Lisa

Hi Amy,

Here are a few places from my Triumph Dining Guide: (gluten free friendly)

Aqua Terra

164 Main Street

Northwoods

609 Melvin Avenue

Outback Steakhouse

2207 Forest Drive

Piccola roma

200 Main Street

Ruth's Chris

301 Severn Avenue

**These are from my 2006-07 version.

We used to go to McGarvey's, where you can get steamed shrimp and such.

Thanks for the recommendation but sadly my job requires extensive travel and I only actually eat maybe <6 meals a week at home. Any recommendations for gluten-free dining guides?

I would highly recommend the Triumph Dining Guide as well as the Triumph Restaurant Cards. You can check them out at www.triumphdining.com or they are available at the Gluten Free Mall on this site.

I have both and I use them frequently, especially when traveling.

Maltodextrin in the US is derived from corn and is not a gluten issues. Malt, with certain, is not gluten free.

Modified Food Starch, by US labeling law, must list wheat if it is an ingredient as in "Modified Food Starch (wheat), as well as Hydrolyzed Vegetable Protein.

Here is a listing of US companies who will clearly list all forms of gluten (ie. wheat, barley, malt, rye):

Open Original Shared Link

Here is a listing of some gluten free meds:

Open Original Shared Link

I am sure that your hard work is appreciated by your husband.

I recently tested positive for celiac on the blood work and genetics test. I have had severe abdominal pain, red skin after ingesting gluten, anemia, fatigue and body aches. In addition, I had a reaction to an osteoporosis medication that I was given ( autioimmune sensorineural hearing loss) that can occur in patients with malabsorption. I went on a gluten-free diet for 6 weeks and felt great! On a return trip to the GI doctor he recommended the biopsies so I went back on gluten but I could not tolerate much due to the symptoms. The biopsies were negative. Now, the doctors cannot decide if I should be given the official diagnosis or not. Is this common? I have no intention of going back on gluten but would really like to know if I have celiac or gluten intolerance. I have read that it can take years to get a definite diagnosis. I do not not want more years of feeling awful. Is this a normal experience?

Thanks!

Welcome, you have found a great place here!

Your positive blood work, coupled with genetic testing confirms a diagnosis for Celiac Disease. Welcome to the Club.

Positive blood work and biopsies can rule Celiac in, BUT it cannot rule it out. Your have a long pasage way in your small intestines and often sampling can be hit or miss.

There are three ways to test for Celiac (currently)

1. Blood testing

2. Endoscopy/biopsy

3, Positive dietary results

....You do have an official diagnosis! Let you doctors know.

I believe I got glutened by CC at a restaurant yesterday. I didn't experience symptons until the next day at around 9:00. It was brain fog. How long do symptons usually take to appear?

Everyone's reaction time is different. It is not uncommon for a delay in reation time. Mine is about 24 hours.

I have found that B-12 sublingual daily helps with the brain fog.

Just got my blood work back. the doctor only tested c-reactive protein, sed rate and endomysial ab. All came back negative. Should I just start the diet and see if my symptoms get better? I don't know what to do?

This is the panel of blood test that he should rule to test for Celiac:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

What was your doctors testing for (that came back negative?) I would also like to get a full metabolic blood work that would show any deficiencies which may indicate a problem somewhere.

Hey, if it don't come out of a box, it don't get made here! Good luck in your search.

I just found this website, but was dx'd w/celiac almost 2 years ago. In trying to be gluten-free, I have learned that "Curry" powder, as such, frequently contains Gluten. It is far safer to make your own 'curry' powder from the root ingredients - turmeric, cayenne, chili (these 2 in small quantities) cumin, coriander, fenugreek or asafoetida, salt, and pepper. But if you buy "Curry Powder" - it will give you symptoms, as will curry powder that lists "Curry" as an ingredient.

Potatoes, peppers (hot as well as sweet),paprika, eggplant, and tomatoes are commonly referred to as "Nightshades" and contain alkaloids that seem to disrupt some of the psychochemistry of the brain (neurotransmitters). My arthritis specialist cautioned me that they might exacerbate my symptoms.

I don't know if they contain prolamines besides/in addition to alkaloids; reference is made to the work of William G. Darcy, 1986 Solanacea, Columbia University Press. (I haven't checked, and not being a chemist or botanist, probably would not understand his work very well.

My doctor who treats me for Asperger's Syndrome (similar to Autism) wants me to additionally become casein-free (I have been gluten-free since October 2006, save for occasional 'accidents'. She is a D.O. specializing in psychiatry; she herself is gluten sensitive. My gastroenterologist is of the old school - since I didn't have blunted villii (as I always tried to stay away from wheat) I did NOT have Celiac disease! Another case of 'chronic duodonitis' and all the symptoms of gluten intolerance.

I personally have noticed I can tolerate Sheeps' milk cheese very well (Mantouri, Machiengo, etc.) and goat's milk products to a certain extent (Cheddar, feta).

I have been drinking soymilk, however, for more than 20 years, and have not noticed symptoms. My Asperger's doctor suggested soy or rice milk to avoid casein. I know of the dangers associated with Soy (especially that it is similar to estrogen in the system, and might increase the risk of breast cancer). Rice Milk makes my blood sugar go horrendously low, and I am allergic to tree nuts. What options are there?

I also would be interested in the science linking soy milk and gluten. I have not encountered it yet in my investigations.

Welcome to the Forum!

I was hoping that this thread would have been deleted a long time ago.

I would like to suggest that you start a new thread regarding the science linking soy milk to gluten. It might be more beneficial than reviving this way-too-long thread.

Happy Birthday Phyllis!!! You're finally catching up to me.

I hope all your wishes come true.

This information is also found on that same page:

QUOTE

Celiac

People with celiac disease need to follow a strict gluten-free diet. There are scattered reports where someone with celiac was able to resume eating gluten by using amylase or papain (or perhaps both of these enzymes). However, at this time there are no known enzyme products that will consistently and reliably allow a person with celiac to resume eating gluten, although there continues to be research and development in this area.

.......Now why, couldn't Glutenease use this disclaimer on their product?

If you have any intent to be tested for Celiac, DO NOT Begin a gltuen free diet, it may not be as accurate. You may have some food allergies or sensitivities and not specifically Celiac.

GFR?

A good, open, intelligent debate is always interesting here, as long it's done in a courteous and respectful manner...(said the fly on the wall)

Meat and fish in it's natural state, is obviously free of gluten. In the beginning, it's best to stick with the most natural.

In the US any additives injected into the meat of fish, if it contains wheat, it must by law be listed. Rye, barley or malt are not frequent additives into these products, but do no have to be listed.

Natural Flavors, also would be required to list wheat, but it is always good to contact the company and verify it's gluten status. For instance, Perdue Roasted Chicken, lists Natural Flavors, but no gluten and it can be verified as gluten free by their website.

If you have not already, I would suggest a full metabolic blood work-up. It will show if you have any mineral or vitamins deficiencies.

I don't know what "squshy quick sand" feels like, but you may try some sub-lingual (melts under the tongue) B-12. Many time early Celiacs can be low in B-12 and Folic Acid. A good general daily supplement will also be helpful.

The digestive symptoms seem to be the first to clear up once going gluten free. The neurological issues do take more time.

Hope you feel better soon and get out of the sand.

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Taco Bell has the least amount of safe foods than any other fast food places that I know of. Sorry.

Most fast food places have a listings of gluten free foods and their allergen statements on line.

Rachel,

Correct me if I'm wrong, but it's my understanding that the gluten autoimmune reaction can take part in other parts of the body. This is not common, but it can happen. Specifically, in my friend "tiredofdoctors", Lynne. Lynne, does not have Celiac, but does have a gluten autoimmune response which manifests in her brain and caused damage. I believe it is not referred to as Celiac Disease, but Raven may know otherwise.

I understand that enzymes can be beneficial to many people and you have spent a great deal of time doing wonderful research that you are willing to share. But, back to the topic of this thread, my concern is the marketing statements by the manufactures of Glutenease that is highly misleading (at the least) and causes me concern, as "elonwy" had previously mentioned. This is the basis of my involvement in this thread.

There is a little life in my horse to get me to work today.

Hi Wendy and Welcome to the Forum!

I hope that you get some answers quickly. We would certainly like to welcome you into our club, because it can be managed with a gluten free diet, with no surgery or medications.

Please feel free to walk around this site. There is no better information of Celiac and associated issues. Use this time to study up.

Want to snack on them, but I'm not sure.

What are the ingredients?

"All of the negative reports come from people who've never tried the enzymes. "

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Choose what you will, but to ME it's a no-brainer, with NO "bash" to those that do.

This may be of interest to you:

Open Original Shared Link

But if it helps people who accidentally get cc'd, what's wrong with that?

I understand that it may with people with gluten sensitivities.

I am concerned for all those that check into this forum for information, that they might think that "CC" or cross contamination is a lesser degree to a true glutening. They are quite the same. And for Uncle Zack to say that a product like Glutenease is acceptable for cross contamination is not factual. UncleZacks soliicitation of this produce is a concern to me, additionally as a moderator of this site.

Whether getting glutened by cross contamination or sitting down and eating a piece of bread or pizza, the autoimmune response, for those that have Celiac, is just as dangerous.

As Woolygimp has posted, Glutenease carried it's own disclaimer that is is NOT A CURE FOR DISEASES - TO INCLUDE CELIAC DISEASE.

My response was directed to those with Celiac Disease specifically, as I have indicated. Cross contamination is an equal evil as is a Duncan Donut. Glutenease is not beneficial to an autoimmune response to the exposure of gluten to one with Celiac Disease.

If it can help others without Celiac, great.

I just read from a thread last year that smuckers Listerine and Colgate are not gluten-free? Is this info still accurate? I was told by this companies that they are gluten-free - well I didn't call smuckers, I just assumed they were gluten-free b/c the ingredients looked gluten-free (strawberry preserves).

I've been using these for years. But I've never had any luck gaining weight - maybe this is why (?)

All of Smuckers Jellys and Jam are gluten free. I am fairly certain that Listerine and Colgate both are gluten free, although I do not use those products.

It's always good to confirm any information you find here with back-up statements with the company. Sometimes people with good intent post incorrect information. Remember that the ultimate responsibility remains with ourselves. (didn't mean for that to sound like a lecture )

Open Original Shared Link? Smucker's Contact information.