQB1*02) or DQ8 (DQA1*0301/DQB1*0302). HLA DQ2 is expressed in the majority (>90%) of those with celiac disease and DQ8 in about 8%. The expression of these HLA-DQ2 or DQ8 molecules is necessary but not sufficient to develop celiac disease and accounts for only about 50% of the genetic component of the disease. Studies in sibling (sib recurrence risk for celiac disease of 10%) [42] and of identical twins (concordance of 70%) [43] suggest that the contribution of HLA genes in celiac disease is less than 50%. The determination of the presence of HLA DQ2 or DQ8 is now available commercially. The role in the diagnosis of celiac disease is however limited because of the low specificity of the test for celiac disease. These HLA types are present in about 30% of the normal population. Their absence is useful in excluding celiac disease. The role in assessment of the presence of HLA DQ2 or is: 1. In the presence of an equivocal biopsy, 2. When someone is already on the diet, 3. To determine which family members should be screened for celiac disease.

A customer service rep could answer your question.

Thanks for the heads-up on the label change.

Products that are processes on same equipment, do not necessarily contain gluten. Most lines are washed and sanitized between runs. What they are saying, with this disclosure, is that there MAY be some minute traces of gluten.

We are finding more and more (due to liability) that many products now are not labeled "gluten free" unless they test or have an entirely dedicated facility.

I center my attention on the ingredient listing.

Some people here do not handle Lays products well.

Thanks momma goose. Now, why didn't I think of that? Duh.

Or your could type in a product and gluten free (ketchup - gluten free) and for the most part, you can find an answer.

Life is easier than it used to be a few years ago.

I googled www.butterball.com

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Do Butterball

Here is something cool. We use it around here because it's bomb-proof and bug and moisture resistant. IPE is a wood composit. You can also get it in simple planking:

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This is the blood panel to request (demand) from your doctor:

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Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

What are they testing for? "inconclusive" for what?.

Also demand an endoscopy exam which can view the upper small intestines and six to eight samples should be take to biopsy for Celiac Disease.

https://www.celiac.com/gluten-free/index.ph...c=61479&hl=

............

The percentages of people with Celiac, having GI issues as primary symptoms, is relatively low, oddly enough.

With over 200 symptoms, chronic fatigue is common in it's association with Celiac Disease, as it is with other illnesses.

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Exclusionary Conditions;

Chronic fatigue syndrome can resemble many other illnesses, including mononucleosis, Lyme disease, lupus, multiple sclerosis, fibromyalgia, primary sleep disorders, severe obesity and major depressive disorders. Medications can also cause side effects that mimic the symptoms of CFS.

Because CFS can resemble many other disorders, it's important not to self-diagnose CFS. It's not uncommon for people to mistakenly assume they have chronic fatigue syndrome when they have another illness that needs to be treated. If you have CFS symptoms, consult a health care professional to determine if any other conditions are responsible for your symptoms. A CFS diagnosis can be made only after other conditions have been excluded.

It's also important not to delay seeking a diagnosis and medical care. CDC research suggests that early diagnosis and treatment of CFS can increase the likelihood of improvement

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There are also several conditions which may yield false negative antibody results. A false negative means that the patient actually has the disease, but the test result is negative. One of the conditions that may give a false negative result is Immunoglobulin A or IgA deficiency. If a patient has a low total IgA level, the antibodies may be falsely low. This is why I always recommend that a patient have a total IgA level drawn at the same time the antibody testing is done. Young children may not make the some of the “anti-self” antibodies, as it takes a somewhat mature immune system to make them. So in a young child, antiendomysial antibody, or the TTG antibody, can have false negative results. An inexperienced lab can misread the anti-endomysial IgA test, which requires someone to read a slide through a special microscope. It is possible that a celiac patient could have a positive antibody test at one lab, and a negative test at another. This is because different labs may use different commercial test kits, which vary in their sensitivity and specificity. And lastly, a person has to be ingesting gluten at the time the antibodies are drawn. A gluten-free diet will make the antibody tests negative.

The percentages of people with Celiac, having GI issues as primary symptoms, is relatively low, oddly enough.

With over 200 symptoms, chronic fatigue is common in it's association with Celiac Disease, as it is with other illnesses.

Open Original Shared Link

Exclusionary Conditions;

Chronic fatigue syndrome can resemble many other illnesses, including mononucleosis, Lyme disease, lupus, multiple sclerosis, fibromyalgia, primary sleep disorders, severe obesity and major depressive disorders. Medications can also cause side effects that mimic the symptoms of CFS.

Because CFS can resemble many other disorders, it's important not to self-diagnose CFS. It's not uncommon for people to mistakenly assume they have chronic fatigue syndrome when they have another illness that needs to be treated. If you have CFS symptoms, consult a health care professional to determine if any other conditions are responsible for your symptoms. A CFS diagnosis can be made only after other conditions have been excluded.

It's also important not to delay seeking a diagnosis and medical care. CDC research suggests that early diagnosis and treatment of CFS can increase the likelihood of improvement

Does this sound familiar?:

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You know what helps my stomach--wine. Really

WELL....have lots of it!

Have I missed talk of a new Queen (three pages ago)?

Note- I did have a lab test for celiac a long time ago when my nerve pains started- are the blood tests accurate?

Thanks so much

I would certainly take the Celiac Blood Panel again. This is what you should request from your doctor:

Antigliadin antibodies (AGA) both IgG and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Some people here have order the stool test from Enterolabs. Although, Enterolabs cannot diagnose Celiac Disease, they can indicate a gluten and other food sensitivities. I have never seen an independent study as to the accuracy of Enterolabs stool tests, so I can' t say.

No test is as accurate as we would like at this time, therefore, a combination of tests; serology panel, endoscopy/biopsy and positive dietary response, are all pieces of the puzzle for a Celiac Disease diagnosis. Anyone one positive result of these, can be a good indicator that the disease is present.

Hi - I just joined this group earlier today and thought I'd posted earlier, but I'm not seeing my post so maybe I didn't do it correctly.

It took nearly a month to get my results from EnteroLab, and they came back indicating Intestinal antigliadin IgA antibody levels were elevated (45 units) indicating gluten sensitivity. What I'd like to know is:

1) Has anyone received a different result (their documentation indicates that 45 units is the average positive result).

2) Has anyone on this list had their positive results confirmed by some other testing methodology?

3) If so, what was the second methodology used?

I'm seeing my physician who ordered the test on Tuesday. Before I embark on a total life change, I want to make darned sure it's the correct diagnosis. I wouldn't accept any other type of diagnosis without some collaboration and I feel the same way about this. (Frankly, I hope the diagnosis IS correct, it would explain a lot of things)

Thanks,

Nikki

Nikki,

It would be a good place to start with the Celiac Blood Panel (not sure what test your dr. ordered):

Antigliadin antibodies (AGA) both IgG and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

There is a great deal of information here. Take a walk around.